Blood Cancers & Disorders: Discussions | Page 3

luckyme54216 @luckyme54216, I want to welcome you to Connect. I can understand why you have so...

https://connect.mayoclinic.org/comment/88312/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2019

@shorelady, I'd like to add my welcome along with @gingerw and tagging other members who have...

https://connect.mayoclinic.org/comment/807258/

Discussion: Amyloidisis of the mouth and myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

Fat pad biopsies may be done to look for Amyloidosis - not very definitive or accurate

https://connect.mayoclinic.org/comment/754346/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2022

Pyrophosphate scans , history and labs with a doctor knowledgeable about the different forms of Amyloidosis

https://connect.mayoclinic.org/comment/754613/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2022

@colleenyoung Colleen, I am new to this form and I am being treated for Amyloidosis with...

https://connect.mayoclinic.org/comment/1041672/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Mar 28 12:09pm

Thanks for pointing that out, @azlatina. Unfortunately that webinar is no longer available. However, here are...

https://connect.mayoclinic.org/comment/732756/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2022

I hope they can treat the amyloidosis for you, and you can improve 🌺

https://connect.mayoclinic.org/comment/963531/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

My first sign of Amyloidosis was increased protein in my urine….. Had a 24hr urine &...

https://connect.mayoclinic.org/comment/1119946/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 8 9:09am

Good morning, @sherryzitter. I’m so happy to see you’re jumping in with both feet into this...

https://connect.mayoclinic.org/comment/1042022/

Discussion: Abnormal bloodwork questions

Support Group: Blood Cancers & Disorders

Posted: Mar 29 8:15am

You're welcome. I hope you find some answers. I have AL Amyloidosis, there is another type...

https://connect.mayoclinic.org/comment/1120802/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Aug 9 4:35pm

Yes it is more specific for cardiac Amyloidosis always varying opinions for testing protocols Sent from...

https://connect.mayoclinic.org/comment/754874/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2022

Thank you for recommending a consult with a a Mayo doctor specializing in both WM and...

https://connect.mayoclinic.org/comment/687250/

Discussion: Advice for Amyloidosis with Waldenstrom's macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2022

Has anyone diagnosed with type AL Amyloidosis had success after treatment with Darzalex? If so, how...

https://connect.mayoclinic.org/comment/104724/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2018

Also for those with cardiac amyloidosis and AFib green tea may not be recommended due to...

https://connect.mayoclinic.org/comment/678281/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2022

Hi @colleenyoung , The links dont seem to work any longer. Are there updated ones we...

https://connect.mayoclinic.org/comment/732533/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2022

Good morning, @pices and welcome to Mayo Clinic Connect. We have some current members in our...

https://connect.mayoclinic.org/comment/722050/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2022

FLC is free light chains (kappa and lambda). Measurement of these is used to help diagnoses...

https://connect.mayoclinic.org/comment/1144049/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 19 12:31pm

I have some info with regards to Macular Amyloidosis. I too have this condition, and am...

https://connect.mayoclinic.org/comment/880750/

Discussion: Macular amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2023

My husband was diagnosed with Cardiac Amyloidosis recently at Mayo Clinic. He had 2 biopsies to...

https://connect.mayoclinic.org/comment/898857/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

Hi @patio29dadio, welcome. You're facing some big decisions. Allow me to bring in fellow members who...

https://connect.mayoclinic.org/comment/687154/

Discussion: Advice for Amyloidosis with Waldenstrom's macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2022

Blood Cancers & Disorders Support Group