Blood Cancers & Disorders Support Group

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Comments (2,234)

I am 79 with MGUS..father died of multiple myeloma. RBC is slightly lower..will be tested again...

https://connect.mayoclinic.org/comment/1149117/

Discussion: Does MGUS cause red blood cells (RBCs) to drop?

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2024

To lynne76 I know how you feel. My MGUS was found in 2020. My nephrologist actually...

https://connect.mayoclinic.org/comment/786056/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2022

@tias we do have the best state in the union. Lived in Florida all my life...

https://connect.mayoclinic.org/comment/1425428/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2025

@freespirit60 I found this from the Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/mgus/symptoms-causes/syc-20352362#:~:text=Experts%20don't%20know%20what,By%20Mayo%20Clinic%20Staff And a couple of other sources. https://pmc.ncbi.nlm.nih.gov/articles/PMC2710931/...

https://connect.mayoclinic.org/comment/1363750/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2025

@silversun welcome to the blood cancer and disorders group. I'm glad you found us. I have...

https://connect.mayoclinic.org/comment/1264027/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2025

Agree that just addressing MGUS as soon as detected and eliminating it was my thought! I...

https://connect.mayoclinic.org/comment/1105991/

Discussion: Stopping Myeloma at the MGUS Stage

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2024

I agree I was diagnosed several years ago also with MGUS and have been under the...

https://connect.mayoclinic.org/comment/1100067/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

I am 45 years old, and I was diagnosed with MGUS September of last year. At...

https://connect.mayoclinic.org/comment/1053258/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2024

Hi @emurrell65, I know how worrisome it is to potentially have a new health diagnosis. As...

https://connect.mayoclinic.org/comment/830749/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2023

Thanks very much! I have MGUS however the emerging issue is consistently low IgG, IgA, IgM...

https://connect.mayoclinic.org/comment/815862/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023

@sunsetchris you might check out this video regarding neuropathy and MGUS from The Mayo Clinic. It’s...

https://connect.mayoclinic.org/comment/1422445/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2025

So I was diagnosed with MGUS about 5 yrs ago and both my kappa and my...

https://connect.mayoclinic.org/comment/1222126/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2025

My son age 49 has MGUS along with many other problems. He was diagnosed five years...

https://connect.mayoclinic.org/comment/106674/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2018

I believe I’ve had MGUS since my 40’s. I was followed by a hematologist for two...

https://connect.mayoclinic.org/comment/1311772/

Discussion: People diagnosed with MGUS under 45

Support Group: Blood Cancers & Disorders

Posted: May 24, 2025

You're welcome. There are many other reassuring and accurate videos on YouTube. Just be sure not...

https://connect.mayoclinic.org/comment/825562/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2023

The short answer appears to be yes, excess weight is a risk factor for progression of...

https://connect.mayoclinic.org/comment/1303844/

Discussion: Can weight gain cause progression from MGUS to myeloma?

Support Group: Blood Cancers & Disorders

Posted: May 14, 2025

Thanks. My M spike has been at the detection limit for a few years and hopefully...

https://connect.mayoclinic.org/comment/1113129/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2024

@newfiesgirl1 The relationship of trust must be present in the doctor and patient relationship. I would...

https://connect.mayoclinic.org/comment/1422691/

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2025

@amyboylan1 There is a lot of information on the web, and you can easily find your...

https://connect.mayoclinic.org/comment/1141646/

Discussion: Resources for MGUS: What reading is helpful for the newly diagnosed?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2024

@harley22 and @coug42 It's not unusual to have a protocol of watch-and-wait when it comes to...

https://connect.mayoclinic.org/comment/1101202/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2024