Blood Cancers & Disorders Support Group

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Comments (1,895)

I'm 69 F with kappa light chain MGUS. My kappa/lambda ratio (7.76) has been slowly ramping...

https://connect.mayoclinic.org/comment/995946/

Discussion: MGUS FLC Ratio decreasing

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2024

MGUS needs to be watched and monitored. If you get labs drawn yearly and they tweak...

https://connect.mayoclinic.org/comment/1251632/

Discussion: Kappa chain and K/L ratio keeps increasing

Support Group: Blood Cancers & Disorders

Posted: Mar 6 9:35am

My primary was the doc who sent me to a hematologist oncologist for follow up to...

https://connect.mayoclinic.org/comment/930981/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2023

I too have MGUS diagnosed about 7 years ago. Canker sore started about 1 year ago....

https://connect.mayoclinic.org/comment/1144136/

Discussion: Recurring severe mouth ulcers and MGUS

Support Group: Blood Cancers & Disorders

Posted: Sep 19, 2024

Greetings Omemee. I was dx’d with MGUS over a year ago. I had a “lesion” on...

https://connect.mayoclinic.org/comment/720539/

Discussion: Multiple myeloma lytic lesions pelvic area. What treatments?

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2022

I read several studies on BCMA levels and MGUS progression. sBCMA levels were noticed to increase...

https://connect.mayoclinic.org/comment/672449/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2022

EVUSHELD QUESTION WHETHER TO KEEP GETTING INJECTIONS: Not certain where I should jump in to the...

https://connect.mayoclinic.org/comment/782506/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

@gingerw Thanks for your quick response to my post. Very informative. Of all the symptoms on...

https://connect.mayoclinic.org/comment/754494/

Discussion: possible Myeloma ? big shocking surprise !!

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2022

This summer heat has been oppressive, hasn’t it? It does sap the energy out of a...

https://connect.mayoclinic.org/comment/737277/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2022

Thank you so much for this. Living in the present is a hard. I am having...

https://connect.mayoclinic.org/comment/1161790/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2024

@carolee888 How long between your diagnosis of MGUS to smoldering myeloma, please? Most people go for...

https://connect.mayoclinic.org/comment/806559/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2023

Some centers test for cells with CD38 and CD138 antigens on cells in the blood -...

https://connect.mayoclinic.org/comment/1277580/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 9 7:23am

@dh9, just want to drop by to say welcome. How long have you been living with...

https://connect.mayoclinic.org/comment/1196181/

Discussion: I have polycythemia: Your thoughts on new test results?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2024

He called me back and says he's watching it and my next adventure will probably be...

https://connect.mayoclinic.org/comment/1103463/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 11, 2024

Hello: I’ve had a terrible rash on my arms and legs for over six months. That’s...

https://connect.mayoclinic.org/comment/972036/

Discussion: MGUS & Rash

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2023

@lpro After conferring with my physicians I have opted not to have a BMB at this...

https://connect.mayoclinic.org/comment/1333966/

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: Jun 24 7:48am

Thank you sstillwell for your comments on diet. Very helpful info. I have somewhat high IgM...

https://connect.mayoclinic.org/comment/654634/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2021

There is some limited research that suggests MGUS progresses faster in overweight and obese people.But this...

https://connect.mayoclinic.org/comment/1179677/

Discussion: Can being over normal BMI weight cause MGUS to progress faster?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2024

I am a long time myeloma patient. 15 years, 2 stem cell transplants, have been in...

https://connect.mayoclinic.org/comment/908139/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2023

I have MGUS. I am a 78 female and I was diagnosed about 6 months ago....

https://connect.mayoclinic.org/comment/890011/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023