Blood Cancers & Disorders Support Group

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Comments (550)

I, too, have Myelofibrossis. I started Ojarra 100mg 4 months ago due to spleen discomfort. That...

https://connect.mayoclinic.org/comment/1252322/

Discussion: Myelofibrosis, Ojjaara and anemia

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2025

I had ET for over 17 years. I was diagnosed at age 45. After the first...

https://connect.mayoclinic.org/comment/957613/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2023

I agree that there are many unknowns about MF, even despite all the advances in research...

https://connect.mayoclinic.org/comment/957597/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2023

And complaining? Lol. Seriously, it Could be an enlarged spleen which sits above your stomach making...

https://connect.mayoclinic.org/comment/132651/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2020

@reneemichelle I just learned I am triple negative likely ET. I am scheduled for a bone...

https://connect.mayoclinic.org/comment/1457079/

Discussion: Like to know more. Just told I have Triple Negative MPN.

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2025

My first meeting with an oncologist after an accurate diagnosis of Primary Mylofibrosis was disturbing. She...

https://connect.mayoclinic.org/comment/1313191/

Discussion: Primary Myelofibrosis: What is life going to be like now?

Support Group: Blood Cancers & Disorders

Posted: May 26, 2025

I've been on anagrelide for 40 years with out a problem till this year & now...

https://connect.mayoclinic.org/comment/1102252/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2024

Hi, I have Essential Thrombocythemia with JAK 2 mutation and perhaps these folks looking for answers...

https://connect.mayoclinic.org/comment/194318/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2019

When was his last blood test? Red platlet count ? White cell count? Where is pain...

https://connect.mayoclinic.org/comment/50521/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2017

Hi @lexsjx I’m 63 and just started hydrea (HU) 2 weeks ago. I’ve had elevated platelets...

https://connect.mayoclinic.org/comment/1532160/

Discussion: ET: untreated elevated platelets for over 13 years

Support Group: Blood Cancers & Disorders

Posted: Mar 21 1:23pm