Blood Cancers & Disorders Support Group

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Comments (1,382)

HI The only side affect I have had is tiredness, I avoid sitting in the sun...

https://connect.mayoclinic.org/comment/940309/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2023

Hi, I have t seen anyone on this site mention a repeat JAK2 test. I think...

https://connect.mayoclinic.org/comment/900589/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2023

@margrethe Wow your numbers aren’t that high so I will think positively that you wind up...

https://connect.mayoclinic.org/comment/873147/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

Well, I think I fall into the high risk category, as I'm older than 60, have...

https://connect.mayoclinic.org/comment/782573/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

@loribmt I have been diagnosed with MF in October 2025. Having read the dreadful list of...

https://connect.mayoclinic.org/comment/1494327/

Discussion: Are there support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 30 2:33pm

I'm a 65 yr old woman i've had essential thrombocythrmia with jak2 for about 7 years...

https://connect.mayoclinic.org/comment/1511653/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 22 12:48am

Hi, I was do with ET 3 years ago, + JAK2 via BM bx. I am...

https://connect.mayoclinic.org/comment/855293/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2023

MJPM- Many thanks for your epistle and distinct definitions. I have suffered from ET for about...

https://connect.mayoclinic.org/comment/328599/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2021

Hi Linda, I am 70 and have 3 mutations, Tet, ASLX1, and Jak2. I did not...

https://connect.mayoclinic.org/comment/1409919/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2025

So glad to hear you are not having symptoms and it has not morphed into leukemia....

https://connect.mayoclinic.org/comment/203949/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2019

@lexsjx I have a complete CBC every three months to monitor. Guessing that's what the doc...

https://connect.mayoclinic.org/comment/1529436/

Discussion: ET: untreated elevated platelets for over 13 years

Support Group: Blood Cancers & Disorders

Posted: Mar 17 8:28pm

I had seven vaccines in 2021 (3 Covid, 2 Shingrix, flu, Tdap booster. I developed psoriasis...

https://connect.mayoclinic.org/comment/815858/

Discussion: Shingrex and ET platelet levels

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023

Hello brooks7987, I have had PV w/JAK2 for over 5 years. I started on Hydroxurea almost...

https://connect.mayoclinic.org/comment/794995/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2023

Good morning huronshores.......I have been taking Hydrea for almost two years and have back and joint...

https://connect.mayoclinic.org/comment/146309/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2020

Diagnosed with prefibrotic myelofibrosis 7/25. 78 years old with JAK2, ASXL1, ZRSR2 & TET2 mutations. Platelets...

https://connect.mayoclinic.org/comment/1366821/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2025

Hi Lisa, my story is very similar to sregiani— ET with Jak2 mutation — Only my...

https://connect.mayoclinic.org/comment/1162618/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

@ettap I was wondering if you could give me any updates on your case. I have...

https://connect.mayoclinic.org/comment/194271/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2019

Hi shenriq, I have been taking Hydrea for 20+ years for ET. It keeps my platelet...

https://connect.mayoclinic.org/comment/203931/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2018

@eileen11108 Eileen, Your case sounds similar to mine. I was diagnosed in 2023, ET/Jak2, and take...

https://connect.mayoclinic.org/comment/1557630/

Discussion: Side effects of hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: Apr 23 11:17am

Can someone please tell me the difference between PV & ET? Different symptoms? Can one turn...

https://connect.mayoclinic.org/comment/1066132/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2024