Blood Cancers & Disorders: Discussions | Page 28

Hello to all, I am new to this and trying to get a better understanding of...

https://connect.mayoclinic.org/comment/231780/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2019

There is no research on this because doctors will not report it. My doctor said there...

https://connect.mayoclinic.org/comment/1020788/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2024

Hi @pennyhedgecoth, I hope you and your husband are doing well! I'm a scientist at a...

https://connect.mayoclinic.org/comment/626170/

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2021

I’ve had high platelets in the 600-700 range for close to 20 yrs. It was never...

https://connect.mayoclinic.org/comment/811832/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 15, 2023

I am 78 with ET JAK2, started taking HU 500 mg daily in June 2022. Started...

https://connect.mayoclinic.org/comment/790060/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2022

Have you filed a lawsuit claim with the VA yet? You may be entitled to medical...

https://connect.mayoclinic.org/comment/194353/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2020

I have been taking daily 600mgs of HU for 6 yrs (Droxia formulation). When I started...

https://connect.mayoclinic.org/comment/1168197/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2024

My first meeting with an oncologist after an accurate diagnosis of Primary Mylofibrosis was disturbing. She...

https://connect.mayoclinic.org/comment/1313191/

Discussion: Primary Myelofibrosis: What is life going to be like now?

Support Group: Blood Cancers & Disorders

Posted: May 26 9:31am

Hi mdterp76, Thank you for posting. I do have high platelet but less than one million....

https://connect.mayoclinic.org/comment/1221787/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 26 12:03am

Not certain this is going to post as I still don’t have a password , so...

https://connect.mayoclinic.org/comment/767118/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2022

Hi...my name is Claire and I have jak2 mutant. Diagnosed in November 1918 and was given...

https://connect.mayoclinic.org/comment/256905/

Discussion: Medication for JAK2

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2019

I’ve had ET w/Jak2 for 18 months. My functional medicine doc works w/my Heme doc (who...

https://connect.mayoclinic.org/comment/1094207/

Discussion: Any correlation between Essential Thrombocythemia & high B12?

Support Group: Blood Cancers & Disorders

Posted: Jun 25, 2024

Fatigue is a common symptom with all forms of Leukemia and MDS or MPN disorders. Hydrea...

https://connect.mayoclinic.org/comment/850175/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2023

As I stated in my post, I thought there was something wrong with my brain due...

https://connect.mayoclinic.org/comment/812957/

Discussion: Your tips as I prepare for first phlebotomy

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2023

I am + JAK2 and just had a biopsy and they still don't know for certain...

https://connect.mayoclinic.org/comment/194284/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2019

My platelets were rising starting in 2017, finally I was diagnosed with ET Jak2 in 2020....

https://connect.mayoclinic.org/comment/1141953/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2024

Yes, I was diagnosed in May of 2022 but have had symptoms since 2019. I had...

https://connect.mayoclinic.org/comment/738411/

Discussion: When is hydroxurea usually added to treat polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

Not knowing is more stress than dealing with truth & reality. .I have had two bone...

https://connect.mayoclinic.org/comment/720769/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2022

Did they do a molecular panel to determine which genes have mutated? The reason I ask...

https://connect.mayoclinic.org/comment/194333/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2019

I have the JAK2 and SRSF2 mutations. I was diagnosed with MDS/MPN overlap with Thrombocytosis. Extremely...

https://connect.mayoclinic.org/comment/194316/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: May 9, 2019

Blood Cancers & Disorders Support Group