Blood Cancers & Disorders Support Group

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Comments (2,268)

I have ET (CALR) and Pots. No change in vision but my ophthalmologist changed my yearly...

https://connect.mayoclinic.org/comment/1174733/

Discussion: Are visual disturbances related to ET or hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2024

I would really be interested if you could send me any links or info that you...

https://connect.mayoclinic.org/comment/1152983/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2024

Platelets normally have B12 markers on their cell membranes. I am not sure if B12 promotes...

https://connect.mayoclinic.org/comment/1090126/

Discussion: Any correlation between Essential Thrombocythemia & high B12?

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2024

I take vitamin D and K 5000 mg and folic acid 1 mg While taking hydroxyurea...

https://connect.mayoclinic.org/comment/1510277/

Discussion: What vitamins to avoid when taking Hydrea (hydroxyurea) for ET JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 20 9:09am

@pattycake11, you mention that the bone marrow biopsies were negative and it's not cancer and you've...

https://connect.mayoclinic.org/comment/1054914/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2024

I'm curious, what was reason to have blood tested for Jak2, if platelets were within normal...

https://connect.mayoclinic.org/comment/904426/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2023

@chris56 My doc says ET does not fit the criteria of a "cancer." I'm sticking with...

https://connect.mayoclinic.org/comment/1449711/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2025

I am a mask-wearer at all times. I am usually the only mask-wearing person in stores...

https://connect.mayoclinic.org/comment/1019736/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2024

Good to know that u are doing good mam. I'm 32 and recently diagnosed with ET...

https://connect.mayoclinic.org/comment/967362/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2023

Obviously, the choice whether to take HU or not is yours, but please consider this carefully....

https://connect.mayoclinic.org/comment/1186025/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2024

Hi Terry @terese7 Essential Thrombocythemia is a blood condition where your bone marrow is producing too...

https://connect.mayoclinic.org/comment/1091025/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2024

I was listening to a UK Doctor discussing tattoos and possible link to blood cancers. I...

https://connect.mayoclinic.org/comment/1151179/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2024

I'm taking 1500mg of HU daily along and 325mg aspirin. I'm 74, have ET Jak2. My...

https://connect.mayoclinic.org/comment/861686/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 18, 2023

@rlybolt Remember what your elementary teacher said: “There are no stupid questions!” ET is Essential Thrombocythemia....

https://connect.mayoclinic.org/comment/737547/

Discussion: Have ET: What if spleen is enlarged?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2022

@eloise999, I have ET. No progression so far. Similarities are that my platelets go super high...

https://connect.mayoclinic.org/comment/1424809/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2025

I have been a Master Electrician for over 50 years but I was not stationed at...

https://connect.mayoclinic.org/comment/194349/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2019

Yes, although I think the Sjogrens may have come first? I was diagnosed with ET in...

https://connect.mayoclinic.org/comment/1495488/

Discussion: Anyone with Essential Thrombocythemia & Sjogrens or autoimmune?

Support Group: Blood Cancers & Disorders

Posted: Feb 1 8:31am

@nohrt4me: I was diagnosed with ET when I was 50 with JAK2. My platelet level was...

https://connect.mayoclinic.org/comment/1329234/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2025

Hi @rch552320 Your mom was recently diagnosed with thrombocytosis which is an excess of platelets in...

https://connect.mayoclinic.org/comment/1067044/

Discussion: 70 + year women with Thrombosis

Support Group: Blood Cancers & Disorders

Posted: May 13, 2024

Information on nattokinase from the National Institutes of Health. Sounds interesting, though maybe more useful for...

https://connect.mayoclinic.org/comment/930436/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2023