Blood Cancers & Disorders Support Group

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Comments (916)

@mikemp Those of us with conditions that require regular blood work for monitoring will sometimes see...

https://connect.mayoclinic.org/comment/1275507/

Discussion: My platelet count has increased after a year on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2025

I was able to see my lab results before my second visit with my oncologist. Since...

https://connect.mayoclinic.org/comment/1253583/

Discussion: Myeloma newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2025

@sue85 Welcome to Mayo Clinic Connect. Have you asked the nurse why she didn't feel concerned?...

https://connect.mayoclinic.org/comment/1162115/

Discussion: MGUS: Should I be concerned that my eGFR dropped from 77 to 57

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2024

Hi Lorraine: My husband is an 11 year survivor of plasmacytoma and full blown multiple myeloma....

https://connect.mayoclinic.org/comment/109690/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2017

@becky1024 Good for you for staying up-to-date with your blood values! I do the same, and...

https://connect.mayoclinic.org/comment/732412/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2022

@19lesterk, I moved your question about plasma cell leukemia to this existing discussion of the same...

https://connect.mayoclinic.org/comment/1296772/

Discussion: Anyone with Plasma Cell Leukemia or family?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2025

Hi I was on rev in 2017 for the first time when diagnosed but then was...

https://connect.mayoclinic.org/comment/1285721/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2025

Hello Anonymous, Multiple Myeloma is a cancer of the plasma cells of the bone marrow, while...

https://connect.mayoclinic.org/comment/50124/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2012

@cioli Welcome to Mayo Clinic Connect! It's great to read that you had a successful stem...

https://connect.mayoclinic.org/comment/999508/

Discussion: Anybody else have blackout memory issues?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2024

Yes, this is a brand new diagnosis for me. In April 2021, I was diagnosed with...

https://connect.mayoclinic.org/comment/1187074/

Discussion: Cryoglobulinemia: Want to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2024

@smiles1951 Personally, I don't think a patient can be "too involved" when advocating for their own...

https://connect.mayoclinic.org/comment/1105326/

Discussion: Can One Be Too Involved With Mayo Care Team Re: Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2024

@hopeful33250 Thank you for posting this, Theresa. I wonder if there is a transcript of this...

https://connect.mayoclinic.org/comment/109753/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2019

I am a 75 year old male who was diagnosed with mGus close to 20 years...

https://connect.mayoclinic.org/comment/1254993/

Discussion: Newly diagnosed with MGUS and so anxious

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2025

@nan77 Yes, welcome. I don’t know about your insurance coverage, but when I was diagnosed with...

https://connect.mayoclinic.org/comment/1077457/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 29, 2024

@lynne756 Welcome to Mayo Clinic Connect, Lynne! When we get a diagnosis that is confusing, it...

https://connect.mayoclinic.org/comment/785804/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2022

When I was diagnosed with an M-spike 2 years ago which turned out to be IgG...

https://connect.mayoclinic.org/comment/1031085/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2024

@lizzyr1114 hello! I think blood disorders in general are pretty much out of the purvey of...

https://connect.mayoclinic.org/comment/987158/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2023

I just put this into ChatGPT and this is what i found: There’s a lot of...

https://connect.mayoclinic.org/comment/1324268/

Discussion: Smoldering Multiple Myeloma and symptoms

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2025

Hi @ancopau1998. Having multiple myeloma can bring extra challenges to keeping your bones and teeth healthy....

https://connect.mayoclinic.org/comment/804304/

Discussion: Looking for a good dentist who knows about MM in Cleveland Ohio!

Support Group: Blood Cancers & Disorders

Posted: Jan 31, 2023

@tallyteresa My MGUS/myeloma journey started when a new nephrologist recognized concerning blood results. Apparently, they had...

https://connect.mayoclinic.org/comment/793950/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2023

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