Blood Cancers & Disorders Support Group

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Comments (867)

@alive I think it can be our mission to be an example for others to look...

https://connect.mayoclinic.org/comment/1182397/

Discussion: Saying Goodbye

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2024

I'm a 70 yo woman with celiac (15 years), brand new stage 3a chronic kidney disease,...

https://connect.mayoclinic.org/comment/1188403/

Discussion: I have polycythemia: Your thoughts on new test results?

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2024

Hematologists usually treat a variety of blood disorders. Myeloma specialists are hematologists who treat patients with...

https://connect.mayoclinic.org/comment/1030366/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2024

@cemeterygal101 Wow, that is quite the combination to have at the same time. It seems like...

https://connect.mayoclinic.org/comment/848035/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2023

Hello, sorry about your diagnosis. I’ve found MGUS/ Smoldering Myeloma or Multiple Myeloma all affect people...

https://connect.mayoclinic.org/comment/1019136/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2024

I’ve been on Revlimid 10 mg every day for 4 months. I’ve had no real side...

https://connect.mayoclinic.org/comment/1398705/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2025

I lead a support group for MM patients (I’m a patient too), and I’ve seen several...

https://connect.mayoclinic.org/comment/1014860/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2024

Hi @rae77 @oliviahutson @kayabbott and @becsbuddy. I moved this discussion to the Blood Cancers & Disorders...

https://connect.mayoclinic.org/comment/937480/

Discussion: MGUS and Chemotherapy

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2023

Yes, we will have an appointment on July 26th and another blood draw before that. I...

https://connect.mayoclinic.org/comment/895259/

Discussion: Any survivors of Non-Hodgkin's lymphoma out there?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

Latest update on my sis. The PET scan came back clear so that was wonderful news....

https://connect.mayoclinic.org/comment/833680/

Discussion: Anemia found on bloodwork: When to see a hematologist?

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2023

Good for you!!! You are right...it is definitely "worth it" to go through the induction therapy...

https://connect.mayoclinic.org/comment/217294/

Discussion: Chemo side effects

Support Group: Blood Cancers & Disorders

Posted: Sep 19, 2018

I am 71 and was diagnosed with IgA kappa MGUS 9 years ago; it is gradually...

https://connect.mayoclinic.org/comment/1402609/

Discussion: Should I be worried about my MGUS diagnosis and my M Spike rising?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2025

I was diagnosed with MGUS in 2014. It remained latent until about 18 months back and...

https://connect.mayoclinic.org/comment/794598/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2023

I have some kind of immune disorder as well they havent figured out what i been...

https://connect.mayoclinic.org/comment/1076759/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

@debscullum62 Welcome to Mayo Clinic Connect. How did you find us? Here is information about MGUS...

https://connect.mayoclinic.org/comment/913774/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2023

True that, and this is a good thing. I think when you are first diagnosed it...

https://connect.mayoclinic.org/comment/870396/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

I have just been diagnosed with Smoldering Multiple Myeloma, I don't have any symptoms except fatigue...

https://connect.mayoclinic.org/comment/50127/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2012

I read through the comments and it is true, some Hemonocs look at M-Spikes over 1.6...

https://connect.mayoclinic.org/comment/1287826/

Discussion: M-Spike and Lambda light chain increasing while KL ratio decreasing

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2025

My husband was diagnosed with Acquired von Willebrand Syndrome almost a year ago today. Six months...

https://connect.mayoclinic.org/comment/1180018/

Discussion: Acquired Von Willebrand syndrome

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2024

Recent blood work showed slightly elevated ionized calcium levels. Regular calcium levels are at the high...

https://connect.mayoclinic.org/comment/778794/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022