Blood Cancers & Disorders Support Group

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Comments (1,465)

I was diagnosed with IgA kappa light chain MGUS 8 years ago (69 yo woman) and...

https://connect.mayoclinic.org/comment/1008159/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 2 7:31am

WOW. Glad I just found this group. Lots of info. Like so many, my MGUS was...

https://connect.mayoclinic.org/comment/910564/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2023

Many of us are doing watchful checkups with hematologists we like. (First I found four I...

https://connect.mayoclinic.org/comment/714662/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2022

I just recently had my mgus testing. My kappa light chains are up to 34.8 a...

https://connect.mayoclinic.org/comment/1056247/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 24 7:17am

I'm getting your emails, but I don't even see my original post from yesterday..it said..new here,...

https://connect.mayoclinic.org/comment/106669/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 15, 2018

Welcome to Connect @bun01 Were you recently diagnosed with MGUS or is this a condition you’ve...

https://connect.mayoclinic.org/comment/943661/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

Heard back from oncology but they saw I have C40.22 and refer me to Ortho/Onc, one...

https://connect.mayoclinic.org/comment/979021/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2023

I take full spectrum curcumin with organic curcumin tea every morning. Full spectrum because it has...

https://connect.mayoclinic.org/comment/836203/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

Yes, I would like to know if you and your physicians feel that the plant based...

https://connect.mayoclinic.org/comment/1014622/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 12 5:04pm

Hi Agatha, I am so happy you are asymptomatic now! It would be indeed rare for...

https://connect.mayoclinic.org/comment/837479/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2023

Greetings. So sorry you are having trouble finding a clinical home. I don’t know Scottsdale but...

https://connect.mayoclinic.org/comment/821204/

Discussion: Monoclonal Gammopathy & Granulatomus Disease + new ANA+ in AZ

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2023

Hi Mike, Glad to hear you are in remission- prayerfully things will remain in remission for...

https://connect.mayoclinic.org/comment/696840/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2022

I was also diagnosed with MGUS in 2019. My primary Dr referred me to a kidney...

https://connect.mayoclinic.org/comment/995194/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 10 6:50pm

dazlin, I have had MGUS for two years now (also have Waldenström's non-Hodgkin's lymphoma) but my...

https://connect.mayoclinic.org/comment/974476/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2023

Hi Ginger, Sorry to hear about the progression to SMM. I was curious do they consider...

https://connect.mayoclinic.org/comment/695365/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2022

My red blood cell count is 3.75. I have MGUS- precursor multiple myeloma. I do not...

https://connect.mayoclinic.org/comment/74539/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jun 25, 2012

The answer to your question is no. I saw something wrong with my standard bloodwork in...

https://connect.mayoclinic.org/comment/732629/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2022

@vera101 Welcome to the forum. I am so sorry about your vision problems. One of the...

https://connect.mayoclinic.org/comment/1000528/

Discussion: Multiple myeloma: When to treat? When not to treat?

Support Group: Blood Cancers & Disorders

Posted: Jan 20 9:46am

I'm 70, and my diet changed 15 years ago, before MGUS (8 years). Because of celiac...

https://connect.mayoclinic.org/comment/1167128/

Discussion: Does plant-based eating lower chances of MGUS progressing to myeloma?

Support Group: Blood Cancers & Disorders

Posted: Nov 3 8:23am

Yes; it’s perplexing and almost like a weird form of punishment! I’m being facetious here, but...

https://connect.mayoclinic.org/comment/886255/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023