Blood Cancers & Disorders Support Group

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Comments (634)

Oh my gosh, @aleeab, you are in a world of hurt right now and it’s ok...

https://connect.mayoclinic.org/comment/1106478/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2024

Yes: i do wish I had that training, now ;) None are hem-oncs, so I'll await...

https://connect.mayoclinic.org/comment/1161430/

Discussion: Newly diagnosed CLL How to interpret FISH results?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2024

Venclexta is a very effective therapy. I’ve been on it for many months along with infusions...

https://connect.mayoclinic.org/comment/1087392/

Discussion: To continue or stop Venclexta treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

I have followed the same pattern. I was diagnosed with B-lymphocytic about 20 years ago. Lymphocytes...

https://connect.mayoclinic.org/comment/1029741/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2024

@trixie1, recently (Jan 2023) the FDA approved zanubrutinib (Brukinsa) for the treament of chronic lymphocytic leukemia...

https://connect.mayoclinic.org/comment/912886/

Discussion: Any new treatments for SMZL? What do you take for maintenance?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

Thank you, dear Ginger. I’m due to get my second Evusheld in two weeks. A friend...

https://connect.mayoclinic.org/comment/780461/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2022

Welcome to Connect, @cmillard. Thank you for sharing your experience with CLL and Imbruvica. It’s great...

https://connect.mayoclinic.org/comment/1080573/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2024

My one sister with the CLL diagnoses is extremely squeamish, and like many people, and she...

https://connect.mayoclinic.org/comment/1081918/

Discussion: Why doesn't a Mayo Wellness Checkup Include a Blood Test?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2024

Hi @bochos. We can sure get a mixed bag of unsolicited advice when we get diagnosed...

https://connect.mayoclinic.org/comment/1025676/

Discussion: CLL: How do you evaluate well-meaning tips from friends?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2024

Thank you very much for merging my discussion with @kegraves. I will definitely read all of...

https://connect.mayoclinic.org/comment/741929/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2022

Hello, Dharma - I can relate to your worry and am glad you found this site...

https://connect.mayoclinic.org/comment/1161168/

Discussion: Newly diagnosed CLL How to interpret FISH results?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2024

@lorimbt I am on no meds and my wbc is over norm. Last one was 44,000....

https://connect.mayoclinic.org/comment/927568/

Discussion: Haptoglobin RBC major issues

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2023

Hi @me81 and @living, the studies conducted were specific to early-stage chronic lymphocytic leukemia (CLL) and...

https://connect.mayoclinic.org/comment/335868/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2021

Well, I was diagnosed with CLL at 75. My white blood cells were trending up. From...

https://connect.mayoclinic.org/comment/1107459/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2024

In June I had Cyto and Fish both indicate CLL. Also had biopsies - on on...

https://connect.mayoclinic.org/comment/1100330/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

No real symptoms yet, more night sweats, and sweaty palms, and face flushing. I’m 70 so...

https://connect.mayoclinic.org/comment/847617/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023

I have cll.Ive been observed since 2019.My wbc is 82 now. I got 2nd opinion (...

https://connect.mayoclinic.org/comment/662165/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

Good morning, @joeeduffy, I promise you’re not alone here! This forum has been a lifeline to...

https://connect.mayoclinic.org/comment/1008772/

Discussion: I just discovered I have leukemia

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2024

Hi Carol, I can feel your anxiety growing…so I hope you don’t mind but I’m going...

https://connect.mayoclinic.org/comment/1098627/

Discussion: Anybody on Treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

@minnesotajim Do you happen to know which enzymes it elevates? I am an early diagnosed CLL...

https://connect.mayoclinic.org/comment/681790/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2022