Blood Cancers & Disorders Support Group

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Comments (916)

Do any of you people have CLL? I am also on the wait and see program....

https://connect.mayoclinic.org/comment/1347314/

Discussion: Symptoms of non Hodgkin's Lymphoma ?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2025

My husband has had MM for over 8 years and still is not on any medication....

https://connect.mayoclinic.org/comment/1002986/

Discussion: How to know whether smoldering myeloma or multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2024

Hello As of January 29 my hemoglobin and platelets are below the normal low, I went...

https://connect.mayoclinic.org/comment/165738/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Feb 9, 2018

@pammyd please tell me what prompted you to start therapy. My husband is still on W&W...

https://connect.mayoclinic.org/comment/1472401/

Discussion: CLL Treatment side effects are wearing me down: Anything I can do?

Support Group: Blood Cancers & Disorders

Posted: Jan 1 5:33pm

You also had this before your diagnosis and went about your business in your normal manner....

https://connect.mayoclinic.org/comment/1278937/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2025

Hello, cal1960. You can enter CLL in the search box at the top of this page...

https://connect.mayoclinic.org/comment/1269544/

Discussion: Up to date info

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2025

@zeedee1 I am curious if Z was ever considered. That's what I am on. In my...

https://connect.mayoclinic.org/comment/1245590/

Discussion: Waldenstroms: Can severe neck and shoulder pain be due to meds?

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2025

Is your NP your primary provider? I am a Family Nurse Practitioner and when I got...

https://connect.mayoclinic.org/comment/1176995/

Discussion: CLL Watch and Wait: Can supplements and diet help?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024

@bflattenor, thank you for starting a discussion on the rare diagnosis of B-PLL. While we wait...

https://connect.mayoclinic.org/comment/211042/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2018

I am so sorry you are facing CLL alone! I agree with Lori - wait for...

https://connect.mayoclinic.org/comment/1106865/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2024

I have CLL that was treated in 2016, 2017-2019. Hemaglobin rose to 15 million in 2020,...

https://connect.mayoclinic.org/comment/828716/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2023

During imbruvica treatment my white count peaked in the low 40 Ks, absolute lymphocyte count 30...

https://connect.mayoclinic.org/comment/165756/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2018

Hi @ppolockaz, in Dec'23 it was discovered that I had a high WBC (50), which started...

https://connect.mayoclinic.org/comment/1548469/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

Sorry I am just getting back to you. To answer some of your questions: CLL is...

https://connect.mayoclinic.org/comment/1269881/

Discussion: Dr wants to add immunoglobulins

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2025

I am a Canadian[ Calgary] and have been diagnosed with CLL.Will have more tests and will...

https://connect.mayoclinic.org/comment/1080307/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2024

Hi @aleeab, Welcome to Mayo Connect. This is a perfect support group discussion for you to...

https://connect.mayoclinic.org/comment/843061/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2023

I am one of those people who has had CLL for almost 28 years. In the...

https://connect.mayoclinic.org/comment/1021015/

Discussion: CLL: How do you evaluate well-meaning tips from friends?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2024

I was also diagnosed with CLL during a routine physical when my WBC was elevated, I...

https://connect.mayoclinic.org/comment/1319266/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2025

Hi @fortunateoldman, you have quite a jaded view of the medical system. The doctors that I...

https://connect.mayoclinic.org/comment/1081834/

Discussion: Why doesn't a Mayo Wellness Checkup Include a Blood Test?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2024

Recently diagnosed with CLL and in the “wait and Watch” period 61 years old and not...

https://connect.mayoclinic.org/comment/945614/

Discussion: Diagnosed with chronic lymphocytic leukemia: What can I do?

Support Group: Blood Cancers & Disorders

Posted: Oct 10, 2023