Blood Cancers & Disorders Support Group

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Comments (896)

Recently diagnosed with CLL and in the “wait and Watch” period 61 years old and not...

https://connect.mayoclinic.org/comment/945614/

Discussion: Diagnosed with chronic lymphocytic leukemia: What can I do?

Support Group: Blood Cancers & Disorders

Posted: Oct 10, 2023

I was also diagnosed with CLL during a routine physical when my WBC was elevated, I...

https://connect.mayoclinic.org/comment/1319266/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2025

Hi @fortunateoldman, you have quite a jaded view of the medical system. The doctors that I...

https://connect.mayoclinic.org/comment/1081834/

Discussion: Why doesn't a Mayo Wellness Checkup Include a Blood Test?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2024

Just received the results from my recent blood work and am breathing a huge sigh of...

https://connect.mayoclinic.org/comment/1017337/

Discussion: CLL: Has anyone experienced symptoms at Stage 0?

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2024

I too was diagnosed with CLL and the EBV had reactivated according to my Infectious Disease...

https://connect.mayoclinic.org/comment/647411/

Discussion: Dual Diagnosis of CLL and Acute Epstein Barr Virus

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2021

Hi I have been diagnosed with CLL now since 2020 and get severe itchy skin and...

https://connect.mayoclinic.org/comment/865646/

Discussion: MGUS & Rash

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

How is your husband doing? Is Rich in T-Cell Rich B-Cell non-Hodgkin Lymphoma so called Richter's...

https://connect.mayoclinic.org/comment/752053/

Discussion: Did anyone undergo Car-T therapy for B cell lymphoma?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 20, 2022

I think how one handles this may be influenced by the type of cancer one has....

https://connect.mayoclinic.org/comment/1246474/

Discussion: Do you Tell Family, Friends & Co Workers about your Cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2025

I have had CLL/SLL for many years and have not had much treatment, but have found...

https://connect.mayoclinic.org/comment/908921/

Discussion: Had CLL for about 2 years, Dr is now thinking of treatment

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2023

My oncologist is concerned because of me being anemic. He says my iron level is good...

https://connect.mayoclinic.org/comment/824731/

Discussion: Low Iron Levels and Weakness

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2023

Hello @siagolfer! I am happy to hear you are doing well with the medication. I was...

https://connect.mayoclinic.org/comment/1309824/

Discussion: Treatment for CLL: Any experiences with Brukinsa (zanobrutinib)?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2025

My first oncologist told me that CLL would probably not take my life and that I...

https://connect.mayoclinic.org/comment/1294132/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 1, 2025

Yes, I certainly had many of the common CLL/SLL signs and symptoms. Intense fatigue and tiredness,...

https://connect.mayoclinic.org/comment/1056602/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2024

Adequate sleep is needed for your bone marrow make to make efficient blood cells. Sleep is...

https://connect.mayoclinic.org/comment/1283115/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2025

My husband was diagnosed with CLL in 2023 and doctor still did not start treatment even...

https://connect.mayoclinic.org/comment/1453216/

Discussion: To continue or stop Venclexta treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2025

I am In exactly your position! Rituxan didn’t work. Started obutasamab this last week and will...

https://connect.mayoclinic.org/comment/844189/

Discussion: CLL complicated by autoimmune hemolytic anemia (AIHA)

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2023

Hi I am new to this and I just saw on some doctor's papers that I...

https://connect.mayoclinic.org/comment/1391319/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2025

One problem I had not anticipated is educating medical professionals about our watchful waiting approach. I...

https://connect.mayoclinic.org/comment/1283790/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 17, 2025

thanks for your thoughtful and helpful replies... as an 81 woman with many years of CLL,...

https://connect.mayoclinic.org/comment/1072034/

Discussion: Why are there no discussions about cancer of the blood?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2024

Hello @tlb, some how I missed your entry into our forum so I want to properly...

https://connect.mayoclinic.org/comment/913902/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2023