Blood Cancers & Disorders Support Group

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Comments (634)

@gmack, do you have a first name, more personal. I am NOT an expert in this...

https://connect.mayoclinic.org/comment/113594/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2017

Hi. I was diagnosed B-PLL at the end of 2017. I didn't find any discussion groups...

https://connect.mayoclinic.org/comment/211065/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2019

lancaster1963: A few suggestions: 1. Don’t be in a hurry to get treatment. Seek a second...

https://connect.mayoclinic.org/comment/1080851/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2024

Hello @lesliem7600. I would like to invite some other members who have talked about chronic leukemia...

https://connect.mayoclinic.org/comment/253403/

Discussion: Chronic leukemia. Terrified bc I can’t tolerate chemo

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2019

@nellieblue I have had cll for 71/2 years. In Nov 2014 I started in a clinical...

https://connect.mayoclinic.org/comment/101834/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 21, 2016

I've been on IVIG since 2010. Developed Pyoderma Gangrenosum in about 2015 as a result of...

https://connect.mayoclinic.org/comment/1094487/

Discussion: Anybody on Treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

Following a case series publication by Dr. Shanafelt, the National Cancer Institute sponsored clinical trials through...

https://connect.mayoclinic.org/comment/803555/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2023

Welcome to Connect, @answerseeker. You know you body better than anyone and when something feels ‘off’...

https://connect.mayoclinic.org/comment/900669/

Discussion: Test Results and Prone to CLL based on DNA test

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2023

@dougmann I'm an Australian male aged 69 and live in Queensland Australia. I was diagnosed with...

https://connect.mayoclinic.org/comment/113616/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2017

My husband has just been notified by his primary physician that he has CLL. This showed...

https://connect.mayoclinic.org/comment/739000/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2022

Hi Carl. I've been "fighting" CLL for about 5 years. Diagnosed when I'd had a constant...

https://connect.mayoclinic.org/comment/1159526/

Discussion: What are the best treatment for CLL? Is CAR T cell therapy an option?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2024

I too had CLL/SLL since 2013. Had Merkel cell in 2017, had surgery, chemo and radiation....

https://connect.mayoclinic.org/comment/895239/

Discussion: Richter's Syndrome: Is anyone else dealing with this disease?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

Hi Carl, those are sage words, “live my life”. It’s really the best choice for any...

https://connect.mayoclinic.org/comment/623245/

Discussion: What are the best treatment for CLL? Is CAR T cell therapy an option?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2021

Hello @oceantroll, welcome to Connect. I would like to invite @travelgirl to this discussion as she...

https://connect.mayoclinic.org/comment/238279/

Discussion: Dual Diagnosis of CLL and Acute Epstein Barr Virus

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2019

I think it depends largely on what his oncologist thinks. I have had CLL for 15...

https://connect.mayoclinic.org/comment/743133/

Discussion: Any suggestions on how to travel safely with CLL?

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2022

bharty, I have a similar situation. I was diagnosed with B-CLL about 15 years ago. B-lymphos...

https://connect.mayoclinic.org/comment/955946/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2023

Cindy I have not changed my diet but here is some info that might offer some...

https://connect.mayoclinic.org/comment/113603/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2017

Wow, I'm so glad to hear from you so soon with your latest news. Thank you!...

https://connect.mayoclinic.org/comment/1087197/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

Hello, I had my 2nd bone marrow extraction done on 8/5. I'm still experiencing crippling pain...

https://connect.mayoclinic.org/comment/1130867/

Discussion: Bone Marrow Aspiration - Long Term Pain Expecations

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2024

Hello, @rosamund Having Chronic Lymphocytic Leukemia (CLL) can weaken your immune system, especially if you’re in...

https://connect.mayoclinic.org/comment/806117/

Discussion: CLL patients needing other non related surgeries or procedures

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2023