Blood Cancers & Disorders Support Group

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Comments (771)

Hi I have suffered with itching now for a number of years caused by my CLL....

https://connect.mayoclinic.org/comment/906166/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2023

Could it have been caused by the anesthesia? I had half my thyroid removed. Before surgery...

https://connect.mayoclinic.org/comment/841939/

Discussion: Low blood counts and low oxygen after a medical procedure: Why?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2023

Hello @katerose, thank you for sharing your diagnosis of CLL. Although the following conversation is about...

https://connect.mayoclinic.org/comment/165753/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2018

I was diagnosed on Monday with CLL. It is Stage 0 and detected during blood test...

https://connect.mayoclinic.org/comment/1283260/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 16 11:09am

Good morning. Well maybe a coincidence but both of my grandfathers had leukemia and died from...

https://connect.mayoclinic.org/comment/1323510/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 9 9:20am

There must be 2 different units for these analytes. My recent values are below and no...

https://connect.mayoclinic.org/comment/1062415/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

I 67 years old and live in Canada. I was diagnosed with CLL in December 2021,...

https://connect.mayoclinic.org/comment/1095599/

Discussion: Anybody on Treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2024

Yes I have had three “provoked” DVTs in my lower legs, so nothing too scary. My...

https://connect.mayoclinic.org/comment/913960/

Discussion: Factor ll prothrombin mutation

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2023

It is unsettling to have a ‘watchful waiting’ situation, isn’t it? Feels like a ticking time-bomb...

https://connect.mayoclinic.org/comment/848459/

Discussion: CLL with lambda monoclonal gammopathy

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

Hi @jerrysgirl3. EEGs and their results are way out of my area of experience. I think...

https://connect.mayoclinic.org/comment/927681/

Discussion: Haptoglobin RBC major issues

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2023

I have a different feeling about wanting to know what caused me to get cll. Often...

https://connect.mayoclinic.org/comment/846264/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2023

Welcome to Connect, @gabadoo24. I also had to look up NXG as I’m not familiar with...

https://connect.mayoclinic.org/comment/991300/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2024

@elissams143 I had a right lymph node biopsy in jan/23 giving me the CLL/SLL diagnosis; im...

https://connect.mayoclinic.org/comment/847596/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023

I had a fast moving version of CLL. I was told I would die if I...

https://connect.mayoclinic.org/comment/113628/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2018

Welcome, @ksandusky86. I’m just blown away with the callousness of your oncologist with regards to your...

https://connect.mayoclinic.org/comment/1294093/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 1 9:07am

Hi everyone, it has been 2 days short of a year since I found this group....

https://connect.mayoclinic.org/comment/1106316/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2024

I can appreciate your comment on "not comfortable, but tolerable" and wanted to add that it...

https://connect.mayoclinic.org/comment/654578/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2021

Hi @aleeab! I just spoke to another member this morning who has a different blood condition...

https://connect.mayoclinic.org/comment/864146/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2023

Good morning, @jerrysgirl3. Let’s get you in contact with Mayo. Here’s a link to get you...

https://connect.mayoclinic.org/comment/925030/

Discussion: Haptoglobin RBC major issues

Support Group: Blood Cancers & Disorders

Posted: Sep 6, 2023

Hi @lynnstefanik89 While you’re waiting for replies from members who may have both CLL and MZL,...

https://connect.mayoclinic.org/comment/1192826/

Discussion: Marginal zone lymphoma & chronic lymphocytic leukemia, anyone?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2024