Blood Cancers & Disorders Support Group

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Comments (896)

It’s wonderful to see you feel you’re getting great information here. 🙃 That’s the goal of...

https://connect.mayoclinic.org/comment/798418/

Discussion: Lymphoma or Not? Watch and wait?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2023

@elainejarrett i hear you loud and clear; i was diagnosed in CLL and SLL 3 weeks...

https://connect.mayoclinic.org/comment/820348/

Discussion: Diagnosis of low grade lymphoma leukemia

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2023

First learned of my CLL (level o) diagnosis nearly 9 years ago and now at 72...

https://connect.mayoclinic.org/comment/771096/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2022

B-PLL is too 'heterogenous' and they probably just gave up on it as being a separate...

https://connect.mayoclinic.org/comment/757045/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2022

A friend of mine has CLL and has had it for a few years. He is...

https://connect.mayoclinic.org/comment/1201704/

Discussion: Chronic lymphocytic leukemia (CLL)

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2025

I have just got the diagnosis CLL/SLL and i have no symptoms other than swollen lymph...

https://connect.mayoclinic.org/comment/816524/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2023

Recently diagnosed with CLL and I’m suffering with a good deal of “ pain in my...

https://connect.mayoclinic.org/comment/741303/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2022

I'm currently 25 days into a cold (head and upper chest). Two weeks ago, during routine...

https://connect.mayoclinic.org/comment/1173543/

Discussion: Anyone have a low IgM and struggling with a cold virus

Support Group: Blood Cancers & Disorders

Posted: Nov 14, 2024

Hi @tatayababa, One of the side effects for CLL may be some dizziness in a roundabout...

https://connect.mayoclinic.org/comment/819235/

Discussion: Diagnosis of low grade lymphoma leukemia

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2023

My blood's been clear of CLL markers for 15 years and I don't remember the brand...

https://connect.mayoclinic.org/comment/1327191/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2025

I am not sure anyone would monitor for CLL since it's in research phase. I feel...

https://connect.mayoclinic.org/comment/1176977/

Discussion: CLL Watch and Wait: Can supplements and diet help?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024

@valeriewiegand I do not have CLL, but am dealing with multiple myeloma. Here is an article...

https://connect.mayoclinic.org/comment/777749/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2022

Hydroxyurea was the medication that @vickieannb57 was referring to that changed her sense of taste. Others...

https://connect.mayoclinic.org/comment/1473707/

Discussion: Does anyone have change in taste while on hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Jan 3 1:55pm

@5gk I feel the same ; always thinking i have done the right thing over my...

https://connect.mayoclinic.org/comment/847190/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023

@jmds66 , I was diagnosed with CLL zydeco 2020 with swollen lymph nodes and doctor put...

https://connect.mayoclinic.org/comment/842666/

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023

So glad your husband is doing well.. we were told that CLL common in older adults,...

https://connect.mayoclinic.org/comment/742344/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2022

I was just diagnosed on Tuesday, 4 days ago. The big "C" has always been a...

https://connect.mayoclinic.org/comment/1279534/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2025

It’s good you have an oncology appt soon, for you peace of mind if for nothing...

https://connect.mayoclinic.org/comment/1263387/

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2025

I was diagnosed with CLL in February 2020...further tests led to B-PLL diagnosis. On wait and...

https://connect.mayoclinic.org/comment/605063/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: May 27, 2021

Hello @tinagibson. Welcome to Mayo Clinic Connect. Waiting is the worst, isn’t it? Today is Sept...

https://connect.mayoclinic.org/comment/632931/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2021