Blood Cancers & Disorders Support Group

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Comments (771)

Still alive!!! Happy New Year Colleen! I'm still on Venclexta and still wondering if it is...

https://connect.mayoclinic.org/comment/671166/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Jan 15, 2022

Yes, unfortunately, CLL is tough to permanently beat. I also recently learned that there are 200...

https://connect.mayoclinic.org/comment/1014590/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2024

Good morning, @gardeningjunkie You definitely have a garden fairy on your shoulder and must be over-the-moon...

https://connect.mayoclinic.org/comment/944020/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2023

Hi benkeane, I was diagnosed with CLL in 2017. I’m at stage 0 and doing wait...

https://connect.mayoclinic.org/comment/967158/

Discussion: CLL diagnosis now having soft tissue pain

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2023

Hi Ron, it’s really great to hear from you again! I know the first time you...

https://connect.mayoclinic.org/comment/622983/

Discussion: What are the best treatment for CLL? Is CAR T cell therapy an option?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2021

Thank you for this reply, @nana120, https://connect.mayoclinic.org/comment/1294132/ I think it’s exactly the type of positive and...

https://connect.mayoclinic.org/comment/1294311/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 1 12:28pm

I was diagnosed with CLL when I was 68 and was kept under surveillance until last...

https://connect.mayoclinic.org/comment/113623/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2018

I have had CLL since 1996 and rules may have changed, but my first hematologist did...

https://connect.mayoclinic.org/comment/1127333/

Discussion: CLL and immunization experience

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2024

I am having blood work this week in preparation for my visit with my oncologist next...

https://connect.mayoclinic.org/comment/864408/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: May 22, 2023

Hi @learnknowgrow. I love your @name…I agree, knowledge is power. There is comfort in being prepared...

https://connect.mayoclinic.org/comment/1161207/

Discussion: Newly diagnosed CLL How to interpret FISH results?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2024

I just read her survival story and want to thank her for sharing. Readers can tell...

https://connect.mayoclinic.org/comment/946579/

Discussion: Diagnosed with chronic lymphocytic leukemia: What can I do?

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2023

hi-i,too,have CLL-have had it for 7 years with no treatment-i am 69 and have been taking...

https://connect.mayoclinic.org/comment/789939/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2022

I too have CLL. Yoga helps also if you can walk even 10 minutes. Keep moving....

https://connect.mayoclinic.org/comment/667618/

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2022

Thanks so much for the update, @nellieblue. It always helps to hear from people who have...

https://connect.mayoclinic.org/comment/113624/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2018

Welcome @dmiles. I moved your post to the Blood Cancers & Disorders Support Group here https://connect.mayoclinic.org/group/blood-cancers-disorders/...

https://connect.mayoclinic.org/comment/799989/

Discussion: Newly Diagnosed CLL Patients: Do you struggle with symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023

Three of my former coworkers, all male, have/had multiple myeloma while I, a female, have cll....

https://connect.mayoclinic.org/comment/846281/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2023

Thank you for encouragement regarding traveling. We did cancel our Vegas trip, but hope to plan...

https://connect.mayoclinic.org/comment/744604/

Discussion: Any suggestions on how to travel safely with CLL?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2022

Surry I was so long getting back. My 2week blood infusion ran into 3,and it was...

https://connect.mayoclinic.org/comment/211089/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2019

My wife has been getting Procrit injections since Sept 2013, twice switch to Aranesp briefly, but...

https://connect.mayoclinic.org/comment/235269/

Discussion: MDS and Neupogen

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2019

Hi Marynoelle, I have also recently been diagnosed with CLL and have been having the upper...

https://connect.mayoclinic.org/comment/993671/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2024