Blood Cancers & Disorders Support Group

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Comments (867)

Hello and thank you for your response and the link to the Mayo Clinic publication. You...

https://connect.mayoclinic.org/comment/1372063/

Discussion: What are my chances that MGUS turns into multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2025

I am a 31 year stage 3 multiple myeloma survivor, 11 years ago I was diagnosed...

https://connect.mayoclinic.org/comment/816656/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2023

@raye Welcome to Mayo Clinic Connect. I also have IgM Kappa that morphed into active multiple...

https://connect.mayoclinic.org/comment/706812/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: May 9, 2022

@tml I echo what @loribmt and @rosemarya have already said to you. I get labwork every...

https://connect.mayoclinic.org/comment/692673/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 24, 2022

@norseman44 What kind of side effects are you experiencing, and how much are you taking? I...

https://connect.mayoclinic.org/comment/1004954/

Discussion: Dexamethasone, anyone prescribed this drug for itchiness?

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2024

Definitely see a hematologist/oncologist re MGUS. Local primary may not take it as seriously, and it...

https://connect.mayoclinic.org/comment/1201149/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2024

Hi @angk and welcome to Mayo Clinic Connect! As you wander through the discussions here, you...

https://connect.mayoclinic.org/comment/959088/

Discussion: MGUS and understanding results

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2023

Hello new members @steffiney and @milo3986 Lori is very experienced and has a depth of information...

https://connect.mayoclinic.org/comment/890559/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

@bcamilla74 That's a lot to have happen in a short time, isn't it? I am a...

https://connect.mayoclinic.org/comment/1369023/

Discussion: A Summary of My Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2025

@zeedee1 It is a known fact that dexamethasone may "speed up" cataract formation. I am now...

https://connect.mayoclinic.org/comment/1335596/

Discussion: Cataract surgery possible?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2025

Colleen In mid 2020 I questioned my primary physician about why I had bubbles in my...

https://connect.mayoclinic.org/comment/654536/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2021

My sister had Multiple Myeloma. She was fortunate to have a Urologist who said, "Something is...

https://connect.mayoclinic.org/comment/952305/

Discussion: Don't know what to think and feeling uncertain at this point

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2023

I have always said to go where they "see the most, know the most and do...

https://connect.mayoclinic.org/comment/74584/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2018

Hello @beckyoutlaw115, You pose a great question about combining two meds to bring down your light...

https://connect.mayoclinic.org/comment/167850/

Discussion: Amyloidosis and multiple mylenoma

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2017

@omemee Please wait until the MRI is done. Images can be misleading. For now, don't do...

https://connect.mayoclinic.org/comment/720646/

Discussion: Multiple myeloma lytic lesions pelvic area. What treatments?

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2022

@red7 I went from MGUS to smoldering myeloma, and then on to active multiple myeloma. I...

https://connect.mayoclinic.org/comment/654861/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2021

Thank you so much for your reply. I'm sorry to hear that you've been through so...

https://connect.mayoclinic.org/comment/958139/

Discussion: Does anyone have any info on MGUS treatment or risk of progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2023

My dad took Revlimid a number of years ago and had a bad reaction. So he...

https://connect.mayoclinic.org/comment/290385/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Mar 15, 2021

Look up this lady - she was written up in the medical journal few years ago...

https://connect.mayoclinic.org/comment/1361061/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2025

@anng53 Welcome to Mayo Clinic Connect, Ann! You're right that peripheral neuropathy can indeed be related...

https://connect.mayoclinic.org/comment/770262/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2022