Blood Cancers & Disorders Support Group

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Comments (910)

@jrenjr https://www.fda.gov/drugs/frequently-asked-questions-popular-topics/generic-drugs-questions-answers#:~:text=Generic%20medicines%20and%20brand%2Dname,generic%20medicine%2C%20may%20be%20different. I have taken both brand name Revlimid and generic lenalidomide, as have several others...

https://connect.mayoclinic.org/comment/1445024/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2025

@nbadry Nicole, I am taking Revlimid for multiple myeloma. I have been on it since August...

https://connect.mayoclinic.org/comment/1160656/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2024

I am a three year survivor of Multiple Myeloma. I receive injections of Velcade every 2...

https://connect.mayoclinic.org/comment/109627/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Aug 25, 2016

@rustypenny If you have the opportunity to be seen at a Center that specializes in Multiple...

https://connect.mayoclinic.org/comment/1532526/

Discussion: Smoldering Multiple Myeloma (SMM). Questions and Answers

Support Group: Blood Cancers & Disorders

Posted: Mar 22 7:10am

@rhondalee89 Hello, Rhonda, welcome to Connect. It’s a lot to absorb, getting a diagnosis such as...

https://connect.mayoclinic.org/comment/1016846/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2024

Happy to hear you are doing well. My husband was diagnosed with Cardiac Amyloidosis this past...

https://connect.mayoclinic.org/comment/898862/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

@henriques I will be 70 this year. I was diagnosed with MGUS November 2017, smoldering myeloma...

https://connect.mayoclinic.org/comment/811612/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2023

@tominga I’m so glad that you posted. Welcome to Mayo Clinic’s Connect. I believe that MGUS...

https://connect.mayoclinic.org/comment/1442519/

Discussion: Smoldering Myeloma: Coping with the emotional toll and acceptance

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2025

@mgm4kc, I'm tagging a few other members like @cemeterygal01 @mkempson42 @naiviv @tlcox49, who also have experience...

https://connect.mayoclinic.org/comment/1107770/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2024

@suppiskey2surv I absolutely agree with a previous comment re bone marrow. You should get a baseline...

https://connect.mayoclinic.org/comment/1422724/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2025

@dtrgran59 Greetings and welcome to Mayo clinic connect. I’m glad you found us. So you’ve been...

https://connect.mayoclinic.org/comment/1364470/

Discussion: blood disorder

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2025

It is hard getting a diagnosis of MGUS. It would be good to get more information...

https://connect.mayoclinic.org/comment/1189644/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2024

@bobweller There is so much information on the web that a deep dive is certainly a...

https://connect.mayoclinic.org/comment/1087218/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

I was diagnosed with MGUS in 2020 and light chain multiple myeloma in September 2025. I...

https://connect.mayoclinic.org/comment/1446497/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2025

I’m sorry I don’t know where to go to ask questions, find help, or anything really....

https://connect.mayoclinic.org/comment/1407924/

Discussion: A Summary of My Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2025

MGUS is considered asymptomatic and is not a cancerous condition, which is why the "US" stands...

https://connect.mayoclinic.org/comment/1191413/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2024

Hi There colleen: Thanks for asking, my husband is now in his eleventh year of survival....

https://connect.mayoclinic.org/comment/109678/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2017

Deborah, my relationship with both are vicarious with my late husband and good friend…Mayo and MD...

https://connect.mayoclinic.org/comment/815997/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023

@kappaking good morning. I’m so sorry you got all this information on vacation! I’m glad you...

https://connect.mayoclinic.org/comment/1030335/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2024

Hi @angk and welcome to Mayo Clinic Connect! As you wander through the discussions here, you...

https://connect.mayoclinic.org/comment/959088/

Discussion: MGUS and understanding results

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2023