Blood Cancers & Disorders Support Group

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Comments (550)

I transitioned from hydroxyurea to Besremi in February because hydroxyurea was not keeping my white cell...

https://connect.mayoclinic.org/comment/1431277/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2025

Hello @akeytoo, I don’t think anyone is fond of chemo treatments but they can be absolutely...

https://connect.mayoclinic.org/comment/911908/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023

Hi @lorieliebrock. Welcome to Connect. You came to the right place to be embraced by other...

https://connect.mayoclinic.org/comment/1518186/

Discussion: Anyone go through duv/romi treatment before an allogenic BMT?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 2 8:51pm

Hi @1pearl, There are a number of different blood conditions and cancers with subsets to each....

https://connect.mayoclinic.org/comment/1348374/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2025

Your health picture sounds exactly like mine. I’m below normal for hemoglobin and red cells. Platelets...

https://connect.mayoclinic.org/comment/1297988/

Discussion: Anyone with primary myelofibrosis, low risk, asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2025

Hi jello13577, I really like your approach. I have CALR and not JAK2, but I do...

https://connect.mayoclinic.org/comment/1294207/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: May 1, 2025

Hi @hollz784 Oh golly, you have a lot going on right now and it’s understandable to...

https://connect.mayoclinic.org/comment/1442132/

Discussion: Jak2 mutations w/high WBC

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2025

Which Mayo Clinic location are you going to? The top doctors at Mayo for this rare...

https://connect.mayoclinic.org/comment/1314708/

Discussion: Primary Myelofibrosis: What is life going to be like now?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2025

My hematologist submitted blood at a lab for 5 genetic tests after I suffered my 2nd...

https://connect.mayoclinic.org/comment/194258/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2018

Hi @cindyem I just read another comment you posted about having PV and anemia. From information...

https://connect.mayoclinic.org/comment/884148/

Discussion: Does anyone have information on PV with a low hemoglobin/ red count

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2023

hello. I was diagnosed with ET over 25 years ago, while young and in the Service...

https://connect.mayoclinic.org/comment/890155/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

I was diagnosed with ET when I was 50. My platelet level was successfully controlled with...

https://connect.mayoclinic.org/comment/1327870/

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2025

Hi @nyjean. Hopefully I can answer your question about PV and ET. Those two conditions, along...

https://connect.mayoclinic.org/comment/1066510/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2024

Hi @lyno29, You posted: “I’m choosing not to do chemo, even though my doctor recommends it....

https://connect.mayoclinic.org/comment/1230545/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2025

@nohrt4me: I was diagnosed with ET when I was 50 with JAK2. My platelet level was...

https://connect.mayoclinic.org/comment/1329234/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2025

@joaniech2004 Some patients with a myeloproliferative neoplasm (MPN), such as ET, may not see much of...

https://connect.mayoclinic.org/comment/1489812/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 24 9:58am

Hi, @lmkmom. I know it’s alarming when blast cell numbers escalate. From what you’re saying with...

https://connect.mayoclinic.org/comment/1426156/

Discussion: When to start worrying about blast percentage changes?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2025

Hi Dawn. Welcome to Connect. You’ve popped into a great conversation with those of us who...

https://connect.mayoclinic.org/comment/1356747/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 26, 2025

Welcome to Connect, @lostmonk. High/borderline hemoglobin and hematocrit sometimes can be attributed to asleep apnea or...

https://connect.mayoclinic.org/comment/935997/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2023

Hi @1pearl, I’m putting together pieces of your ET puzzle. When we first spoke the other...

https://connect.mayoclinic.org/comment/1231285/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2025

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