Blood Cancers & Disorders Support Group

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Comments (2,268)

@dragonflylynda I do not take HU for my ET JAK2...I only take a baby aspirin. No...

https://connect.mayoclinic.org/comment/1466046/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2025

So sorry for your problems. I wish you all the best. Sorry I didn't see, do...

https://connect.mayoclinic.org/comment/1421263/

Discussion: Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation

Support Group: Gynecologic Cancers

Posted: Oct 22, 2025

@kapow I'm really glad they're keeping a close eye on you . . . very sorry...

https://connect.mayoclinic.org/comment/1539741/

Discussion: Essential Thrombocytosis General Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 31 2:26pm

Hello. I'm 62 and was diagnosed a month ago with Jak2 and ET. Had my bone...

https://connect.mayoclinic.org/comment/774273/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2022

I had bone pain in big toes 3 years before being diagnosed with ET Jak2. I've...

https://connect.mayoclinic.org/comment/1391430/

Discussion: Is foot/toe pain a symptom of increasing platelets in ET?

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2025

I have recently been diagnosed with ET. I am currently at 601,000, but my platelets have...

https://connect.mayoclinic.org/comment/1281878/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2025

Welcome new members @mocat47 and @juelie @mocat47, I can understand the reluctance to taking a cytoxic...

https://connect.mayoclinic.org/comment/1196596/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2024

Thank you for alerting me to the fact that strengthing exercises are essential. My brother also...

https://connect.mayoclinic.org/comment/1011201/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2024

I was just diagnosed with ET. Platelet count 1 million. Test results still coming in. I...

https://connect.mayoclinic.org/comment/940355/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2023

I think in the United States some insurance companies make you do step therapy…hydroxyurea first before...

https://connect.mayoclinic.org/comment/790422/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2022

One of the first things my oncologist said was that no change in diet, no addition...

https://connect.mayoclinic.org/comment/981969/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2023

Hello cowestwinds......I have been on Hydrea for 4 years for ET. My side effects were a...

https://connect.mayoclinic.org/comment/763853/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2022

ET-CALRs have fewer clots but more likelihood of progressing to MF. I am in my 17th...

https://connect.mayoclinic.org/comment/1313180/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 26, 2025

@nohrt4me I’ve been on Hu 500 for a year. I’ve had some vision problems such has...

https://connect.mayoclinic.org/comment/1557084/

Discussion: Essential Thrombocythemia JAK2 symptoms of dizziness/vision distortion

Support Group: Blood Cancers & Disorders

Posted: 4 days ago

I found MPN Voice on healthunlocked.com. I was diagnosed with ET JAK2 in June 2022 so...

https://connect.mayoclinic.org/comment/770040/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2022

I've had ET with Jak2 since 2020 and on HU with baby aspirin, I've recently found...

https://connect.mayoclinic.org/comment/1414548/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2025

I have seen Dr Jeanne Palmer MD there. She is a specialist in ET. She is...

https://connect.mayoclinic.org/comment/1314660/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: May 28, 2025

For a year now been on 1000 mg daily for ET. Platelets were 900 - 1200....

https://connect.mayoclinic.org/comment/866879/

Discussion: Does Hydroxyurea affect kidney function?

Support Group: Blood Cancers & Disorders

Posted: May 26, 2023

@nancyra Thanks for the feedback. I also don’t like using the term cancer for ET. It’s...

https://connect.mayoclinic.org/comment/1429685/

Discussion: Hydroxyurea vs Agrilyn: Anyone switched from HU to Agrilyn?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2025

I was under the impression that ET was not hereditary. I hope your dad was well...

https://connect.mayoclinic.org/comment/1228196/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2025