Blood Cancers & Disorders Support Group

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Comments (634)

Hello @grecarmar I do not have CLL I have splenic marginal zone small B cell Lymphoma....

https://connect.mayoclinic.org/comment/273084/

Discussion: CLL and Managing an Enlarged Spleen

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2019

Hi, it's January 18, 2018. Are you still alive, Dougmann? I hope so! If so, how...

https://connect.mayoclinic.org/comment/165737/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2018

I have been taking imbruvica since August 2020. Started out with 480 mg once a day...

https://connect.mayoclinic.org/comment/1090658/

Discussion: Is anyone taking Ibrutinib (Imbruvica)?

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2024

Yes the diagnosis of CLL really caught me off guard. I show no symptoms other than...

https://connect.mayoclinic.org/comment/798370/

Discussion: Lymphoma or Not? Watch and wait?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2023

Good morning. Brand new to this forum. Was diagnosed with CLL a year and a half...

https://connect.mayoclinic.org/comment/769624/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2022

Hi @sofaramnotdead, CAR-T cell therapy is one of the most promising areas of cancer treatment, especially...

https://connect.mayoclinic.org/comment/622500/

Discussion: What are the best treatment for CLL? Is CAR T cell therapy an option?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2021

All I can say is that I was never treated for CLL, My CLL turned into...

https://connect.mayoclinic.org/comment/101825/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 7, 2016

@elissams143 and @linepa2002 Since CLL is very slow to develop. In all likelihood, it had been...

https://connect.mayoclinic.org/comment/848483/

Discussion: CLL with lambda monoclonal gammopathy

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

Howdy folks. I would not wait for anything when it comes to diagnosing an illness. Especially...

https://connect.mayoclinic.org/comment/238073/

Discussion: CLL - Referral to CLL Specialist

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2019

Welcome to our CLL/CML group on Connect, @jzier. You can easily search for open clinical trials...

https://connect.mayoclinic.org/comment/101836/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 22, 2016

@loribmt Hi, your response to @joeeduffy is so encouraging. I was recently diagnosed with CLL. It...

https://connect.mayoclinic.org/comment/1011750/

Discussion: CLL - Blood work Completed IGVA Mutation Analysis

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2024

Hi, @bobby2014. Since I am not a medical professional personally, I don't have access to patients...

https://connect.mayoclinic.org/comment/153889/

Discussion: Did anyone go through a stem cell transplant? Lymphoma

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 6, 2017

I was just diagnosed with CLL through a flow test ordered from my doctor after a...

https://connect.mayoclinic.org/comment/765441/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2022

Good to hear you all. I have been on wait and watch since diagnosis of CLL...

https://connect.mayoclinic.org/comment/205933/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2019

This sounds rather frustrating Cindy. I am tagging @vonbaron36, @gmack, @7626, @sofaramnotdead, @dougmann, and @gerryk, some...

https://connect.mayoclinic.org/comment/113609/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2017

I'm happy for those who report little or no pain- times have changed it seems. I'm...

https://connect.mayoclinic.org/comment/1152995/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2024

My husband was diagnosed 20 years ago when he had blood work done for a simple...

https://connect.mayoclinic.org/comment/790987/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2022

I don't know where the idea that Mayo "suggests 2 cups per day" of green tea...

https://connect.mayoclinic.org/comment/790783/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2022

Hi @kegraves, I'd like to add my welcome. I've moved your discussion to the Blood Cancers...

https://connect.mayoclinic.org/comment/714972/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2022

Greetings. Appreciate having this forum for comment and assistance. My initial CLL diagnosis was in 2014...

https://connect.mayoclinic.org/comment/848335/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023