Blood Cancers & Disorders Support Group

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Comments (486)

Actually he is feeling very good. This all started with an severe all over itch. We...

https://connect.mayoclinic.org/comment/641840/

Discussion: Adult Langerhans cell Histiocytosis and CMML

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2021

@claire39, thank you so much for your reply. I, too, have had some sort of dermatitis...

https://connect.mayoclinic.org/comment/337172/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2021

Finally someone that understands my plight. Yes, this disease is a nightmare and when I have...

https://connect.mayoclinic.org/comment/134330/

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: Aug 11, 2018

My husband has MDS and he would itch so bad he would leave his skin bruised....

https://connect.mayoclinic.org/comment/1040351/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Mar 26, 2024

Aloha MLMK, I too was quite freaked out when I read what HD addresses … CANCER?!!...

https://connect.mayoclinic.org/comment/1035185/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2024

Such a great topic information. I have only been on Hydroxyurea for 4 months and haven’t...

https://connect.mayoclinic.org/comment/1032699/

Discussion: Medical literature about hydroxyurea and skin cancer

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2024

I have polycythemia as well. I discovered that my terrible itch and hives lasting about 30-minutes...

https://connect.mayoclinic.org/comment/985516/

Discussion: Polycythemia: Does anyone have a problem with dryness?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2023

I treat my CLL related itch with an antihistamine called cetrine which works brilliantly. For some...

https://connect.mayoclinic.org/comment/960431/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2023

I've been on Jakafi since December 2022 and the only thing I experienced initially was an...

https://connect.mayoclinic.org/comment/908466/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2023

I walk about 2 miles a day, not all at once though because it hurts too...

https://connect.mayoclinic.org/comment/843128/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2023

I was first alerted in May 2022 that all red blood count were high. No one...

https://connect.mayoclinic.org/comment/825133/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2023

I itch on my left arm all the time it drives me crazy NO creams etc...

https://connect.mayoclinic.org/comment/820106/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2023

@loribmt Dr. Rashid noticed it when he sat down to talk to me before my botox...

https://connect.mayoclinic.org/comment/1458508/

Discussion: CALR exon 9 mutation w/translocation of chromosomes 10 &13

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2025

Well, hopefully a lower dosage when you hit your target platelet level will stop the itch!...

https://connect.mayoclinic.org/comment/1307142/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 18, 2025

Interested in this discussion. My skin mostly, arms and legs, also itch at night. I have...

https://connect.mayoclinic.org/comment/1191125/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2024

Hey @katgob! Can you believe it’s day 115 already?? When you’re at Day 0, anything past...

https://connect.mayoclinic.org/comment/1116881/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 3, 2024

MY LV started in Jan 2019 and I know many of you have been dealing with...

https://connect.mayoclinic.org/comment/52586/

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: May 31, 2019

Thank you Lori. I have been receiving IVIG, or Privigen infusions every 4-6 weeks since 2010....

https://connect.mayoclinic.org/comment/1076581/

Discussion: What is the prognosis of living with CLL beyond 20 years?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

I have been living with this condition now for over 10 years. It is progressively worse...

https://connect.mayoclinic.org/comment/1011986/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2024

Thank you. We have been to three dermatologist, oncologist, allergist, now heading to hematologist. No medications...

https://connect.mayoclinic.org/comment/993409/

Discussion: MGUS & Rash

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2024