Blood Cancers & Disorders: Discussions | Page 21

Hello, I was recently diagnosed with PV in January. Originally my PC saw my red cells...

https://connect.mayoclinic.org/comment/870205/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

I began taking hydroxyurea ( 2 x 500 mg) on Friday and am in day 4....

https://connect.mayoclinic.org/comment/597470/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Apr 26, 2021

Welcome to Connect, @clickpaw. There are diets posted online to potentially lower platelets by reducing inflammation...

https://connect.mayoclinic.org/comment/1215129/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 17 5:44pm

Hello Everyone, Met with Hematologist today. Expectedly so, based on Jak2 detection and blood counts level,...

https://connect.mayoclinic.org/comment/937118/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2023

I had a platelet count of 847,000 a d was told I had ET and was...

https://connect.mayoclinic.org/comment/252023/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2019

Good morning, @cweible19782006 Let’s get you Connected with some fellow members who also have Essential Thrombocythemia....

https://connect.mayoclinic.org/comment/820581/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

When I got second shingles shot, my platelet count plummeted, was of concern to Hemo, but...

https://connect.mayoclinic.org/comment/1131106/

Discussion: COVID infection is terrible

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2024

International Prognostic Score for ET Patient age less than 60 (0 points) Older than 60 (1...

https://connect.mayoclinic.org/comment/782535/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Hi nohrt4me, Thank you for posting. I totally agree with you that we have to work...

https://connect.mayoclinic.org/comment/1313253/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 26 10:59am

Thanks @katgob. The second link article does show a strong connection between anemia and cognitive decline....

https://connect.mayoclinic.org/comment/1202026/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Jan 1 8:16pm

I have PV secondary, Jak2 positive. I was on Hydroxyurea for about 8 months, but side...

https://connect.mayoclinic.org/comment/1195446/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2024

I have been on low dose HU since 2022 for ET JAK2. I am currently taking...

https://connect.mayoclinic.org/comment/1156193/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2024

Don't assume your will have side effects from Hydrea. My platelets were 600s for 10 years...

https://connect.mayoclinic.org/comment/846829/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2023

Hi I’m 62 male , was diagnosed 3 months ago with ET and JAK2 positive my...

https://connect.mayoclinic.org/comment/828785/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

Hi, Flynn. I too understand your hesitancy to take the Hydrea. I am 81. I have...

https://connect.mayoclinic.org/comment/773870/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2022

Hello @itsmepeggysue, welcome to Connect. It’s a mixed welcome because I’m happy you found us, though...

https://connect.mayoclinic.org/comment/840508/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

Thanks to everyone on this forum , I was diagnosed with two mutations middle last year,...

https://connect.mayoclinic.org/comment/1285436/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Apr 19 12:28pm

Hi Lori, thanks for all your amazing support and information. My family is finding the articles...

https://connect.mayoclinic.org/comment/875908/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2023

HI The only side affect I have had is tiredness, I avoid sitting in the sun...

https://connect.mayoclinic.org/comment/940309/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2023

They can tell from your red and white cells, platelets and hematocrit . The name of...

https://connect.mayoclinic.org/comment/986546/

Discussion: Polycythemia diagnosis

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2023

Blood Cancers & Disorders Support Group