Blood Cancers & Disorders Support Group

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Comments (916)

I treat my CLL related itch with an antihistamine called cetrine which works brilliantly. For some...

https://connect.mayoclinic.org/comment/960431/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2023

Hi @skycountry, welcome to Mayo Connect. I’m happy you found us. We have quite a few...

https://connect.mayoclinic.org/comment/798137/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2023

I just came on this thread, and just wanted to mention that I know of one...

https://connect.mayoclinic.org/comment/1327247/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2025

Since 7.8 is firmly in the normal range, my guess is that the question means what...

https://connect.mayoclinic.org/comment/1112936/

Discussion: I've had CML for 20 years and want to encourage others

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

@bosunpup, I'm not surprised that you're not finding much information about LMD or acalabrutinib. For patients...

https://connect.mayoclinic.org/comment/335647/

Discussion: Leptomeningeal Disease and CLL

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2021

Hi, @profrich, and welcome to Mayo Clinic Connect. You mentioned being in the same boat. Just...

https://connect.mayoclinic.org/comment/101850/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2018

A green tea extract has shown some promise in initial clinical trials for treating chronic lymphocytic...

https://connect.mayoclinic.org/comment/335863/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2021

I’m not having any treatments as I don’t have any symptoms of CLL. It was picked...

https://connect.mayoclinic.org/comment/998102/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2024

Hi, I’m Kandy. In April 2016 I was diagnosed with CLL, but since then it hasn’t...

https://connect.mayoclinic.org/comment/1405490/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2025

I have CLL as does my mom. CLL is a chronic illness that doesn't typically come...

https://connect.mayoclinic.org/comment/956807/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Oct 31, 2023

I didn’t have the burning sensation until after my diagnosis. My hematologist said it didn’t have...

https://connect.mayoclinic.org/comment/996587/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

I was diagnosed with CLL in about Jan 2023. Wait and watch. I go back in...

https://connect.mayoclinic.org/comment/842995/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2023

It may be useful to review the policies of various insurance companies to see what they...

https://connect.mayoclinic.org/comment/1294846/

Discussion: Can anyone advise about what insurance best covers immunotherapies?

Support Group: Blood Cancers & Disorders

Posted: May 2, 2025

I was diagnosed about 15 years ago. My Hemo/onco Doc initially confirmed CLL with B-lympho markers,...

https://connect.mayoclinic.org/comment/963301/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

Hi @marytheresacll, There’s quite a bit more information provided by a bone marrow biopsy and aspiration....

https://connect.mayoclinic.org/comment/947788/

Discussion: Possible upcoming lymphoma or leukemia diagnosis. What to expect?

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2023

Leave it to me to be the rarest case ever! I just knew with all these...

https://connect.mayoclinic.org/comment/908248/

Discussion: Had CLL since 1996 & Now NETs-Anyone Else?

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2023

hi，carl50！You've been monitoring your CLL for many years now, and it's still not requiring treatment. I'd...

https://connect.mayoclinic.org/comment/1087533/

Discussion: Metformin and its impact on SLL/CLL treatment?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

As I understand it, the SRSF2 mutation is worse than the SBF31 mutation as it relates...

https://connect.mayoclinic.org/comment/328556/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2020

I'm 80 years young, was diagnosed with CLL in 2004 and was under Dr P. Kaywin...

https://connect.mayoclinic.org/comment/113600/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2017

Hi @mcconachie Welcome to Connect. I’m sure your mind is racing with questions after having learned...

https://connect.mayoclinic.org/comment/1393714/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2025