Blood Cancers & Disorders Support Group

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Comments (634)

Thank you for encouragement regarding traveling. We did cancel our Vegas trip, but hope to plan...

https://connect.mayoclinic.org/comment/744604/

Discussion: Any suggestions on how to travel safely with CLL?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2022

I have had CLL since 1996 and rules may have changed, but my first hematologist did...

https://connect.mayoclinic.org/comment/1127333/

Discussion: CLL and immunization experience

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2024

I am having blood work this week in preparation for my visit with my oncologist next...

https://connect.mayoclinic.org/comment/864408/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: May 22, 2023

I just read her survival story and want to thank her for sharing. Readers can tell...

https://connect.mayoclinic.org/comment/946579/

Discussion: Diagnosed with chronic lymphocytic leukemia: What can I do?

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2023

hi-i,too,have CLL-have had it for 7 years with no treatment-i am 69 and have been taking...

https://connect.mayoclinic.org/comment/789939/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2022

I too have CLL. Yoga helps also if you can walk even 10 minutes. Keep moving....

https://connect.mayoclinic.org/comment/667618/

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2022

Thanks so much for the update, @nellieblue. It always helps to hear from people who have...

https://connect.mayoclinic.org/comment/113624/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2018

Three of my former coworkers, all male, have/had multiple myeloma while I, a female, have cll....

https://connect.mayoclinic.org/comment/846281/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2023

There must be 2 different units for these analytes. My recent values are below and no...

https://connect.mayoclinic.org/comment/1062415/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

I have a different feeling about wanting to know what caused me to get cll. Often...

https://connect.mayoclinic.org/comment/846264/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2023

Surry I was so long getting back. My 2week blood infusion ran into 3,and it was...

https://connect.mayoclinic.org/comment/211089/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2019

My wife has been getting Procrit injections since Sept 2013, twice switch to Aranesp briefly, but...

https://connect.mayoclinic.org/comment/235269/

Discussion: MDS and Neupogen

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2019

It is unsettling to have a ‘watchful waiting’ situation, isn’t it? Feels like a ticking time-bomb...

https://connect.mayoclinic.org/comment/848459/

Discussion: CLL with lambda monoclonal gammopathy

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

Hi Marynoelle, I have also recently been diagnosed with CLL and have been having the upper...

https://connect.mayoclinic.org/comment/993671/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2024

Hi I have suffered with itching now for a number of years caused by my CLL....

https://connect.mayoclinic.org/comment/906166/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2023

Could it have been caused by the anesthesia? I had half my thyroid removed. Before surgery...

https://connect.mayoclinic.org/comment/841939/

Discussion: Low blood counts and low oxygen after a medical procedure: Why?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2023

Hello @katerose, thank you for sharing your diagnosis of CLL. Although the following conversation is about...

https://connect.mayoclinic.org/comment/165753/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2018

Yes I have had three “provoked” DVTs in my lower legs, so nothing too scary. My...

https://connect.mayoclinic.org/comment/913960/

Discussion: Factor ll prothrombin mutation

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2023

I 67 years old and live in Canada. I was diagnosed with CLL in December 2021,...

https://connect.mayoclinic.org/comment/1095599/

Discussion: Anybody on Treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2024

Hi @jerrysgirl3. EEGs and their results are way out of my area of experience. I think...

https://connect.mayoclinic.org/comment/927681/

Discussion: Haptoglobin RBC major issues

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2023