Blood Cancers & Disorders Support Group | Page 20

@alive You are so kind with your suggestions! Thank you very much. I hope to be...

https://connect.mayoclinic.org/comment/1559203/

Discussion: Waiting for Donor confirmation, for BMT

Support Group: Blood Cancers & Disorders

Posted: Apr 25 10:41am

caitie, you didn't mention any medications. A large percentage of the population are deficient in magnesium....

https://connect.mayoclinic.org/comment/257515/

Discussion: ET - Essential Thrombocythemia & Fainting

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2020

Hello friends and @katgob and @loribmt How are you guys doing ??? Chilling buzzing making more...

https://connect.mayoclinic.org/comment/1393852/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 15, 2025

Hi All, I was officially diagnosed with Mycosis Fungoides several years ago, after several years with...

https://connect.mayoclinic.org/comment/943782/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

Kappa light chain IgM- MGUS Anyone else suffering from MGUS? Mine is slowly progressing and at...

https://connect.mayoclinic.org/comment/731433/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2022

@steiner Hello. I had not heard of your Primary Cutaneous Marginal Zone diagnosis, and does present...

https://connect.mayoclinic.org/comment/1501679/

Discussion: Does anyone have splenic marginal zone lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Feb 9 11:30am

Hi Everyone.....Wishing you all the warmest, family filled holidays. Since my platelet count has dropped back...

https://connect.mayoclinic.org/comment/978074/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2023

ME!! It’s the itching that drives me insane! I’ve tried, Sarna, it seems to help! I...

https://connect.mayoclinic.org/comment/823983/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2023

Good morning, @pinkflamingo. Your @name made me smile and think fondly of Florida this spring morning....

https://connect.mayoclinic.org/comment/836087/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

Yes, I certainly had many of the common CLL/SLL signs and symptoms. Intense fatigue and tiredness,...

https://connect.mayoclinic.org/comment/1056602/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2024

Hi, my Mom was diagnosed with Polycythemia Vera after her labs went crazy. They did not...

https://connect.mayoclinic.org/comment/718613/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2022

@jerrlin Diagnosed with PV 10 years ago. I am now 75 yrs old. Its been a...

https://connect.mayoclinic.org/comment/1521164/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Mar 6 3:51pm

Well, I’ve been taking it for about 5 years for PV. I’m 77. I’d love to...

https://connect.mayoclinic.org/comment/1289774/

Discussion: Started Hydroxyurea 5 weeks . How long does the fatigue last?

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2025

ET jacks up histamine production. I'm not sure researchers know why this is part of the...

https://connect.mayoclinic.org/comment/1259381/

Discussion: ET Jak2 mutation itching

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2025

Hello Donna, I've been waiting to see some results before I answered you. The third day...

https://connect.mayoclinic.org/comment/747426/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2022

@roughanne Hello. I was diagnosed with JAK2/PV almost 6 years ago. I’m 78 soon. Started on...

https://connect.mayoclinic.org/comment/1437600/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2025

Diagnosed with MF 3+/3 in January 2026. This after a frustrating 3 year journey of symptoms,...

https://connect.mayoclinic.org/comment/1537181/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 28 10:04am

Hi Justin, I have been thinking that maybe I should get another opinion at Mayo because...

https://connect.mayoclinic.org/comment/188873/

Discussion: Is Idiopathic Erythrocytosis (Polycythemia) cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2018

I have only taken hydroxyurea and Jakafi. I was in a clinical study for a while...

https://connect.mayoclinic.org/comment/1368004/

Discussion: I would deeply appreciate feedback on patients diagnosed with CMML

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2025

Hi. Your case sounds similar to mine. I was diagnosed 3 years ago. I take 500mg...

https://connect.mayoclinic.org/comment/1515821/

Discussion: What vitamins to avoid when taking Hydrea (hydroxyurea) for ET JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 27 11:36am