Blood Cancers & Disorders Support Group

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Comments (2,235)

I have MGUS, and just found out that I have osteopenia. I just upped my calcium...

https://connect.mayoclinic.org/comment/829639/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2023

I am nearly the same, mgus in 2013, pv in 2019. Still going strong with the...

https://connect.mayoclinic.org/comment/789230/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2022

Check all the posts for MGUS. Maybe someone has talked about it. I am sure more...

https://connect.mayoclinic.org/comment/1233327/

Discussion: Coffee and MGUS progression.

Support Group: Blood Cancers & Disorders

Posted: Feb 9, 2025

How were you diagnosed with MGUS without the BMB? I am new to this. I have...

https://connect.mayoclinic.org/comment/1333678/

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2025

Hello Raye, I am one of those fortunate humans who is not burdened by headaches at...

https://connect.mayoclinic.org/comment/923853/

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

I am sorry, MM is shorthand for the blood cancer, Multiple Myeloma. I too have neuropathy;...

https://connect.mayoclinic.org/comment/1062333/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

The rural area is concerning. Perhaps at least once or twice a year you can travel...

https://connect.mayoclinic.org/comment/1199671/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2024

Hello @deryl50 welcome to conversations about MGUS. Dr. Kyle told a group at a myeloma conference...

https://connect.mayoclinic.org/comment/639538/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2021

@erictd My understanding, through online research (I have a background in medical laboratory science/cytogenetics), is that...

https://connect.mayoclinic.org/comment/1442633/

Discussion: Smoldering Multiple Myeloma and symptoms

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2025

The M spike is at the detection limit. I have IgA Kappa MGUS, which might have...

https://connect.mayoclinic.org/comment/1112532/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

@tammy11 Welcome to Mayo Clinic Connect! Have you been diagnosed with MGUS? Any questions you have...

https://connect.mayoclinic.org/comment/742188/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2022

I had MGUS before Coid was even a "thing." I know many, many others have as...

https://connect.mayoclinic.org/comment/825057/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2023

Regarding your symptoms, it is good to see a doctor ASAP because those could be associated...

https://connect.mayoclinic.org/comment/1207507/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2025

I was diagnosed with MGUS 8 years ago (I'm 69) and my kappa and kappa/lambda have...

https://connect.mayoclinic.org/comment/1049365/

Discussion: How high should my Kappa light chain continue to rise before I worry.?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2024

I have had lambda light chain MGUS for 5 years. It has remained stable (fluctuating in...

https://connect.mayoclinic.org/comment/1004633/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2024

A hematologist/oncologist is the person to see.The community doctors have a fairly decent population of MGUS...

https://connect.mayoclinic.org/comment/1421804/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2025

Diet is mostly for general health; I haven't found anything definitive on diet influencing MGUS progression....

https://connect.mayoclinic.org/comment/1123355/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2024

I was diagnosed with MGUS, IgG Kappa, in 2004. My free light chains have continued to...

https://connect.mayoclinic.org/comment/959942/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2023

assuming you mean multiple myeloma, and not "multiple melanoma"? Melanoma is a skin cancer, myeloma is...

https://connect.mayoclinic.org/comment/1371398/

Discussion: What are my chances that MGUS turns into multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2025

Free Kappas can cause kidney damage. Has anyone with MGUS been treated to reduce free kappa...

https://connect.mayoclinic.org/comment/793779/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2023