Blood Cancers & Disorders Support Group

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Comments (2,268)

I was diagnosed with ET at 27. I had been having unusual, extensive bruising and severe...

https://connect.mayoclinic.org/comment/792682/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023

@amlqueen Only if a physician has ET does she or he know what it means. So...

https://connect.mayoclinic.org/comment/1490767/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 26 6:40am

I'm so sorry for what you're experiencing, Kelli. Fatigue and headaches are classic symptoms of MPNs...

https://connect.mayoclinic.org/comment/1522292/

Discussion: Elevated Platelet Count With Extreme Fatigue

Support Group: Blood Cancers & Disorders

Posted: Mar 8 9:03am

Hi Erikaerika… I have a question. We’re you diagnosed with TB….tuberculosis? Or were you diagnosed with...

https://connect.mayoclinic.org/comment/799578/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023

To gmacookie: My very amateur understanding is that when one of the three proteins that regulate...

https://connect.mayoclinic.org/comment/978724/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2023

MJPM- Many thanks for your epistle and distinct definitions. I have suffered from ET for about...

https://connect.mayoclinic.org/comment/328599/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2021

Mostly asymptotic from ET and with Internist now. I’m under care of Oncologist-Hemotoligist and have regular...

https://connect.mayoclinic.org/comment/257505/

Discussion: ET - Essential Thrombocythemia & Fainting

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2019

I was diagnosed with ET and Jak 2 I am taking hydrea . I doctor never...

https://connect.mayoclinic.org/comment/946214/

Discussion: ET and chemical pre-cautions?

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2023

The Hematologist isn't concerned, as my other bloodwork looks good. She also said that many people...

https://connect.mayoclinic.org/comment/895177/

Discussion: Any correlation between Essential Thrombocythemia & high B12?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

Who can clarify whether or not ET is, or is not a blood cancer? I am...

https://connect.mayoclinic.org/comment/893559/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

Just new diagnosis of ET and just starting hydroxurea so we’ll see what happens. Don’t go...

https://connect.mayoclinic.org/comment/850222/

Discussion: Concerned about medications for ET JAK2

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2023

Good for you staying so active!! I have ET. And you are do right....a God is...

https://connect.mayoclinic.org/comment/1437859/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2025

My dad, who also had ET, dealt with chronic thrush at the end of his life....

https://connect.mayoclinic.org/comment/1135457/

Discussion: Getting rid of oral thrush: What works?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2024

I have ET JAK2 and was diagnosed using genetic blood tests. My doctor told me that...

https://connect.mayoclinic.org/comment/1022801/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2024

Hi @loribmt That was a very good video. I think doctors have a hard time telling...

https://connect.mayoclinic.org/comment/1369265/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2025

I just wanted to add that I also take 5mg Apixaban (Eloquis) twice a day instead...

https://connect.mayoclinic.org/comment/1538965/

Discussion: Essential Thrombocytosis General Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30 4:03pm

Thank you, nohrt4me, for your very helpful comments, and for all you've done to facilitate the...

https://connect.mayoclinic.org/comment/989604/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2024

Many of us with ET experience "allergy" problems: dry skin, itching, dry eyes. It's believed that...

https://connect.mayoclinic.org/comment/1496050/

Discussion: MPN: How do you deal with out of control hives?

Support Group: Blood Cancers & Disorders

Posted: Feb 2 5:56am

Can someone please tell me the difference between PV & ET? Different symptoms? Can one turn...

https://connect.mayoclinic.org/comment/1066132/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2024

I'm 70, ET, CALR, no history of clots. Likely had it for 15 years. Doc is...

https://connect.mayoclinic.org/comment/1026527/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2024