Blood Cancers & Disorders Support Group

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Comments (914)

Barbara, I found another one like us on HeatlhUnlocked in the CLL forum. That forum has...

https://connect.mayoclinic.org/comment/211088/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2019

As a 78 year old woman, I would not want this type of information kept from...

https://connect.mayoclinic.org/comment/1178641/

Discussion: Chronic Phase CML in 72 years elderly

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2024

Hello! I am glad to have found this group. I have had elevated wbc, C-reactive protein...

https://connect.mayoclinic.org/comment/1513624/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Feb 24 12:09pm

You might be interested in this older discussion with members who have CLL and were curious...

https://connect.mayoclinic.org/comment/1176707/

Discussion: CLL Watch and Wait: Can supplements and diet help?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024

If you have MyChart or something similar, the results may be posted in about a week...

https://connect.mayoclinic.org/comment/948883/

Discussion: Possible upcoming lymphoma or leukemia diagnosis. What to expect?

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2023

I was diagnosed with CLL in December 2020 when my wbc was 65 and started using...

https://connect.mayoclinic.org/comment/801861/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2023

12 years ago I had very bad painful burning, sweating with nausea. I actually could not...

https://connect.mayoclinic.org/comment/996579/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

Hi I'm currently on watch and wait for CLL. I have cirrhosis from hep C ,which...

https://connect.mayoclinic.org/comment/1105913/

Discussion: Bruising with CLL

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2024

I am 75 and just diagnosed my doctor said if you have to have cancer CLL...

https://connect.mayoclinic.org/comment/1354400/

Discussion: Newly diagnosed with chronic lymphocytic leukemia (CLL)

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2025

I had a partial remission for less than 6 months following a couple rounds of rituxan...

https://connect.mayoclinic.org/comment/165755/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2018

I only had the typical injection site tenderness. To be fair, my cll is stage 0...

https://connect.mayoclinic.org/comment/1127247/

Discussion: CLL and immunization experience

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2024

@usernameca, if you are interested in learning what clinical trials are out there right now, you...

https://connect.mayoclinic.org/comment/165758/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2018

Welcome to Mayo Connect @janicegoe23 and @otto2023 Janice, I had to giggle a little with the...

https://connect.mayoclinic.org/comment/945829/

Discussion: Diagnosed with chronic lymphocytic leukemia: What can I do?

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2023

I’ve had SLL (same as CLL but predominantly in the lymph system vs. blood) for many...

https://connect.mayoclinic.org/comment/1056416/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2024

The information is very informative. I would like to connect with individuals or families dealing with...

https://connect.mayoclinic.org/comment/992764/

Discussion: What should doctor look for when testing my blood to be CMML donor?

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2024

Hi, I’m sorry to hear about your diagnosis. Do yo mean CLL? I also go to...

https://connect.mayoclinic.org/comment/751034/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2022

Hi @ewash55, I went to an annual physical in Dec23 and had a high WBC count(50k+)....

https://connect.mayoclinic.org/comment/1455066/

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2025

Ah, there’s nothing like holding your breath, for what seems like months, and finally being able...

https://connect.mayoclinic.org/comment/850505/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2023

After I had to get off of imbruvica (due to that type of drug not working...

https://connect.mayoclinic.org/comment/211177/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2020

I treat my CLL related itch with an antihistamine called cetrine which works brilliantly. For some...

https://connect.mayoclinic.org/comment/960431/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2023