Blood Cancers & Disorders Support Group

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Comments (634)

Hey ! I'm Afro American 49 and dx 2022 with CLL and dx 2024 with SLL...

https://connect.mayoclinic.org/comment/1033538/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2024

I got CLL about 12 years ago and have not had any problems so far. My...

https://connect.mayoclinic.org/comment/691811/

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2022

Hello @mattkl817. @jvertalka gives a valid suggestion as some of your symptoms are potential signs of...

https://connect.mayoclinic.org/comment/279512/

Discussion: Troubling illness for 3 months.

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2019

Hi Lori, My husband just looked up his platelet count on Aug 25th (his first visit...

https://connect.mayoclinic.org/comment/759908/

Discussion: Bruising with CLL

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2022

I would also like to add that my misunderstanding that NK-cell leukemia is related to CLL...

https://connect.mayoclinic.org/comment/292240/

Discussion: Just diagnosed with Chronic NK Cell Leukemia. Please help my daughter

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2020

Hi @abide, in addition to the helpful information from @fortunateoldguy, I'm tagging other CLL members like...

https://connect.mayoclinic.org/comment/1094097/

Discussion: Anybody on Treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Jun 25, 2024

I was diagnosed with CLL/SLL 14 months ago, since that time, (my lymphocytes were 4500 when...

https://connect.mayoclinic.org/comment/841749/

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2023

My bone marrow showed I am 90% trashed out with my cll. She says I have...

https://connect.mayoclinic.org/comment/633844/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Sep 8, 2021

I was treated twice with rituxan only for spleen related pain in 2016. I had frequent...

https://connect.mayoclinic.org/comment/165736/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2017

Still alive!!! Happy New Year Colleen! I'm still on Venclexta and still wondering if it is...

https://connect.mayoclinic.org/comment/671166/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Jan 15, 2022

"Following a case series publication by Dr. Shanafelt, the National Cancer Institute sponsored clinical trials through...

https://connect.mayoclinic.org/comment/848742/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

Hi @oneillbe26, welcome. Am I correct that you have been diagnosed with CLL or SLL and...

https://connect.mayoclinic.org/comment/614287/

Discussion: Anemia in the elderly

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2021

I was diagnosed with CLL when I was 68 and was kept under surveillance until last...

https://connect.mayoclinic.org/comment/113623/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2018

Hi @lynnstefanik89, Welcome to the community! (and sorry you need to be here) I started my...

https://connect.mayoclinic.org/comment/1203242/

Discussion: Marginal zone lymphoma & chronic lymphocytic leukemia, anyone?

Support Group: Blood Cancers & Disorders

Posted: 6 days ago

Yes, unfortunately, CLL is tough to permanently beat. I also recently learned that there are 200...

https://connect.mayoclinic.org/comment/1014590/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2024

Good morning, @gardeningjunkie You definitely have a garden fairy on your shoulder and must be over-the-moon...

https://connect.mayoclinic.org/comment/944020/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2023

Melvin is correct. My Oncologist/Hematologist told me that if you have to get leukemia, CLL is...

https://connect.mayoclinic.org/comment/1190473/

Discussion: Chronic lymphocytic leukemia (CLL)

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2024

Hi benkeane, I was diagnosed with CLL in 2017. I’m at stage 0 and doing wait...

https://connect.mayoclinic.org/comment/967158/

Discussion: CLL diagnosis now having soft tissue pain

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2023

Hi Ron, it’s really great to hear from you again! I know the first time you...

https://connect.mayoclinic.org/comment/622983/

Discussion: What are the best treatment for CLL? Is CAR T cell therapy an option?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2021

Welcome @dmiles. I moved your post to the Blood Cancers & Disorders Support Group here https://connect.mayoclinic.org/group/blood-cancers-disorders/...

https://connect.mayoclinic.org/comment/799989/

Discussion: Newly Diagnosed CLL Patients: Do you struggle with symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023