Blood Cancers & Disorders Support Group | Page 2

I am SMM too ! I've been smoldering since September 2024. How long have you been...

https://connect.mayoclinic.org/comment/1382355/

Discussion: A Summary of My Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2025

My smoldering was also confirmed with bmb. I have a ct pt scan august 1 to...

https://connect.mayoclinic.org/comment/1350819/

Discussion: Insurance denied petscan? All research shows it sb done, what next?

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2025

I have smoldering multiple myeloma. Too much coffee is the answer to how much!

https://connect.mayoclinic.org/comment/1471576/

Discussion: Coffee and Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2025

@madkm I have SMM too. How long have you been smoldering?

https://connect.mayoclinic.org/comment/1472178/

Discussion: Coffee and Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Jan 1 12:43pm

Yes, seems quite a few of us do. Can you search this group for “smoldering”?

https://connect.mayoclinic.org/comment/914929/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2023

I had no symptoms. It was discovered in a blood test for neurologicalissues. I am in...

https://connect.mayoclinic.org/comment/104691/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2016

I am interested in what everyone's numbers were at time of diagnosis of Smoldering Multiple Myeloma...

https://connect.mayoclinic.org/comment/1547838/

Discussion: Smoldering Multiple Myeloma (SMM). Questions and Answers

Support Group: Blood Cancers & Disorders

Posted: Apr 11 10:00am

Thank you amber199 - May I ask how did they confirm smoldering? The biopsy or blood...

https://connect.mayoclinic.org/comment/1350495/

Discussion: Insurance denied petscan? All research shows it sb done, what next?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2025

@somde Smoldering multiple myeloma [SMM] is the second phase of protein anomalies in our blood plasma....

https://connect.mayoclinic.org/comment/915749/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2023

You mention you started treatment for smoldering myeloma in 2016. Can you share your treatment ?

https://connect.mayoclinic.org/comment/811252/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2023

@lindagi I am curious if the diagnosis is multiple myeloma, or one of the precurosors of...

https://connect.mayoclinic.org/comment/1017637/

Discussion: Has anyone been diagnosed with both AML and Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2024

I was diagnosed with both Amylodosis and smoldering myeloma in June 2019 any hints on diet...

https://connect.mayoclinic.org/comment/81211/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2020

I lead a support group for MM patients (I’m a patient too), and I’ve seen several...

https://connect.mayoclinic.org/comment/1014860/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2024

How often should you get MRi and /or bone marrow biopsies when you have Smoldering multiple...

https://connect.mayoclinic.org/comment/914968/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2023

@cytogirl wow, a double whammy. I'm glad that you are able to watch and wait with...

https://connect.mayoclinic.org/comment/1252397/

Discussion: Myeloma newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2025

For all Smoldering Multiple Myeloma (SMM) diagnosis, did your BMB show any gene mutations or Chromosomes...

https://connect.mayoclinic.org/comment/1479772/

Discussion: Smoldering Multiple Myeloma (SMM). Questions and Answers

Support Group: Blood Cancers & Disorders

Posted: Jan 11 2:09pm

@theadosi I am almost the exact same with MGUS 3.5 years ago and now advancing to...

https://connect.mayoclinic.org/comment/1497771/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 4 8:15am

I go to Siteman in St Louis, MO I have low risk SMM. I've been smoldering...

https://connect.mayoclinic.org/comment/1532806/

Discussion: Smoldering Multiple Myeloma (SMM). Questions and Answers

Support Group: Blood Cancers & Disorders

Posted: Mar 22 11:35am

New link: "Learn how eating a plant-based diet may prevent MGUS and smoldering myeloma from developing...

https://connect.mayoclinic.org/comment/886522/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2023

Hi Cfranz, thank you for volunteering to help. For this phase of the project, we have...

https://connect.mayoclinic.org/comment/627612/

Discussion: Want to help Mayo Clinic improve our Multiple Myeloma website?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2021