Blood Cancers & Disorders Support Group | Page 2

Hematologists usually treat a variety of blood disorders. Myeloma specialists are hematologists who treat patients with...

https://connect.mayoclinic.org/comment/1030366/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2024

I have had one only @ diagnosis. I have smoldering multiple myeloma. Since my bloodwork is...

https://connect.mayoclinic.org/comment/1654259/

Discussion: How often do you think a bone marrow biopsy is required?

Support Group: Blood Cancers & Disorders

Posted: Aug 24 11:41am

Greetings, nothing I have read on MGUS connects dots between the COVID vaccines and MGUS. I’ll...

https://connect.mayoclinic.org/comment/824352/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2023

@susanp2139 hello Susan, my best advice came from a man named Mike Katz who lived, I...

https://connect.mayoclinic.org/comment/1521314/

Discussion: Myeloma newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6 10:38pm

They take the blood test once a year, and nobody tells the results, only : "the...

https://connect.mayoclinic.org/comment/1015144/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2024

SMM stands for smoldering multiple myeloma. Sometimes multiple myeloma doesn't cause symptoms. Doctors call this smoldering...

https://connect.mayoclinic.org/comment/1492891/

Discussion: What are my chances that MGUS turns into multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Jan 28 5:38pm

I was diagnosed in 2011 with Waldenstroms and it recurred in 2021. I received a second...

https://connect.mayoclinic.org/comment/1643413/

Discussion: Anyone have Waldenstrom's AND Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Aug 11 2:30pm

@cemeterygal01, as you gather information on your particular combination of both amyloidosis and multiple myeloma, you...

https://connect.mayoclinic.org/comment/853948/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 3, 2023

A wonderful myeloma researcher at Mayo once told us that not everyone who has MGUS gets...

https://connect.mayoclinic.org/comment/1431810/

Discussion: Starting MGUS journey: It feels like the "in limbo" disease

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2025

@tbow I would suggest that you start the medication. Do your homework, but never underestimate how...

https://connect.mayoclinic.org/comment/1608161/

Discussion: Why continue with Revlimid (lenalidomide) after stem cell transplant?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 28 11:54am

Hello, Rosemary 73, I am so sorry for the loss of your son. All kindness to...

https://connect.mayoclinic.org/comment/1062432/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

Welcome, @vera101. Sometimes when multiple myeloma doesn't cause any symptoms, treatment is not necessary right away....

https://connect.mayoclinic.org/comment/999656/

Discussion: Multiple myeloma: When to treat? When not to treat?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2024

@redvrm greetings and welcome to the Mayo Clinic’s Connect. There is a higher risk within families...

https://connect.mayoclinic.org/comment/1475089/

Discussion: What are my chances that MGUS turns into multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Jan 5 11:38am

@wyom1998 Multiple myeloma is abbreviated to mm by many people. I believe what you are asking...

https://connect.mayoclinic.org/comment/664992/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2021

There is a threshold at which they may decide to start treatment even with smoldering multiple...

https://connect.mayoclinic.org/comment/918186/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023

I also had vasculitis. My rheumatologist knew that I needed to be on steroids but also...

https://connect.mayoclinic.org/comment/1001395/

Discussion: How to know whether smoldering myeloma or multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2024

@tristram, how are you doing? I found this article about multiple myeloma and managing bone pain:...

https://connect.mayoclinic.org/comment/808437/

Discussion: Any suggestions to alleviate Bone Pain from Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

You mention you started treatment for smoldering myeloma in 2016. Can you share your treatment ?

https://connect.mayoclinic.org/comment/811252/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2023

@gad1 Welcome to Mayo Clinic Connect. Having a complication of extramedullary multiple myeloma takes special care...

https://connect.mayoclinic.org/comment/1014511/

Discussion: Que nuevas terapias se aplican actualmente? New therapies for myeloma?

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2024

I would like to post this link to the international myeloma foundation. They have an amazing...

https://connect.mayoclinic.org/comment/658761/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2021