Blood Cancers & Disorders Support Group

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Comments (103)

The way I understand it MPN specialists are hematologists with sub speciality of MPN’s such as...

https://connect.mayoclinic.org/comment/797781/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2023

It sounds like you mean Essential Thrombocytosis, often referred to on this form as ET. It...

https://connect.mayoclinic.org/comment/1066397/

Discussion: 70 + year women with Thrombosis

Support Group: Blood Cancers & Disorders

Posted: May 12, 2024

Hello. My mom has essential thrombocytosis & her hematoligist said the platlets may fluctuate, even on...

https://connect.mayoclinic.org/comment/1324616/

Discussion: Have your platelets gone up?

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2025

Pretty much what debhammel said. 70 yrs, have had essential thrombocytosis x 15 years, on hydroxyurea...

https://connect.mayoclinic.org/comment/1066788/

Discussion: 70 + year women with Thrombosis

Support Group: Blood Cancers & Disorders

Posted: May 12, 2024

Hi Julieanna57, I am curious whether you are taking anything other than aspirin. Your platelets seem...

https://connect.mayoclinic.org/comment/808572/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 9, 2023

https://www.mpnresearchfoundation.org/understanding-mpns/ The MPN Reasearch Foundation is a good information resource tostart with. Also try Googling Myeloproliferative...

https://connect.mayoclinic.org/comment/978550/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2023

I've also been in 1000mg, for ten years. Just turned 70, quite active, playing doubles tennis...

https://connect.mayoclinic.org/comment/1178317/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2024

Good morning all.....to anyone having a rash and scalp itchiness I have Essential Thrombocytosis which causes...

https://connect.mayoclinic.org/comment/744043/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2022

ET stands for Essential Thrombocytosis. , I have this also and with a JAK2 mutation. If...

https://connect.mayoclinic.org/comment/919462/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2023

My Doctor wants my platelets below 400,000, in order to accomplish that it was necessary for...

https://connect.mayoclinic.org/comment/194301/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2019

It is hard to understand I was told I have Essential Thrombocytosis with a JAK 2...

https://connect.mayoclinic.org/comment/980116/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2023

@milkweed, I added this discussion to the Blood Cancer & Disorders support group as well to...

https://connect.mayoclinic.org/comment/836092/

Discussion: Multiple Stress Fractures while on meds for Essential Thrombocytosis

Support Group: Osteoporosis & Bone Health

Posted: Apr 2, 2023

@lefsequeen, I read in another thread that you've been living with Essential Thrombocytosis (ET) and managing...

https://connect.mayoclinic.org/comment/334494/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2021

I recommend trying to get on your state’s Medicaid insurance. You need treatment and medication most...

https://connect.mayoclinic.org/comment/1457413/

Discussion: Needing help understanding ET and how it affects my life

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2025

I have been taking Jakafi for post essential thrombocytosis (PET) Myelofibrosis since Nov 2020 and had...

https://connect.mayoclinic.org/comment/1091493/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

The Bone Marrow procedure is a first step. He should also do a molecular panel to...

https://connect.mayoclinic.org/comment/328572/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2020

Welcome @jak2mpnpositive, allow me to tag other members like @claire39 @bluegrasspv2018 @jam5 @dwlowrance @levieta @lzimmerman @mpt77...

https://connect.mayoclinic.org/comment/686214/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2022

Thank you so much. I figured out the acronym for PV. Feeling a tad overwhelmed due...

https://connect.mayoclinic.org/comment/1171920/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2024

I’ve been taking Hydroxyurea for 3 years or more for very high platelets 800 to 990...

https://connect.mayoclinic.org/comment/1234794/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2025

Hydrea (or generic hydroxyurea, sometimes people here abbreviate it to HU) is an oral chemo pill...

https://connect.mayoclinic.org/comment/1051644/

Discussion: Started Hydroxyurea: How long to see decrease in counts?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2024

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