Blood Cancers & Disorders Support Group

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Comments (243)

Hi, thanks for your interest, I have been suffering from essential thrombocythemia for 1 year

https://connect.mayoclinic.org/comment/1102651/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

I have been on Hydrea for over a year now for essential thrombocythemia. 500 mg daily...

https://connect.mayoclinic.org/comment/940282/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2023

@sregiani, I noticed that you wished to post a URL to an MPN Research Foundation with...

https://connect.mayoclinic.org/comment/837073/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2023

@damari, you may find some answers to your questions regarding erythropoietin levels and essential thrombocythemia in...

https://connect.mayoclinic.org/comment/596131/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2021

Hi Patty, With ET, essential thrombocythemia, there is an overabundance of platelets in the blood. The...

https://connect.mayoclinic.org/comment/1136064/

Discussion: What about no treatment for ET?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2024

Hello @shenriq, you may find this information useful, https://www.mayoclinic.org/diseases-conditions/essential-thrombocythemia/diagnosis-treatment/drc-20361131. Mayo Clinic says, "Treatment of essential thrombocythemia...

https://connect.mayoclinic.org/comment/196676/

Discussion: New Blood Cancers & Disorders Blog Posts

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2018

ET is essential thrombocythemia, a variation off MPN Myeloprolifertive Neoplasm PV is a variation of MPN,...

https://connect.mayoclinic.org/comment/919636/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023

@mamsgirl1998, I know you considered your options, including getting input from members about choosing treatment in...

https://connect.mayoclinic.org/comment/1050842/

Discussion: Started Hydroxyurea: How long to see decrease in counts?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2024

Question, does anyone with essential thrombocythemia JAK2 taking 500 mg of Hydroxurea twice a day have...

https://connect.mayoclinic.org/comment/1203402/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 3 9:54pm

Hello @shenriq, according to Mayo Clinic, dizziness and lightheadedness can occur from essential thrombocythemia, but could...

https://connect.mayoclinic.org/comment/257504/

Discussion: ET - Essential Thrombocythemia & Fainting

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2019

Hi @shenriq In addition to the Breast Cancer group, I included your post in the Blood...

https://connect.mayoclinic.org/comment/203930/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2018

@rlybolt Remember what your elementary teacher said: “There are no stupid questions!” ET is Essential Thrombocythemia....

https://connect.mayoclinic.org/comment/737547/

Discussion: Have ET: What if spleen is enlarged?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2022

Hola, @vivoconte I moved your post to this discussion group: - Essential Thrombocythemia: Looking for information...

https://connect.mayoclinic.org/comment/825716/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2023

Hi all, I thought you might appreciate these related discussions: - Essential Thrombocythemia: Looking for information...

https://connect.mayoclinic.org/comment/774755/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2022

@pattycake11, you mention that the bone marrow biopsies were negative and it's not cancer and you've...

https://connect.mayoclinic.org/comment/1054914/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2024

If you’re relatively new to your ET diagnosis you probably have a lot of questions and...

https://connect.mayoclinic.org/comment/1132865/

Discussion: Bone Marrow Aspiration - Long Term Pain Expecations

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2024

according to the nhlbi.nih.gov website: Thrombocythemia refers to a high platelet count that is not caused...

https://connect.mayoclinic.org/comment/806012/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2023

Hi Rose. This is a great community where members come together to offer hope, encouragement and...

https://connect.mayoclinic.org/comment/1113637/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2024

Hi @blondie65. Blood conditions can get a little confusing. It is possible to have both PV...

https://connect.mayoclinic.org/comment/1016652/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2024

Welcome @emcobb76. To help you connect with others who have essential thrombocythemia (ET), I moved your...

https://connect.mayoclinic.org/comment/776741/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2022