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Comments (304)

Have you seen a hematologist and had a bone marrow biopsy? That is how my AL...

https://connect.mayoclinic.org/comment/824887/

Discussion: AL Amyloidosis maybe?

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2023

Diagnosed over 5 years ago with light chain amyloidosis and multiple myeloma. Did the 6 month...

https://connect.mayoclinic.org/comment/1479194/

Discussion: Does anyone have Amyloidosis as their primary condition?

Support Group: Blood Cancers & Disorders

Posted: Jan 10 7:42pm

Hi @nick0820, I want to add my welcome. You may be interested in this video by...

https://connect.mayoclinic.org/comment/88333/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2019

@coug42, you may also be interested in these related discussions: - Diagnosed with MGUS/Amyloidosis https://connect.mayoclinic.org/discussion/diagnosed-with-mgusamyloidosis/ -...

https://connect.mayoclinic.org/comment/1103249/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

How about Amyloidosis?

https://connect.mayoclinic.org/comment/623737/

Discussion: AL Amyloidosis: Where were you treated?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2021

@loribmt Yes- I have Multiple Myeloma and Amyloidosis and they returned now. Next step Mayo.

https://connect.mayoclinic.org/comment/1436425/

Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2025

Hi @tomholder, welcome. There are several discussions about AL Amyloidosis that you may wish to review:...

https://connect.mayoclinic.org/comment/958685/

Discussion: Treatment for AL Amyloidosis with severe heart failure

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2023

Welcome to Connect @sseats. Since Amyloidosis can affect multiple areas/organs in the body getting the right...

https://connect.mayoclinic.org/comment/1061952/

Discussion: Amyloidosis: What kind of specialist to see for a second opinion?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

Many biopsies coming up at Mayo, for Amyloidosis.

https://connect.mayoclinic.org/comment/950564/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2023

I got diagnosed with Alect-2 amyloidosis 5 years ago went on kidney dialysis for 4 1/2...

https://connect.mayoclinic.org/comment/1065714/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: May 10, 2024

Have you had a bone marrow biopsy done? I have had Primary Amyloidosis for 3 years....

https://connect.mayoclinic.org/comment/1340732/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2025

@staystrong63, using the search tool, you can find many discussions on amyloidosis on Mayo Clinic Connect:...

https://connect.mayoclinic.org/comment/1302091/

Discussion: Amyloidosis and low SpO2

Support Group: Blood Cancers & Disorders

Posted: May 11, 2025

Hi @raanderson, such a great question (and responses from fellow members). You might also be interested...

https://connect.mayoclinic.org/comment/273515/

Discussion: Protecting patient from getting infections from me & others

Support Group: Caregivers

Posted: Aug 27, 2019

I went to Mayo Clinic in 2012 when my brother had a stem cell transplant for...

https://connect.mayoclinic.org/comment/113903/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2016

Hi @jenrico, Welcome to Connect. We hosted a webinar last June called "Amyloidosis – What Patients...

https://connect.mayoclinic.org/comment/88299/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2016

Hello, I came across your request for information on Amyloidosis. If you have not checked on...

https://connect.mayoclinic.org/comment/1277676/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2025

Welcome @mimi4968, I moved your question about new treatments for AL amyloidosis to this existing discussion:...

https://connect.mayoclinic.org/comment/1067446/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: May 13, 2024

@shorelady Welcome to Mayo Clinic Connect. I see you have been here a few months and...

https://connect.mayoclinic.org/comment/807058/

Discussion: Amyloidisis of the mouth and myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

Welcome, @victorino, to help you connect with other members like @vmarra @jan44 @jebcyn and others, I...

https://connect.mayoclinic.org/comment/1066152/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2024

@cemeterygal01 Welcome to Mayo Clinic Connect! Having received a new diagnosis can sure be unsettling, definitely....

https://connect.mayoclinic.org/comment/847766/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023