Blood Cancers & Disorders Support Group

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Comments (486)

@carolgk Xanax!!! Xanax stopped mine in its tracks, and the itching was horrible.

https://connect.mayoclinic.org/comment/1511369/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 21 2:59pm

Hi Cindylb, I was diagnosed with cutaneous T-cell lymphoma in 2017. I had a hysterectomy and...

https://connect.mayoclinic.org/comment/1523568/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 9 9:28pm

@robmcburney6999, despite the title referring to itching not related to bathing, I think you might find...

https://connect.mayoclinic.org/comment/945897/

Discussion: PV: terrible itching after shower or bath

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2023

Hello @patpambern, I have PV and have had spontaneous itching when newly diagnosed. I now take...

https://connect.mayoclinic.org/comment/1190759/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2024

Itching was so terrible for me that it controlled my life. Finally the Oncologist put me...

https://connect.mayoclinic.org/comment/1363401/

Discussion: Severe itching with PV

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2025

I had severe itching until they gave me Jakafi. Absolute miracle drug for me. No itching,...

https://connect.mayoclinic.org/comment/1303779/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: May 14, 2025

As previously mentioned, my T- cell lymphoma is sub type Sezary Syndrome,, which attacks the blood...

https://connect.mayoclinic.org/comment/887097/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Welcome, @madhornet. I'm tagging a few other members who have experience with chronic myelomonocytic leukemia (CMML)...

https://connect.mayoclinic.org/comment/1040274/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2024

https://connect.mayoclinic.org/comment/874699/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2023

Itching (puritis) is the symptom that led me to oncology. It was zyrtec that relieved the...

https://connect.mayoclinic.org/comment/790329/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2022

I had terrible thorax itching. Xanax stops it fast!!! And my itching was more than likely...

https://connect.mayoclinic.org/comment/905705/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 1, 2023

After being prescribed Jakafi I have no more itching. It took about 30 days before itching...

https://connect.mayoclinic.org/comment/1304817/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: May 15, 2025

I don’t actually use it anymore because I never had itching except at biopsy site. The...

https://connect.mayoclinic.org/comment/1113146/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2024

Can I ask you if you suffer from the itching ? I have yet found anything...

https://connect.mayoclinic.org/comment/995853/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2024

Colleen, fatigue and itching are nasty symptoms of PV, period. I am miserable due to fatigue...

https://connect.mayoclinic.org/comment/776339/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2022

Itching can happen at any time of the day or night, water or no water. Personally,...

https://connect.mayoclinic.org/comment/769110/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2022

I started itching all over with hives .they first thought allergy, yrs later i was diagnosed...

https://connect.mayoclinic.org/comment/752081/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2022

I heard Claritin works for the itching.

https://connect.mayoclinic.org/comment/806678/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2023

Has anyone found help for the itching?

https://connect.mayoclinic.org/comment/870282/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Did the hydrocortisone cream help his itching?

https://connect.mayoclinic.org/comment/1040687/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Mar 26, 2024