Blood Cancers & Disorders Support Group

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Comments (810)

Have you consulted a CLL specialist? I encountered non-specialists who were either ignorant of or disregarded...

https://connect.mayoclinic.org/comment/113611/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2017

Hi @phof1, I add my welcome along with @loribmt. I moved your message to the Blood...

https://connect.mayoclinic.org/comment/789320/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2022

Something for those new to CLL. Friday, someone asked me how I am doing and I...

https://connect.mayoclinic.org/comment/1372700/

Discussion: Chronic lymphocytic leukemia (CLL)

Support Group: Blood Cancers & Disorders

Posted: Aug 17 12:18pm

abide: Attached is the best resource for CLL/SLL I know of. Understanding CLL/SLL - Chronic Lymphocytic...

https://connect.mayoclinic.org/comment/1086414/

Discussion: Anybody on Treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

I know there is a new drug which MD Anderson uses on CLL. It is a...

https://connect.mayoclinic.org/comment/845892/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

Welcome to Connect @marytheresacll. Thank you for sharing your experience with CLL so far. Being in...

https://connect.mayoclinic.org/comment/947504/

Discussion: Possible upcoming lymphoma or leukemia diagnosis. What to expect?

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2023

I found the article on Vitamin D and CLL. By coincidence, I am taking that supplement...

https://connect.mayoclinic.org/comment/1176768/

Discussion: CLL Watch and Wait: Can supplements and diet help?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024

All I can say is follow your Doctor’s advice. If one isn’t comfortable with the advice...

https://connect.mayoclinic.org/comment/1407956/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Oct 4 6:46am

GOOGLE; This helps me understand my sister's cancer better The key difference between SLL and CLL...

https://connect.mayoclinic.org/comment/815657/

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

Hi Pat, welcome to Connect. It’s not uncommon for people with CLL or any blood cancer...

https://connect.mayoclinic.org/comment/1258404/

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 15 8:50am

Hello @twentyfour7. Good question. From what I found, there are hints that it is possible that...

https://connect.mayoclinic.org/comment/296622/

Discussion: Can CLL be hereditary?

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2020

@pinkpocketbooks, I'd like to add my welcome. I'm so glad you connected with @nana120. I moved...

https://connect.mayoclinic.org/comment/1098670/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

Hi @lambo1, Some of the newer treatments for CLL are amazing. A younger father my neighbor...

https://connect.mayoclinic.org/comment/947506/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2023

My husband was diagnosed with CLL 6 years ago. He was diagnosed with type two diabetes....

https://connect.mayoclinic.org/comment/765971/

Discussion: CLL and Type 2 diabetes is there a correlation with the diseases?

Support Group: Diabetes & Endocrine System

Posted: Oct 27, 2022

I’m on long term study of ZANUBRUTINIB. After 8-1/2 years it’s still keeping CLL under control....

https://connect.mayoclinic.org/comment/1405711/

Discussion: Treatment for CLL: Any experiences with Brukinsa (zanobrutinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 1 7:27am

In fact, the effectiveness of traditional Chinese medicine (herbs) in the treatment of CLL is approached...

https://connect.mayoclinic.org/comment/952304/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2023

I found this article of interest as it seems that almost everyone with cll has smudge...

https://connect.mayoclinic.org/comment/1098725/

Discussion: Anybody on Treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

Hi Cook456, welcome to Mayo Clinic Connect. You may wish to connect with others talking about...

https://connect.mayoclinic.org/comment/647129/

Discussion: CPAP (Phillips recall) and Cancer

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2021

Welcome @rsharp. If I'm reading your reply to @pieter1961 correctly, you'll be starting treatment with venetoclax...

https://connect.mayoclinic.org/comment/775629/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2022

I'm early stage CLL/SLL - no treatment, yet . NIH research/write up on Metformin was statistically...

https://connect.mayoclinic.org/comment/781273/

Discussion: Metformin and its impact on SLL/CLL treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2022