Blood Cancers & Disorders Support Group

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Comments (307)

Life is keeping you hopping @dorothea58 You mention hereditary-familial ATTR and not the wild type ....

https://connect.mayoclinic.org/comment/1540709/

Discussion: Wild-type ATTR Amyloidosis (ATTRwt): What meds help you?

Support Group: Blood Cancers & Disorders

Posted: Apr 1 8:12pm

Hi @nick0820, I want to add my welcome. You may be interested in this video by...

https://connect.mayoclinic.org/comment/88333/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2019

@coug42, you may also be interested in these related discussions: - Diagnosed with MGUS/Amyloidosis https://connect.mayoclinic.org/discussion/diagnosed-with-mgusamyloidosis/ -...

https://connect.mayoclinic.org/comment/1103249/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

Many biopsies coming up at Mayo, for Amyloidosis.

https://connect.mayoclinic.org/comment/950564/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2023

Hi @tomholder, welcome. There are several discussions about AL Amyloidosis that you may wish to review:...

https://connect.mayoclinic.org/comment/958685/

Discussion: Treatment for AL Amyloidosis with severe heart failure

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2023

Welcome to Connect @sseats. Since Amyloidosis can affect multiple areas/organs in the body getting the right...

https://connect.mayoclinic.org/comment/1061952/

Discussion: Amyloidosis: What kind of specialist to see for a second opinion?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

Hi @ump2929, Welcome to Mayo Connect. It looks as though your doctor is concerned that you...

https://connect.mayoclinic.org/comment/1471240/

Discussion: Could this be Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2025

I got diagnosed with Alect-2 amyloidosis 5 years ago went on kidney dialysis for 4 1/2...

https://connect.mayoclinic.org/comment/1065714/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: May 10, 2024

@staystrong63, using the search tool, you can find many discussions on amyloidosis on Mayo Clinic Connect:...

https://connect.mayoclinic.org/comment/1302091/

Discussion: Amyloidosis and low SpO2

Support Group: Blood Cancers & Disorders

Posted: May 11, 2025

I went to Mayo Clinic in 2012 when my brother had a stem cell transplant for...

https://connect.mayoclinic.org/comment/113903/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2016

Have you had a bone marrow biopsy done? I have had Primary Amyloidosis for 3 years....

https://connect.mayoclinic.org/comment/1340732/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2025

Ask your doctors about a cardiac MRI scan and a cardiac PET/CT scan for amyloidosis. That...

https://connect.mayoclinic.org/comment/1464890/

Discussion: Could this be Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

@gracie1976 Welcome to Mayo Clinic Connect! I’m so happy you’re heading to Mayo. Do you already...

https://connect.mayoclinic.org/comment/1436574/

Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2025

I was diagnosed with multiiple myeloma and light chain amyloidosis in 2021. Did the 2 year...

https://connect.mayoclinic.org/comment/1547516/

Discussion: Anyone have experience with daratumumab (Darzalex) to treat Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Apr 10 8:09pm

Hello, I came across your request for information on Amyloidosis. If you have not checked on...

https://connect.mayoclinic.org/comment/1277676/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2025

@shorelady Welcome to Mayo Clinic Connect. I see you have been here a few months and...

https://connect.mayoclinic.org/comment/807058/

Discussion: Amyloidisis of the mouth and myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

@cemeterygal01 Welcome to Mayo Clinic Connect! Having received a new diagnosis can sure be unsettling, definitely....

https://connect.mayoclinic.org/comment/847766/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023

Hi @jenrico, Welcome to Connect. We hosted a webinar last June called "Amyloidosis – What Patients...

https://connect.mayoclinic.org/comment/88299/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2016

Welcome @mimi4968, I moved your question about new treatments for AL amyloidosis to this existing discussion:...

https://connect.mayoclinic.org/comment/1067446/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: May 13, 2024

Welcome, @victorino, to help you connect with other members like @vmarra @jan44 @jebcyn and others, I...

https://connect.mayoclinic.org/comment/1066152/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2024