Blood Cancers & Disorders: Discussions | Page 2

How were you diagnosed with MGUS without the BMB? I am new to this. I have...

https://connect.mayoclinic.org/comment/1333678/

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: Jun 23 5:07pm

I got diagnosed with Alect-2 amyloidosis 5 years ago went on kidney dialysis for 4 1/2...

https://connect.mayoclinic.org/comment/1065714/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: May 10, 2024

I went to Mayo Clinic in 2012 when my brother had a stem cell transplant for...

https://connect.mayoclinic.org/comment/113903/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2016

Hi @raanderson, such a great question (and responses from fellow members). You might also be interested...

https://connect.mayoclinic.org/comment/273515/

Discussion: Protecting patient from getting infections from me & others

Support Group: Caregivers

Posted: Aug 27, 2019

Hello, I came across your request for information on Amyloidosis. If you have not checked on...

https://connect.mayoclinic.org/comment/1277676/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Apr 9 9:03am

Hi @jenrico, Welcome to Connect. We hosted a webinar last June called "Amyloidosis – What Patients...

https://connect.mayoclinic.org/comment/88299/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2016

@cemeterygal01 Welcome to Mayo Clinic Connect! Having received a new diagnosis can sure be unsettling, definitely....

https://connect.mayoclinic.org/comment/847766/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023

@tayleebuzz Hello and welcome to Mayo Clinic Connect. This is a caring community where members share...

https://connect.mayoclinic.org/comment/593973/

Discussion: AL Amyloidosis: Where were you treated?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2021

Welcome @mimi4968, I moved your question about new treatments for AL amyloidosis to this existing discussion:...

https://connect.mayoclinic.org/comment/1067446/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: May 13, 2024

@shorelady Welcome to Mayo Clinic Connect. I see you have been here a few months and...

https://connect.mayoclinic.org/comment/807058/

Discussion: Amyloidisis of the mouth and myeloma

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

individuals can also have TTR and AL amyloidosis

https://connect.mayoclinic.org/comment/1278358/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Apr 10 7:17am

Welcome, @victorino, to help you connect with other members like @vmarra @jan44 @jebcyn and others, I...

https://connect.mayoclinic.org/comment/1066152/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2024

@evaxmas, welcome to Connect. You may notice I combined your discussion with an existing one titled,...

https://connect.mayoclinic.org/comment/88325/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2019

Thanks for the reminder about videos, @oldkarl! There's a video with Martha Grogan, MD, and hematologist...

https://connect.mayoclinic.org/comment/104698/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2017

@cgerwig66 Welcome to Mayo Clinic Connect. I understand you were recently diagnosed with MGUS, and are...

https://connect.mayoclinic.org/comment/842868/

Discussion: Amyloidosis symptoms, negative fat pad biopsy?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023

Hi @flcrakr1, welcome. You'll notice that I moved your message to this existing discussion about amyloidosis....

https://connect.mayoclinic.org/comment/623980/

Discussion: AL Amyloidosis: Where were you treated?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2021

I would like to discuss your condition with you if you'd like. Have peripheral neuropathy as...

https://connect.mayoclinic.org/comment/104723/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2018

Hello @carolynaune. Here is a discussion I think you may enjoy looking at, https://connect.mayoclinic.org/discussion/treatment-for-amyloidosis-and-multiple-mylemoa/. It has...

https://connect.mayoclinic.org/comment/196640/

Discussion: Support groups for lymphoma patients

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2018

Lori, switched the loading sequence but that caused a problem. It talks about AL Amyloidosis but...

https://connect.mayoclinic.org/comment/738758/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2022

Fat pad biopsies may be done to look for Amyloidosis - not very definitive or accurate

https://connect.mayoclinic.org/comment/754346/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2022

Blood Cancers & Disorders Support Group