Blood Cancers & Disorders Support Group

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Comments (367)

Yes . I had this for 10 1/2 years and used same medication until it no...

https://connect.mayoclinic.org/comment/50532/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2017

Hi - I took jakifi for 10 months before my stem cell transplant for chronic eosinophilic...

https://connect.mayoclinic.org/comment/1271889/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Apr 1 2:18pm

I was on Hydrea for two months with no significant change to high platelets and then...

https://connect.mayoclinic.org/comment/1301879/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: May 11 1:34pm

Hi again I am74 aswell and jakifi is about 18 k a month crazy expensive and...

https://connect.mayoclinic.org/comment/1236941/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 14 3:17pm

Hi Diane - I am 61 and 9 months post allogeneic stem cell transplant for eosinophilic...

https://connect.mayoclinic.org/comment/1368373/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 11 12:42pm

I also go to Mayo in Jacksonville for treatment for ET. I was initially going to...

https://connect.mayoclinic.org/comment/1351178/

Discussion: No appointment scheduled for my labs at Mayo...??

Support Group: Blood Cancers & Disorders

Posted: Jul 18 3:50pm

Thanks to everyone on this forum , I was diagnosed with two mutations middle last year,...

https://connect.mayoclinic.org/comment/1285436/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Apr 19 12:28pm