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Hi MaryLynda, I moved your question to this exiting discussion about ET so you can connect...

https://connect.mayoclinic.org/comment/641119/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2021

@lefsequeen, I read in another thread that you've been living with Essential Thrombocytosis (ET) and managing...

https://connect.mayoclinic.org/comment/334494/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2021

Dizziness / light-headedness can be symptoms of ET itself. You're smart to take it slow and...

https://connect.mayoclinic.org/comment/1210812/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2025

Hi Lynne, I see @janemc's wise words about the lack of information. There are a couple...

https://connect.mayoclinic.org/comment/1282117/

Discussion: Like to know more. Just told I have Triple Negative MPN.

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2025

I was diagnosed with ET/jack2 mutation back in August 2025. After lots of thinking and talking...

https://connect.mayoclinic.org/comment/1517451/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 1 7:48pm

I’ve had ET for 30 or 40 years and took HU until several years ago with...

https://connect.mayoclinic.org/comment/1005530/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2024

Besremi is a first line treatment for PV. I'm not sure if you can use it...

https://connect.mayoclinic.org/comment/1451899/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2025

Erikaerika, I just looked at NIH.gov and as of 2020 the median survival age of people...

https://connect.mayoclinic.org/comment/799775/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023

I didn't want to repeat the explanation that appears above. I've had ET for 3 1/2...

https://connect.mayoclinic.org/comment/1263845/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2025

Receiving guidance on pregnancy/infertility is a good idea — with your Hematologist-Oncologist and GYN. From the...

https://connect.mayoclinic.org/comment/864174/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 21, 2023

Baby aspirin (81mg) should be taken prophylactically every day if you’re over 60 even if you’re...

https://connect.mayoclinic.org/comment/1216392/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

Hi @jacqueline, I hope you’re finding out that you’re never alone now that you’re joined our...

https://connect.mayoclinic.org/comment/894333/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2023

I also have shin pain, especially at night in bed. Also bones in big toes ache....

https://connect.mayoclinic.org/comment/998207/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2024

Is ET with JAK 2 also called Polycemia Vera. I’m confused. Thanks and it’s so nice...

https://connect.mayoclinic.org/comment/1210738/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2025

Hi @skholman, welcome. I moved your message about sharing treatments for essential thrombocythemia to this existing...

https://connect.mayoclinic.org/comment/1264798/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2025

ET is a chronic cancer, no total cure, just abate symptoms. Platelets are kept within normal...

https://connect.mayoclinic.org/comment/1393594/

Discussion: Is foot/toe pain a symptom of increasing platelets in ET?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2025

Wow! So fortunate you had no long term effects from the stroke. It makes me wonder...

https://connect.mayoclinic.org/comment/1304096/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: May 14, 2025

Hello, lindamarie! Others on this forum have been living with ET with the JAK2 driver for...

https://connect.mayoclinic.org/comment/1184720/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2024

Hi, diagnosed with ET (CALR) mutation ) age 60, but onset about age 55. My dad...

https://connect.mayoclinic.org/comment/1146120/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2024

Hi Erikaerika… I have a question. We’re you diagnosed with TB….tuberculosis? Or were you diagnosed with...

https://connect.mayoclinic.org/comment/799578/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023