Blood Cancers & Disorders Support Group

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Comments (365)

I have had Pilycthemia Vera for almost 20 years. It’s now has changed to Myelofbrosis. Just...

https://connect.mayoclinic.org/comment/1098999/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

@simple27 -- Agree that my anemic hematocrit points AWAY from PV. I wish I could convince...

https://connect.mayoclinic.org/comment/231792/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2019

What does ET stand for? I was diagnosed 2 years ago with Polycythaemia Ruba Vera with...

https://connect.mayoclinic.org/comment/918920/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 25, 2023

I can only respond from my personal experience. I was diagnosed four years ago. Medications will...

https://connect.mayoclinic.org/comment/1505369/

Discussion: Polycythemia Vera: What is next when treatment stops working?

Support Group: Blood Cancers & Disorders

Posted: Feb 14 7:33am

Vent all you want here. Firstly, your getting it out and you have people with the...

https://connect.mayoclinic.org/comment/1324057/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2025