Blood Cancers & Disorders Support Group

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Comments (916)

@carlabaz hi there. I have not yet learned to read my lab results beyond the basics...

https://connect.mayoclinic.org/comment/1516390/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 28 9:43am

@vera101 If you are not under the care of a hematologist oncologist, please consider getting an...

https://connect.mayoclinic.org/comment/1000202/

Discussion: Multiple myeloma: When to treat? When not to treat?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2024

The causes of multiple myeloma are not known, but many risk factors are. (A risk factor...

https://connect.mayoclinic.org/comment/1357447/

Discussion: Question to ask about MGUS Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2025

@huron Welcome to Mayo Clinic Connect! If you go to the blood cancer support group, which...

https://connect.mayoclinic.org/comment/1276417/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2025

Hello Carleen, The last time I was at a multiple Myeloma conference was a few years...

https://connect.mayoclinic.org/comment/74615/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2020

I (69 yo male) diagnosed with Multiple Myeloma in December 2025, was on 25mg Revlimid for...

https://connect.mayoclinic.org/comment/1558081/

Discussion: Anyone get an abdominal rash with lenalidomide?

Support Group: Blood Cancers & Disorders

Posted: Apr 23 10:08pm

New CAR T-cell therapy extends remission in heavily relapsed ... CAR T-cell therapy for multiple myeloma...

https://connect.mayoclinic.org/comment/1521813/

Discussion: Myeloma newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 7 1:07pm

Have you seen a hematologist and had a bone marrow biopsy? That is how my AL...

https://connect.mayoclinic.org/comment/824887/

Discussion: AL Amyloidosis maybe?

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2023

You can have idiopathic autoimmune hemolytic anemia meaning there is no other cause. Consider yourself lucky...

https://connect.mayoclinic.org/comment/1374355/

Discussion: Hemolytic Anemia - Why do I have it?

Support Group: Blood Cancers & Disorders

Posted: Aug 19, 2025

@divyanshi, macular amyloidosis sounds like it is quite rare. If you'd like, there are a few...

https://connect.mayoclinic.org/comment/244392/

Discussion: Macular amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2019

@cctoo Sometimes the medical group will call it MGUS for insurance/blood test reasons, while your dr...

https://connect.mayoclinic.org/comment/81216/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2020

Request the large packet of information regarding Multiple Myeloma from Mayo staff. It is like returning...

https://connect.mayoclinic.org/comment/1121530/

Discussion: Should all multiple myeloma patients look into stem cell transplant?

Support Group: Blood Cancers & Disorders

Posted: Aug 11, 2024

Welcome! I was diagnosed with SMM in Sept. 2020. I do blood work every three months...

https://connect.mayoclinic.org/comment/809917/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2023

@knikriverstudios. Welcome to Mayo Connect. Reading your bio you mentioned having both MM (multiple myeloma and...

https://connect.mayoclinic.org/comment/1465086/

Discussion: Anyone with Plasma Cell Leukemia or family?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2025

Hi @krismikkalson. Welcome to Connect. Plasma Cell Leukemia looks to be a bit of a rare...

https://connect.mayoclinic.org/comment/1217307/

Discussion: Anyone with Plasma Cell Leukemia or family?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2025

So I have multiple myeloma. My kappa numbers are high and M protein .4. I have...

https://connect.mayoclinic.org/comment/1182721/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2024

@carolesg It's called multiple myeloma for a reason. There are several different types of myeloma. And...

https://connect.mayoclinic.org/comment/1106103/

Discussion: Stopping Myeloma at the MGUS Stage

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2024

I have multiple myeloma and underwent 16 weeks of chemo. To say it wiped me out...

https://connect.mayoclinic.org/comment/1288414/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2025

Hi @trienbold, I found the posting @cheft had written regarding the five risk factors for smoldering...

https://connect.mayoclinic.org/comment/918484/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 25, 2023

1’ve had two after being diagnosed with multiple myeloma. For me they were not bad at...

https://connect.mayoclinic.org/comment/1332967/

Discussion: Very anxious about bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2025

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