Blood Cancers & Disorders Support Group

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Comments (867)

So I have multiple myeloma. My kappa numbers are high and M protein .4. I have...

https://connect.mayoclinic.org/comment/1182721/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2024

Have you seen a hematologist and had a bone marrow biopsy? That is how my AL...

https://connect.mayoclinic.org/comment/824887/

Discussion: AL Amyloidosis maybe?

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2023

@divyanshi, macular amyloidosis sounds like it is quite rare. If you'd like, there are a few...

https://connect.mayoclinic.org/comment/244392/

Discussion: Macular amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2019

You can have idiopathic autoimmune hemolytic anemia meaning there is no other cause. Consider yourself lucky...

https://connect.mayoclinic.org/comment/1374355/

Discussion: Hemolytic Anemia - Why do I have it?

Support Group: Blood Cancers & Disorders

Posted: Aug 19, 2025

I have multiple myeloma and underwent 16 weeks of chemo. To say it wiped me out...

https://connect.mayoclinic.org/comment/1288414/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2025

@lcal12 Welcome to Mayo Clinic Connect. I am a multiple myeloma patient, under treatment since August...

https://connect.mayoclinic.org/comment/1435234/

Discussion: Are any of you Multiple Myeloma patients post kidney transplant?

Support Group: Transplants

Posted: Nov 10, 2025

Hi @trienbold, I found the posting @cheft had written regarding the five risk factors for smoldering...

https://connect.mayoclinic.org/comment/918484/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 25, 2023

1’ve had two after being diagnosed with multiple myeloma. For me they were not bad at...

https://connect.mayoclinic.org/comment/1332967/

Discussion: Very anxious about bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2025

I have multiple myeloma and have had a stem cell transplant in January 2025. I've had...

https://connect.mayoclinic.org/comment/1323796/

Discussion: Very anxious about bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2025

I agree the Covid vaccine has caused a lot of harm but it is hard to...

https://connect.mayoclinic.org/comment/848102/

Discussion: Aplastic Anemia and vaccine influences

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2023

Oh gosh, @hi2l. I'm sorry that the comments here have made you more fearful than necessary....

https://connect.mayoclinic.org/comment/660078/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2021

Three of my former coworkers, all male, have/had multiple myeloma while I, a female, have cll....

https://connect.mayoclinic.org/comment/846281/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2023

I also have MGus. I have had this for at least 15 years, but was just...

https://connect.mayoclinic.org/comment/1427189/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Oct 30, 2025

I am helping my sister who is getting her 3rd treatment today for multiple myeloma. The...

https://connect.mayoclinic.org/comment/728760/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2022

@jrenjr https://www.fda.gov/drugs/frequently-asked-questions-popular-topics/generic-drugs-questions-answers#:~:text=Generic%20medicines%20and%20brand%2Dname,generic%20medicine%2C%20may%20be%20different. I have taken both brand name Revlimid and generic lenalidomide, as have several others...

https://connect.mayoclinic.org/comment/1445024/

Discussion: Is anyone here taking Revlimid? If so please share with me

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2025

@wyom1998 My kidney disease is not related to the multiple myeloma, but to a very rare...

https://connect.mayoclinic.org/comment/666734/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2021

@mikxtr How frustrating! Not sure which specialists these people are, but if not a hematologist oncologist,...

https://connect.mayoclinic.org/comment/1076706/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

I of course don’t know who your insurance company is or why they might deny a...

https://connect.mayoclinic.org/comment/1348475/

Discussion: Insurance denied petscan? All research shows it sb done, what next?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2025

@loribmt thank you for this really helpful post, Lori! I had shortness of breath since 2013,...

https://connect.mayoclinic.org/comment/1041665/

Discussion: Abnormal bloodwork questions

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2024

Hi, my diagnosis involved bloodwork, a full body X-ray (originally thought I had Multiple Myeloma because...

https://connect.mayoclinic.org/comment/1241683/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2025