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Public Support Group 556 total results
Comments (525)
@joaniech2004 Hello MF FRIENDS ! At this point I have secondary HIGH RISK MF AFTER HAVING...
https://connect.mayoclinic.org/comment/1538861/
@twitt1949 I’ve had itching as well but I’ve suffered from allergies since I’ve been little so...
https://connect.mayoclinic.org/comment/1557373/
During a 5th spine surgery at age 79, I was diagnosed with Jak2 mutation. My platelet...
https://connect.mayoclinic.org/comment/801488/
About 3 years ago I had what I thought was a bug bite on my shin,...
https://connect.mayoclinic.org/comment/701623/
Well I got my results back from my blood test and the hydroxyurea brought my white...
https://connect.mayoclinic.org/comment/1335937/
I was diagnosed with CMML 9 years ago, and after a BMB they added myelofibrosis to...
https://connect.mayoclinic.org/comment/1435240/
If you are 50 years old or even 40 years old, and have platelets that high,...
https://connect.mayoclinic.org/comment/1439273/
When I was diagnosed, with PCV and Jak 2 positive, the first thing they did was...
https://connect.mayoclinic.org/comment/891492/
Have you been tested for Allergic Contact Dermatitis, ACD? Google the 5 Day Extended Patch Test....
https://connect.mayoclinic.org/comment/959339/
Hi all! I had posted on here a while back but I have had new symptoms....
https://connect.mayoclinic.org/comment/753312/
Hi Ismat, There are so many abbreviations for diseases, it’s a challenge to keep them all...
https://connect.mayoclinic.org/comment/1367584/
Hi @rjperk633 Such a lovely update about your mom! Wishing her a belated 88th birthday. I’m...
https://connect.mayoclinic.org/comment/1314073/
I was diagnosed two years ago with PVCV but doctored for two years before that with...
https://connect.mayoclinic.org/comment/1086040/
I did not stop taking Hydroxyurea when I had knee surgery nor for any general illnesses...
https://connect.mayoclinic.org/comment/730094/
2 weeks ago diagnosed with CMML 1 with Myelofibrosis 3+/3, after my 3rd Bone Marrow Aspiration...
https://connect.mayoclinic.org/comment/1509609/
@jackiecarey hi Jackie I also am 77 and like you have never heard of PV or...
https://connect.mayoclinic.org/comment/1439459/
Hello. I’ve had relatively little itching since I started HU about five years ago. Curiously, my...
https://connect.mayoclinic.org/comment/1375023/
I have been trying to get help and told this is what I have, 2 years...
https://connect.mayoclinic.org/comment/806632/
Thank you @mefely. That's an interesting statement, does not help regrow, but does help keep it....
https://connect.mayoclinic.org/comment/1260618/
Robyn Scherber, MD - Living with an MPN Sept. 12, 2019 - Polycythemia Vera Disease Progression...
https://connect.mayoclinic.org/comment/807931/
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