Blood Cancers & Disorders Support Group

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Comments (486)

I take HU, 500 mg, 4x week, baby aspirin 2x day, and iron supplements 1x day....

https://connect.mayoclinic.org/comment/1210555/

Discussion: Does ET or HU affect liver functions?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2025

Hello @mvoge. Oh my goodness, intense itching is the worst! I had that with some of...

https://connect.mayoclinic.org/comment/882044/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2023

I was diagnosed with a myelodysplastic disorder over a year ago. Last fall a bone marrow...

https://connect.mayoclinic.org/comment/1104835/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2024

Yes, age or ET is one of my constant questions. I'm 70 now. Just based on...

https://connect.mayoclinic.org/comment/1052910/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2024

On Sat, Dec 14, 2024 at 7:34 AM Mayo Clinic Connect < nf+9223a906+28451071@n1.hubapplication.com> wrote: > ##...

https://connect.mayoclinic.org/comment/1190261/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2024

Hi @nathangolden. I'm sorry to hear about your bone pain. While I don't have bone pain...

https://connect.mayoclinic.org/comment/875257/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

Been searching for over 2 years, one hematologist oncologist has diagnosed PV. 1 test for jak-2...

https://connect.mayoclinic.org/comment/872618/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

One of the things I have noticed is that my doctors all seem to have different...

https://connect.mayoclinic.org/comment/919942/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 27, 2023

Welcome to Connect, @chella65. As you can see you’re not alone with your new diagnosis of...

https://connect.mayoclinic.org/comment/879767/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Angie, I'm 66, diagnosed with IgA Kappa MGUS 2/15/23, husband died of Multiple Myeloma 7/24/22. Mine...

https://connect.mayoclinic.org/comment/1053450/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2024

Thank you so very much! I haven’t actually donated blood yet. It was thrown out as...

https://connect.mayoclinic.org/comment/1277461/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2025

I'm CALR, too. Been on HU for 6 years and bloodwork very stable in 400s once...

https://connect.mayoclinic.org/comment/1089100/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024

caitie, you didn't mention any medications. A large percentage of the population are deficient in magnesium....

https://connect.mayoclinic.org/comment/257515/

Discussion: ET - Essential Thrombocythemia & Fainting

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2020

Hello friends and @katgob and @loribmt How are you guys doing ??? Chilling buzzing making more...

https://connect.mayoclinic.org/comment/1393852/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 15, 2025

Hi All, I was officially diagnosed with Mycosis Fungoides several years ago, after several years with...

https://connect.mayoclinic.org/comment/943782/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

Kappa light chain IgM- MGUS Anyone else suffering from MGUS? Mine is slowly progressing and at...

https://connect.mayoclinic.org/comment/731433/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2022

Hi Everyone.....Wishing you all the warmest, family filled holidays. Since my platelet count has dropped back...

https://connect.mayoclinic.org/comment/978074/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2023

ME!! It’s the itching that drives me insane! I’ve tried, Sarna, it seems to help! I...

https://connect.mayoclinic.org/comment/823983/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2023

Good morning, @pinkflamingo. Your @name made me smile and think fondly of Florida this spring morning....

https://connect.mayoclinic.org/comment/836087/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

Well, I’ve been taking it for about 5 years for PV. I’m 77. I’d love to...

https://connect.mayoclinic.org/comment/1289774/

Discussion: Started Hydroxyurea 5 weeks . How long does the fatigue last?

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2025