Blood Cancers & Disorders Support Group

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Comments (417)

Hello! How's everyone doing?? I'm so happy to have found this group as I've really been...

https://connect.mayoclinic.org/comment/720738/

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2022

Hi @gonefishinmt, I'm new to this site & first must say how good it feels to...

https://connect.mayoclinic.org/comment/82973/

Discussion: Treatment options for Livedoid Vasculopathy (LV)

Support Group: Skin Health

Posted: Feb 4, 2016

Oh Lori. I am so happy you Know the treatments I am talking about. I know...

https://connect.mayoclinic.org/comment/1347488/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jul 13 4:33pm

Yes, I have hereditary hemochromatosis. My ferritin is currently at 3886 and saturation is 97%. I...

https://connect.mayoclinic.org/comment/1355566/

Discussion: Hemachromatosis...

Support Group: Blood Cancers & Disorders

Posted: Jul 24 4:49pm

Leeann I'm doing fine with it. I was scared to. I got a reaction to it...

https://connect.mayoclinic.org/comment/1346858/

Discussion: Anyone have Rituximab infusion for lymphoma treatment? Did it help?

Support Group: Blood Cancers & Disorders

Posted: Jul 12 9:50pm

Isabelle, I have PV and have great relief from that terrible itch after a shower by...

https://connect.mayoclinic.org/comment/1197983/

Discussion: Are the symptoms in my head? Polycythemia Vera + Mastocytosis (age-23)

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

Ugh, I have itch cause by water contact and with change in temperature…I also have other...

https://connect.mayoclinic.org/comment/872794/

Discussion: Hemochromatosis: How do you deal with extreme itchiness?

Support Group: Skin Health

Posted: Jun 5, 2023

Bruises on the forearms are very common as we age. They can be quite large, dark...

https://connect.mayoclinic.org/comment/1152706/

Discussion: Bruising unexplained

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2024

I am 74, prescribed Clobetasol. 05%. It seems to meditigate the eruption using morning and evening,...

https://connect.mayoclinic.org/comment/1113701/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 29, 2024

What is the name of your anti-itch cream? I use a product called Hempz which gives...

https://connect.mayoclinic.org/comment/1113092/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2024

@treinbold This post is a flashback from when my husband who had been underdiagnosed by his...

https://connect.mayoclinic.org/comment/937332/

Discussion: Does smoldering multiple myeloma or myeloma cause skin problems?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2023

Hi! I was diagnosed with follicular non Hodgkin’s lymphoma 3 years ago at 57. I had...

https://connect.mayoclinic.org/comment/925328/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 6, 2023

I originally came to connect.mayoclinic.org to learn more about my own MGUS condition. However, I am...

https://connect.mayoclinic.org/comment/851930/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2023

That’s a lot to consider. Like Lori, I had to digest what you wrote before responding....

https://connect.mayoclinic.org/comment/816572/

Discussion: Follicular Lymphoma and husband wants to continue trying for child

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2023

I find my legs itch the most unless I take a shower or bath, then it’s...

https://connect.mayoclinic.org/comment/769166/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2022

Thank you, Judy! Having an idea of what symptoms to look for is actually comforting. I...

https://connect.mayoclinic.org/comment/744249/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2022

Actually he is feeling very good. This all started with an severe all over itch. We...

https://connect.mayoclinic.org/comment/641840/

Discussion: Adult Langerhans cell Histiocytosis and CMML

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2021

Finally someone that understands my plight. Yes, this disease is a nightmare and when I have...

https://connect.mayoclinic.org/comment/134330/

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: Aug 11, 2018

I’m on HU since October 2021 for PV and currently taking 500 mg 4x week. Have...

https://connect.mayoclinic.org/comment/1001542/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2024

@claire39, thank you so much for your reply. I, too, have had some sort of dermatitis...

https://connect.mayoclinic.org/comment/337172/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 18, 2021