Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,401 total results

Comments (2,263)

You should look at the MPN Research Foundation webpage for information regarding ET and the JAK2...

https://connect.mayoclinic.org/comment/328564/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2020

@sdcgcarroll Hi I have ET and Jak2 as well. I haven't found alot of information about...

https://connect.mayoclinic.org/comment/1545394/

Discussion: Is it okay to take B12 with essential thrombocythemia (ET)?

Support Group: Blood Cancers & Disorders

Posted: Apr 8 7:26am

reneemichelle, thank you so much for these citations. For the third item, this link will take...

https://connect.mayoclinic.org/comment/1283002/

Discussion: Like to know more. Just told I have Triple Negative MPN.

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2025

@1pearl Since you’re new to the diagnosis of ET, you might want to look through some...

https://connect.mayoclinic.org/comment/1211379/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2025

I learned I had ET at my annual Medicare checkup 2 years ago, my platelets were...

https://connect.mayoclinic.org/comment/1191988/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2024

Does she have Polycemia Vera or just ET. I am confused. Thank you and glad she...

https://connect.mayoclinic.org/comment/1210734/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2025

Asa is an abbreviation for aspirin. Typically a low dose of 81 mg is taken we...

https://connect.mayoclinic.org/comment/1017774/

Discussion: Concerned about medications for ET JAK2

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2024

I'm 71 and have ET with JAK2 mutation. A DEXA scan earlier this month showed normal...

https://connect.mayoclinic.org/comment/998807/

Discussion: MPN and osteoporosis, any of you have insufficiency fractures?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2024

Curious if your doctors are tracking your JAK2 Variant Allele Frequency (VAF) on a regular basis?...

https://connect.mayoclinic.org/comment/1550728/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 14 8:13pm

@colleenyoung Yes, I was prescribed 20 micrograms vitamin D per day, double the recommended dose for...

https://connect.mayoclinic.org/comment/1540053/

Discussion: What is known about vitamin D and MPN?

Support Group: Blood Cancers & Disorders

Posted: Apr 1 3:11am

Re ferritin levels. Is elevated ferritin a common and related to ET? I am not being...

https://connect.mayoclinic.org/comment/877078/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2023

I'm am looking for various areas to maybe retire. Arizona is in my potential areas for...

https://connect.mayoclinic.org/comment/1314029/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: May 27, 2025

Found this resource below that you may like to browse and see how they explain ET:...

https://connect.mayoclinic.org/comment/1103304/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

That dogs get ET is fascinating!!! Do their driver proteins mutate, I wonder, or is this...

https://connect.mayoclinic.org/comment/1064621/

Discussion: Essential Thrombocythemia and relationship to stroke

Support Group: Blood Cancers & Disorders

Posted: May 9, 2024

I have ET, CAL-R and acquired Von Willebrand Disease (different from VWD) and looking for anyone...

https://connect.mayoclinic.org/comment/766766/

Discussion: Von Willebrand disease

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2022

988 when diagnosed with ET on 1/10/25 and 844 when diagnosis changed to Myelofibrosis one 2/10/25

https://connect.mayoclinic.org/comment/1281844/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2025

Hi Vicky58, There’s a large network of members in Connect who also have ET and share...

https://connect.mayoclinic.org/comment/1102781/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

Welcome to Connect, @pearly, and thank you for sharing your history. Essential thrombocythaemia (ET) is indeed...

https://connect.mayoclinic.org/comment/146291/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2017

I have had a bit of trouble with heartburn since I started HU. I didn't link...

https://connect.mayoclinic.org/comment/805754/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2023

Hi MaryLynda, I moved your question to this exiting discussion about ET so you can connect...

https://connect.mayoclinic.org/comment/641119/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2021