Blood Cancers & Disorders Support Group

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Comments (634)

My husband has had MM for over 8 years and still is not on any medication....

https://connect.mayoclinic.org/comment/1002986/

Discussion: How to know whether smoldering myeloma or multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2024

Hello As of January 29 my hemoglobin and platelets are below the normal low, I went...

https://connect.mayoclinic.org/comment/165738/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Feb 9, 2018

@5gk I feel the same ; always thinking i have done the right thing over my...

https://connect.mayoclinic.org/comment/847190/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023

@jmds66 , I was diagnosed with CLL zydeco 2020 with swollen lymph nodes and doctor put...

https://connect.mayoclinic.org/comment/842666/

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023

So glad your husband is doing well.. we were told that CLL common in older adults,...

https://connect.mayoclinic.org/comment/742344/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2022

Depending on where you live, there is a CLL leukemia and lymphoma society in Minneapolis and...

https://connect.mayoclinic.org/comment/253404/

Discussion: Chronic leukemia. Terrified bc I can’t tolerate chemo

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2019

@valeriewiegand I do not have CLL, but am dealing with multiple myeloma. Here is an article...

https://connect.mayoclinic.org/comment/777749/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2022

Hello @tinagibson. Welcome to Mayo Clinic Connect. Waiting is the worst, isn’t it? Today is Sept...

https://connect.mayoclinic.org/comment/632931/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2021

I’m so sorry you are going through this alone. My suggestion would be to locate a...

https://connect.mayoclinic.org/comment/1106460/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2024

Lori: I have one sister with a CLL diagnosis who is in the watch and wait...

https://connect.mayoclinic.org/comment/1081888/

Discussion: Why doesn't a Mayo Wellness Checkup Include a Blood Test?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2024

Hi @bosunpup, Leptomeningeal disease occurs when your cancer has spread to the meninges. The meninges line...

https://connect.mayoclinic.org/comment/335645/

Discussion: Leptomeningeal Disease and CLL

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2021

During imbruvica treatment my white count peaked in the low 40 Ks, absolute lymphocyte count 30...

https://connect.mayoclinic.org/comment/165756/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2018

I was diagnosed with CLL in February 2020...further tests led to B-PLL diagnosis. On wait and...

https://connect.mayoclinic.org/comment/605063/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: May 27, 2021

I am so sorry you are facing CLL alone! I agree with Lori - wait for...

https://connect.mayoclinic.org/comment/1106865/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2024

@bflattenor, thank you for starting a discussion on the rare diagnosis of B-PLL. While we wait...

https://connect.mayoclinic.org/comment/211042/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2018

I have had CLL/SLL for many years and have not had much treatment, but have found...

https://connect.mayoclinic.org/comment/908921/

Discussion: Had CLL for about 2 years, Dr is now thinking of treatment

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2023

My oncologist is concerned because of me being anemic. He says my iron level is good...

https://connect.mayoclinic.org/comment/824731/

Discussion: Low Iron Levels and Weakness

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2023

Hi @aleeab, Welcome to Mayo Connect. This is a perfect support group discussion for you to...

https://connect.mayoclinic.org/comment/843061/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2023

I am one of those people who has had CLL for almost 28 years. In the...

https://connect.mayoclinic.org/comment/1021015/

Discussion: CLL: How do you evaluate well-meaning tips from friends?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2024

Hi @learnknowgrow. I love your @name…I agree, knowledge is power. There is comfort in being prepared...

https://connect.mayoclinic.org/comment/1161207/

Discussion: Newly diagnosed CLL How to interpret FISH results?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2024