Blood Cancers & Disorders Support Group

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Comments (916)

I have CLL which is chronic, to keep things in perspective remember the day your born...

https://connect.mayoclinic.org/comment/1383275/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2025

I was on a 2007 Mayo study of green tea (high dose EGCG) for CLL. Results...

https://connect.mayoclinic.org/comment/772606/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2022

Hello Kellim. My understanding is that Mayo suggests 2 cups green tea per day based on...

https://connect.mayoclinic.org/comment/789997/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2022

@kellim, the article was very helpful. Were you able to determine whether the itching you're experiencing...

https://connect.mayoclinic.org/comment/962491/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

@ssid, you mentioned quite some time ago that you were going to begin treatment for your...

https://connect.mayoclinic.org/comment/165740/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2018

Hi @tinagibson, it’s been quite a long time since we’ve chatted. I wanted to do a...

https://connect.mayoclinic.org/comment/942964/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2023

I was diagnosed with CLL 7 years ago at age 64 and have had semi annual...

https://connect.mayoclinic.org/comment/623087/

Discussion: What are the best treatment for CLL? Is CAR T cell therapy an option?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2021

Hi Colleen< br>Thank you for your response. Please note that my illness is CMML. The leukemias...

https://connect.mayoclinic.org/comment/101837/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 22, 2016

Have you been tested for Allergic Contact Dermatitis, ACD? Google the 5 Day Extended Patch Test....

https://connect.mayoclinic.org/comment/959339/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2023

Hi @sue58. Welcome to Connect and thank for sharing your husband’s experience with CLL. It’s positive...

https://connect.mayoclinic.org/comment/1014920/

Discussion: CLL: Has anyone experienced symptoms at Stage 0?

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2024

Hi @johnwhitley, I want to officially welcome you to Connect. It looks like you’ve been a...

https://connect.mayoclinic.org/comment/1320733/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2025

I have CLL I am taking ACYCLOVIR 400mg. Q12 H and CALQUENCE. 100mg. Q12 H. Should...

https://connect.mayoclinic.org/comment/1011541/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2024

@lisascherer1 Hi Lisa. I’m so glad you found us too. I think you’ll like it here....

https://connect.mayoclinic.org/comment/1514304/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Feb 25 10:10am

I was recently diagnosed with cLL and a Mass on my Uterus… It is slow growing...

https://connect.mayoclinic.org/comment/1258295/

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 15, 2025

@sweetsuzy I am delighted to hear from you, Suzy! As you say, we are similar in...

https://connect.mayoclinic.org/comment/1513399/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Feb 24 8:24am

Yes, I have a chronic fatigue--which is what prompted me to see my doctor 3 years...

https://connect.mayoclinic.org/comment/806066/

Discussion: Newly Diagnosed CLL Patients: Do you struggle with symptoms?

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2023

I do not have CLL, but had a rash for 9 months that sounded identical to...

https://connect.mayoclinic.org/comment/865819/

Discussion: MGUS & Rash

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

I am fortunate as I am in stage 0 and may never need treatment due to...

https://connect.mayoclinic.org/comment/1094116/

Discussion: Anybody on Treatment for CLL? What kind of treatment?

Support Group: Blood Cancers & Disorders

Posted: Jun 25, 2024

hi stu. my name is al and i live in atlanta. i was diagnosed with cll...

https://connect.mayoclinic.org/comment/789436/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2022

Welcome to the wonderful l world of CLL where we patiently engage in watchful waiting. I...

https://connect.mayoclinic.org/comment/1019871/

Discussion: CLL - Blood work Completed IGVA Mutation Analysis

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2024