Blood Cancers & Disorders Support Group

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Comments (867)

At my November 2021 Wellness Checkup by my Mayo Family Physician I was told I was...

https://connect.mayoclinic.org/comment/994345/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

I opted to continue treatments because my oncologist said there are many. At Stage 1 I...

https://connect.mayoclinic.org/comment/1098455/

Discussion: Should all multiple myeloma patients look into stem cell transplant?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

Although my Mayo physician says my side effects are more than most taking this treatment, I...

https://connect.mayoclinic.org/comment/195547/

Discussion: Darzalex Treatment

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2018

@bocky Greetings and welcome to Mayo Clinic Connect. I would like to share a link with...

https://connect.mayoclinic.org/comment/1149470/

Discussion: Does MGUS cause red blood cells (RBCs) to drop?

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2024

I’m in Little Rock Arkansas and although the University of Arkansas for Medical Sciences has a...

https://connect.mayoclinic.org/comment/723075/

Discussion: Question to ask about MGUS Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2022

@becsbuddy, I'd like to bring fellow members into this discussion: @kandc317 and @larsmayo who have experience...

https://connect.mayoclinic.org/comment/325353/

Discussion: New to Cytoxan (cyclophosphamide)—advice and help appreciated

Support Group: Autoimmune Diseases

Posted: Oct 17, 2020

Hi, Lori, I was diagnosed with Multiple Myeloma April of 2023. I am currently being evaluated...

https://connect.mayoclinic.org/comment/949982/

Discussion: Propofol for bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2023

I have gone from having MGUS to now Smoldering Multiple Myeloma. I have labs every 3...

https://connect.mayoclinic.org/comment/50116/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2011

I have multiple myeloma and had a stem cell transplant January 2025. I am not able...

https://connect.mayoclinic.org/comment/1374903/

Discussion: Does anyone have lymphoma and no measles immunity?

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2025

Hello Carleen, The last time I was at a multiple Myeloma conference was a few years...

https://connect.mayoclinic.org/comment/74615/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2020

You didn't mention your Stage. . . 1, 2, or 3. You should ask for a...

https://connect.mayoclinic.org/comment/1461532/

Discussion: A Summary of My Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2025

The causes of multiple myeloma are not known, but many risk factors are. (A risk factor...

https://connect.mayoclinic.org/comment/1357447/

Discussion: Question to ask about MGUS Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2025

@huron Welcome to Mayo Clinic Connect! If you go to the blood cancer support group, which...

https://connect.mayoclinic.org/comment/1276417/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2025

@vera101 If you are not under the care of a hematologist oncologist, please consider getting an...

https://connect.mayoclinic.org/comment/1000202/

Discussion: Multiple myeloma: When to treat? When not to treat?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2024

@cctoo Sometimes the medical group will call it MGUS for insurance/blood test reasons, while your dr...

https://connect.mayoclinic.org/comment/81216/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2020

Request the large packet of information regarding Multiple Myeloma from Mayo staff. It is like returning...

https://connect.mayoclinic.org/comment/1121530/

Discussion: Should all multiple myeloma patients look into stem cell transplant?

Support Group: Blood Cancers & Disorders

Posted: Aug 11, 2024

Hello. Here are the IMWG (International Myeloma Working Group) criteria for Diagnosis of MGUS, Smoldering Multiple...

https://connect.mayoclinic.org/comment/1447846/

Discussion: Do my blood tests results indicate MGUS or MM?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2025

Welcome! I was diagnosed with SMM in Sept. 2020. I do blood work every three months...

https://connect.mayoclinic.org/comment/809917/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2023

@carolesg It's called multiple myeloma for a reason. There are several different types of myeloma. And...

https://connect.mayoclinic.org/comment/1106103/

Discussion: Stopping Myeloma at the MGUS Stage

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2024

Hi @krismikkalson. Welcome to Connect. Plasma Cell Leukemia looks to be a bit of a rare...

https://connect.mayoclinic.org/comment/1217307/

Discussion: Anyone with Plasma Cell Leukemia or family?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2025