Blood Cancers & Disorders Support Group

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Comments (916)

Welcome @user_ch3a1e07f, @mamaellie and @bjsdancer. @scmsable recently also joined Connect. I moved your messages to this...

https://connect.mayoclinic.org/comment/73346/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2016

If you haven't already, I'd consult with my doctor to make sure it's not an infection....

https://connect.mayoclinic.org/comment/1131956/

Discussion: Bone Marrow Aspiration - Long Term Pain Expecations

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2024

Welcome @cappyak. I found several discussions and comments from members in the forum who have also...

https://connect.mayoclinic.org/comment/1371860/

Discussion: Is anyone dealing the effects of Xgeva?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2025

@amyboylan1 It's natural to be apprehensive when we get a diagnosis like this. There are a...

https://connect.mayoclinic.org/comment/1112772/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

In 2021 I was diagnosed with multiple myeloma and amyloidosis. Stanford put me on a drug...

https://connect.mayoclinic.org/comment/1413538/

Discussion: Has anyone gone through remission without SCT or CAR-T

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2025

I've had IgA kappa light chain MGUS for 8 years (I'm 70). My current kappa is...

https://connect.mayoclinic.org/comment/1168428/

Discussion: Kappa light chains: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2024

Greetings. It’s a lot to take in, isn’t it? The hematologist surely would refer you to...

https://connect.mayoclinic.org/comment/829705/

Discussion: Kappa light ratio and beta 2 microglobin

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2023

Hello. I am sorry you are so deep into this. I am in the beginning of...

https://connect.mayoclinic.org/comment/1532656/

Discussion: Post CAR-T failure, is there hope?

Support Group: Blood Cancers & Disorders

Posted: Mar 22 9:01am

I was diagnosed with MGUS recently based on an elevated kappa lambda ratio and elevated kappa...

https://connect.mayoclinic.org/comment/1038588/

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2024

I, too, am 72 and was diagnosed 3 months ago with MGUS with iron defiency. Had...

https://connect.mayoclinic.org/comment/894625/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2023

Hi all, you may also be interested in these related discussions: - Any suggestions to alleviate...

https://connect.mayoclinic.org/comment/1372545/

Discussion: Is anyone else suffering from bone pain due to multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2025

At my November 2021 Wellness Checkup by my Mayo Family Physician I was told I was...

https://connect.mayoclinic.org/comment/994345/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

@baps6194 hello Sean and welcome to the Mayo Clinic Connect. Boy I remember when I had...

https://connect.mayoclinic.org/comment/1333428/

Discussion: In regard to lab results

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2025

I opted to continue treatments because my oncologist said there are many. At Stage 1 I...

https://connect.mayoclinic.org/comment/1098455/

Discussion: Should all multiple myeloma patients look into stem cell transplant?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

@bocky Greetings and welcome to Mayo Clinic Connect. I would like to share a link with...

https://connect.mayoclinic.org/comment/1149470/

Discussion: Does MGUS cause red blood cells (RBCs) to drop?

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2024

I’m in Little Rock Arkansas and although the University of Arkansas for Medical Sciences has a...

https://connect.mayoclinic.org/comment/723075/

Discussion: Question to ask about MGUS Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2022

Hi, Lori, I was diagnosed with Multiple Myeloma April of 2023. I am currently being evaluated...

https://connect.mayoclinic.org/comment/949982/

Discussion: Propofol for bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Oct 18, 2023

@becsbuddy, I'd like to bring fellow members into this discussion: @kandc317 and @larsmayo who have experience...

https://connect.mayoclinic.org/comment/325353/

Discussion: New to Cytoxan (cyclophosphamide)—advice and help appreciated

Support Group: Autoimmune Diseases

Posted: Oct 17, 2020

I have multiple myeloma and had a stem cell transplant January 2025. I am not able...

https://connect.mayoclinic.org/comment/1374903/

Discussion: Does anyone have lymphoma and no measles immunity?

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2025

I have gone from having MGUS to now Smoldering Multiple Myeloma. I have labs every 3...

https://connect.mayoclinic.org/comment/50116/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2011

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