Blood Cancers & Disorders: Discussions | Page 17

My tests (done a year ago) came back positive for JAK2 V617F. I take a baby...

https://connect.mayoclinic.org/comment/1024971/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 29 12:52pm

Does have tested positive for JAK2 mutation mean you have a MPN? Very confused. I was...

https://connect.mayoclinic.org/comment/763106/

Discussion: Polycythemia: Are you asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2022

My official PV diagnosis came after blood tests confirmed by positive JAK2 result.. No bone marrow...

https://connect.mayoclinic.org/comment/894762/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

Welcome to the club. Almost 71 yo woman w/ET a few months now. Platelets are in...

https://connect.mayoclinic.org/comment/848468/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2023

Most on this site say that they are prescribed baby aspirin along with HU. I was...

https://connect.mayoclinic.org/comment/837314/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2023

I was diagnosed with Jak2 in 2019 and have been taking the hydra drug and I...

https://connect.mayoclinic.org/comment/194372/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2021

Hi Lisa, my story is very similar to sregiani— ET with Jak2 mutation — Only my...

https://connect.mayoclinic.org/comment/1162618/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25 11:59am

My daughter was recently diagnosed with JAK2. She has had two iron treatments and has another...

https://connect.mayoclinic.org/comment/328577/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2021

I was misdiagnosed at the VA Hospital with ET in December of 2018. Didn't believe a...

https://connect.mayoclinic.org/comment/57939/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2020

It seems that different people need different doses. What you're doing is working for you --...

https://connect.mayoclinic.org/comment/1047264/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 8 8:40am

After reading that so many JAK2 people experience being weak or tired, and have balance issues,...

https://connect.mayoclinic.org/comment/194344/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2019

Though I was diagnosed with ET, and JAK2 this summer, I still hesitate to take Hydrea...

https://connect.mayoclinic.org/comment/770145/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2022

ET stands for Essential Thrombocytosis. , I have this also and with a JAK2 mutation. If...

https://connect.mayoclinic.org/comment/919462/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2023

Thanks. It's helpful to hear your experience. Did your platelets stay stable over time and then...

https://connect.mayoclinic.org/comment/943016/

Discussion: Pros and Cons of JAK2 testing

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2023

Hi Linda, I am 80 and have been dealing with ET JAK2 for over two years....

https://connect.mayoclinic.org/comment/1146959/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 25 6:01am

Hi, Lynnevb, I am curious as to why you went on hydrea after being on aspirin...

https://connect.mayoclinic.org/comment/1151729/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Oct 4 9:24am

Some people are just advised to take a low dose aspirin for protection against clots. Great...

https://connect.mayoclinic.org/comment/773808/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2022

Hi @mgrimes5, I's like to welcome you to Mayo Clinic Connect. You came to the right...

https://connect.mayoclinic.org/comment/325699/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Oct 22, 2020

Thank you for info. My son does have a hematologist and has been checked for Jak2....

https://connect.mayoclinic.org/comment/252018/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2019

Hi @taisaint, You’re absolutely in the right section…no worries. ☺️. You have a great daughter who...

https://connect.mayoclinic.org/comment/968475/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2023

Blood Cancers & Disorders Support Group