Blood Cancers & Disorders Support Group

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Comments (925)

I am also fairly new to CLL. My primary found an elevated WBC. However, I was...

https://connect.mayoclinic.org/comment/1316001/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 29, 2025

Wanting to know information concerning treatment with Brukinsa(zanabrutinib) versus Bendamustine and Rituxan for CLL What are...

https://connect.mayoclinic.org/comment/800065/

Discussion: Starting Bendamustine and Rituxin for Follicular Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2023

Hi guys - I'm Bob, an over 4 year carrier of CLL. Yesterday I gave up...

https://connect.mayoclinic.org/comment/603866/

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: May 22, 2021

Hello @coralbells1 As I'm not familiar with this disorder, I looked it up on Mayo Clinic's...

https://connect.mayoclinic.org/comment/324274/

Discussion: What causes Neutropenia?

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2020

I'm 58 and was diagnosed with CLL about 6 months ago. The WBC and HGC counts...

https://connect.mayoclinic.org/comment/1112465/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2024

I have the prothrombin mutation along with Factor V Leiden. I also have CLL and a...

https://connect.mayoclinic.org/comment/913820/

Discussion: Factor ll prothrombin mutation

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2023

Hi @marytheresacll It’s been a couple of months since we spoke last. I think you were...

https://connect.mayoclinic.org/comment/1061227/

Discussion: CLL: Has anyone experienced symptoms at Stage 0?

Support Group: Blood Cancers & Disorders

Posted: May 3, 2024

I’m on long term study of ZANUBRUTINIB. After 8-1/2 years it’s still keeping CLL under control....

https://connect.mayoclinic.org/comment/1405711/

Discussion: Treatment for CLL: Any experiences with Brukinsa (zanobrutinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2025

Chronic lymphocytic leukemia (also called CLL) is a cancer of the blood and bone marrow. Read...

https://connect.mayoclinic.org/comment/866629/

Discussion: CLL complicated by autoimmune hemolytic anemia (AIHA)

Support Group: Blood Cancers & Disorders

Posted: May 25, 2023

What made the doctor invesitgate? I have been diagnosed with CLL and SLL not really understanding...

https://connect.mayoclinic.org/comment/813968/

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2023

I’ve had a CLL for greater than 14 years without symptoms, but increasing WBC and decreasing...

https://connect.mayoclinic.org/comment/304662/

Discussion: CLL complicated by autoimmune hemolytic anemia (AIHA)

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2020

Bettersleep68- Remission versus regression- whatever they call it we're blessed. What form of leukemia do you...

https://connect.mayoclinic.org/comment/1386383/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2025

I'm so sorry that you've experienced such horrible effects of CLL. I pray that you recover...

https://connect.mayoclinic.org/comment/1399884/

Discussion: Has anyone lost fingers/toes to B cell antibodies impacting Platelets

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2025

I have been on Hydroxyurea for 5.5 years with virtually no side effects (other than my...

https://connect.mayoclinic.org/comment/947310/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2023

@glueski The initial trial was very small at Mayo--Mayo only was allotted six slots and included...

https://connect.mayoclinic.org/comment/1525285/

Discussion: How are you managing Brukinsa side effects?

Support Group: Blood Cancers & Disorders

Posted: Mar 12 10:52am

I have stage 0 CLL and my oncologist does not believe that is the cause of...

https://connect.mayoclinic.org/comment/1258363/

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 15, 2025

Hi @tina, It’s been quite a while since we’ve chatted. I hope ‘no news is good...

https://connect.mayoclinic.org/comment/1056387/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2024

I am still intrigued with when all my symptoms started because a few days after my...

https://connect.mayoclinic.org/comment/1094497/

Discussion: Is possible to know how long ago I got CLL?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

Hi @gg17, I assume you were prescribed cyclosporine to help manage chronic lymphocytic leukaemia and AIHA...

https://connect.mayoclinic.org/comment/326817/

Discussion: Cyclosporine and kidney issues

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2020

2 years ago I went to my PCP for a yearly physical (I was 53 at...

https://connect.mayoclinic.org/comment/1101774/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Jul 8, 2024