Blood Cancers & Disorders Support Group

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Comments (896)

I have stage 0 CLL and my oncologist does not believe that is the cause of...

https://connect.mayoclinic.org/comment/1258363/

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 15, 2025

I'm not so sure about that. I don't have CLL but something similar in nature. I...

https://connect.mayoclinic.org/comment/1522738/

Discussion: Sudden weight loss and decrease in appetite

Support Group: Blood Cancers & Disorders

Posted: Mar 8 6:32pm

I am still intrigued with when all my symptoms started because a few days after my...

https://connect.mayoclinic.org/comment/1094497/

Discussion: Is possible to know how long ago I got CLL?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

Hi @gg17, I assume you were prescribed cyclosporine to help manage chronic lymphocytic leukaemia and AIHA...

https://connect.mayoclinic.org/comment/326817/

Discussion: Cyclosporine and kidney issues

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2020

2 years ago I went to my PCP for a yearly physical (I was 53 at...

https://connect.mayoclinic.org/comment/1101774/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Jul 8, 2024

Hi @tina, It’s been quite a while since we’ve chatted. I hope ‘no news is good...

https://connect.mayoclinic.org/comment/1056387/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2024

I was on a 2007 Mayo study of green tea (high dose EGCG) for CLL. Results...

https://connect.mayoclinic.org/comment/772606/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2022

I don’t know what to think my blood came back with CLL Now my doc is...

https://connect.mayoclinic.org/comment/957315/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2023

@normahorn Thats good! I have no nightsweats; im feeling well ; i would have never known...

https://connect.mayoclinic.org/comment/843747/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2023

I have CLL which is chronic, to keep things in perspective remember the day your born...

https://connect.mayoclinic.org/comment/1383275/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2025

Hi @tinagibson, it’s been quite a long time since we’ve chatted. I wanted to do a...

https://connect.mayoclinic.org/comment/942964/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2023

I was diagnosed with CLL 7 years ago at age 64 and have had semi annual...

https://connect.mayoclinic.org/comment/623087/

Discussion: What are the best treatment for CLL? Is CAR T cell therapy an option?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2021

Hi Colleen< br>Thank you for your response. Please note that my illness is CMML. The leukemias...

https://connect.mayoclinic.org/comment/101837/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 22, 2016

@kellim, the article was very helpful. Were you able to determine whether the itching you're experiencing...

https://connect.mayoclinic.org/comment/962491/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

@ssid, you mentioned quite some time ago that you were going to begin treatment for your...

https://connect.mayoclinic.org/comment/165740/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2018

Hello Kellim. My understanding is that Mayo suggests 2 cups green tea per day based on...

https://connect.mayoclinic.org/comment/789997/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2022

Have you been tested for Allergic Contact Dermatitis, ACD? Google the 5 Day Extended Patch Test....

https://connect.mayoclinic.org/comment/959339/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2023

Hi @johnwhitley, I want to officially welcome you to Connect. It looks like you’ve been a...

https://connect.mayoclinic.org/comment/1320733/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2025

Hi @sue58. Welcome to Connect and thank for sharing your husband’s experience with CLL. It’s positive...

https://connect.mayoclinic.org/comment/1014920/

Discussion: CLL: Has anyone experienced symptoms at Stage 0?

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2024

@pammyd please tell me what prompted you to start therapy. My husband is still on W&W...

https://connect.mayoclinic.org/comment/1472401/

Discussion: CLL Treatment side effects are wearing me down: Anything I can do?

Support Group: Blood Cancers & Disorders

Posted: Jan 1 5:33pm