Blood Cancers & Disorders Support Group

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Comments (771)

I treat my CLL related itch with an antihistamine called cetrine which works brilliantly. For some...

https://connect.mayoclinic.org/comment/960431/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2023

Hi @skycountry, welcome to Mayo Connect. I’m happy you found us. We have quite a few...

https://connect.mayoclinic.org/comment/798137/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2023

Ah, there’s nothing like holding your breath, for what seems like months, and finally being able...

https://connect.mayoclinic.org/comment/850505/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2023

After I had to get off of imbruvica (due to that type of drug not working...

https://connect.mayoclinic.org/comment/211177/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2020

Hi, @profrich, and welcome to Mayo Clinic Connect. You mentioned being in the same boat. Just...

https://connect.mayoclinic.org/comment/101850/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2018

My blood's been clear of CLL markers for 15 years and I don't remember the brand...

https://connect.mayoclinic.org/comment/1327191/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Jun 14 3:23pm

I’m not having any treatments as I don’t have any symptoms of CLL. It was picked...

https://connect.mayoclinic.org/comment/998102/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2024

Since 7.8 is firmly in the normal range, my guess is that the question means what...

https://connect.mayoclinic.org/comment/1112936/

Discussion: I've had CML for 20 years and want to encourage others

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

@bosunpup, I'm not surprised that you're not finding much information about LMD or acalabrutinib. For patients...

https://connect.mayoclinic.org/comment/335647/

Discussion: Leptomeningeal Disease and CLL

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2021

A green tea extract has shown some promise in initial clinical trials for treating chronic lymphocytic...

https://connect.mayoclinic.org/comment/335863/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2021

I have CLL as does my mom. CLL is a chronic illness that doesn't typically come...

https://connect.mayoclinic.org/comment/956807/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Oct 31, 2023

It may be useful to review the policies of various insurance companies to see what they...

https://connect.mayoclinic.org/comment/1294846/

Discussion: Can anyone advise about what insurance best covers immunotherapies?

Support Group: Blood Cancers & Disorders

Posted: May 2 9:06am

I didn’t have the burning sensation until after my diagnosis. My hematologist said it didn’t have...

https://connect.mayoclinic.org/comment/996587/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

I was diagnosed with CLL in about Jan 2023. Wait and watch. I go back in...

https://connect.mayoclinic.org/comment/842995/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2023

I'm 80 years young, was diagnosed with CLL in 2004 and was under Dr P. Kaywin...

https://connect.mayoclinic.org/comment/113600/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2017

As a note about what is happening, I am on active "Watch & Wait" protocol and...

https://connect.mayoclinic.org/comment/1317873/

Discussion: Latest blood draw

Support Group: Blood Cancers & Disorders

Posted: Jun 1 10:45am

hi，carl50！You've been monitoring your CLL for many years now, and it's still not requiring treatment. I'd...

https://connect.mayoclinic.org/comment/1087533/

Discussion: Metformin and its impact on SLL/CLL treatment?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

Leave it to me to be the rarest case ever! I just knew with all these...

https://connect.mayoclinic.org/comment/908248/

Discussion: Had CLL since 1996 & Now NETs-Anyone Else?

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2023

Hi @bostongirl, I hope you saw the helpful post from @fortunateoldguy. I'm also tagging other members...

https://connect.mayoclinic.org/comment/1094510/

Discussion: To continue or stop Venclexta treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

@elissams143 heres my concern; i was told by hematologist CLL and SLL are the same thing?...

https://connect.mayoclinic.org/comment/847534/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023