Blood Cancers & Disorders Support Group

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Comments (337)

I was diagnosed w Polycythemia Vera in 2020 when routine lab work showed HCT of 61.3....

https://connect.mayoclinic.org/comment/737723/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2022

After three Phlebotomies, I went from 720 down to 410 on platelets and 50 down to...

https://connect.mayoclinic.org/comment/1171914/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2024

Hi, I hopefully have some answers for you...and many of you! I also have been trying...

https://connect.mayoclinic.org/comment/198912/

Discussion: High Levels of Vitamin B12 and Ferritin: Any pointers?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2019

Hi @nyjean. Hopefully I can answer your question about PV and ET. Those two conditions, along...

https://connect.mayoclinic.org/comment/1066510/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2024

Good morning, Wendy! I’m sitting here in front of the fireplace this morning snuggled in a...

https://connect.mayoclinic.org/comment/919632/

Discussion: PV with high blood pressure and now edema??

Support Group: Blood Cancers & Disorders

Posted: Aug 27, 2023

Not sure I understand that question. About a yr and 1/2 ago. My Hgb/HCT was found...

https://connect.mayoclinic.org/comment/662436/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2021

I have PV with the JAK22 postive mutation. I Noticed over time that my Hemoglobin and...

https://connect.mayoclinic.org/comment/1402845/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2025

Hello Lori. Thank you for your response and congratulations in apparently overcoming leukemia. My Wife has...

https://connect.mayoclinic.org/comment/912090/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

@colleenyoung @christina3444 Thank you for reaching out Colleen & Christina. I so appreciate it. Honestly, I'm...

https://connect.mayoclinic.org/comment/1464096/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2025

Ive just been diagnosed with the JK2 gene mutation a few months ago. I'm 75 ....

https://connect.mayoclinic.org/comment/836250/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

Hi Wendy, it’s my pleasure to help any way I can. Going through my leukemia and...

https://connect.mayoclinic.org/comment/876086/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2023

Good morning, @sudutoo. I hope you have your reading glasses on! You have a lot of...

https://connect.mayoclinic.org/comment/1050553/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2024

Hi @katrink I was diagnosed with PV in July 2024. I had been feeling a bit...

https://connect.mayoclinic.org/comment/1401933/

Discussion: Diagnosed with Polycythemia Vera in August. I was given Hdroxyurea

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2025

I woud like to reply to the 26 year old who believes she/he has pylocythemia Jak2...

https://connect.mayoclinic.org/comment/1471523/

Discussion: Diagnosed polycythemia vera at 26: Any young PV patients out there?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2025

Hi Colleen. I was diagnosed with Polycytemia vera. Currently being treated with hydroxyurea and aspirin since...

https://connect.mayoclinic.org/comment/1464085/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2025

I’ve just been diagnosed with polycythaemia Vera a blood cancer and would love to hear from...

https://connect.mayoclinic.org/comment/1434572/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2025

@lyd0218 My personal experience The symptoms you mentioned I had and suffered from them ! I...

https://connect.mayoclinic.org/comment/1421550/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2025

Hi there/ this is my second time posting for fatigue with a more clear idea of...

https://connect.mayoclinic.org/comment/601674/

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: May 14, 2021

Thank you Lori. I think there is a misunderstanding here, you appear to have misunderstood me...

https://connect.mayoclinic.org/comment/936285/

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2023

Hi, A friend has been diagnosed with polycythaemia vera very recently and is in a bit...

https://connect.mayoclinic.org/comment/811484/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2023