Blood Cancers & Disorders Support Group

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Comments (486)

Hello Lynn, I was diagnosed during a spine surgery with platelets in the mid 700s in...

https://connect.mayoclinic.org/comment/838658/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2023

Mom just had her bloodwork this week… everything is stable… high things were still high… low...

https://connect.mayoclinic.org/comment/1336307/

Discussion: Newly diagnosed MDS-IB2 and vidaza

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2025

Hi Eileen, So i have been in Pegasys for 3 months now. I inject once a...

https://connect.mayoclinic.org/comment/807365/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

I am new to this, so all I will do at this point is explain my...

https://connect.mayoclinic.org/comment/1357124/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2025

Hi Lori, started couple days ago but didn't pay attention until I weighed myself and no...

https://connect.mayoclinic.org/comment/916493/

Discussion: PV with high blood pressure and now edema??

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2023

I was started on 500 mg per day, then up to three extra per week after...

https://connect.mayoclinic.org/comment/1177399/

Discussion: palmar-plantar erythrodysesthesia and ET

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2024

Good question! I am sorry you're experiencing these problems. Looking back, are you having more dizziness/brain...

https://connect.mayoclinic.org/comment/1180614/

Discussion: Lightheadedness, Brain fog, Itchy: Side effects of HU or ET itself?

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2024

I have also experienced “motility” issues over the past few months and decided it might just...

https://connect.mayoclinic.org/comment/1316619/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 30, 2025

Hi Lori - Judy here keeping you posted. Cutting my Tasigna from 600 mg to 300...

https://connect.mayoclinic.org/comment/765651/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2022

I was originally miss diagnosed with polycythemia Vera. Because I was borderline anemic and I worked...

https://connect.mayoclinic.org/comment/1044688/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2024

I am so fortunate with my Mycosis fungoides which I call CTCL, as I was diagnosed...

https://connect.mayoclinic.org/comment/943799/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

Hi my name is Jacklyn and I have been diagnosed with AML progressing from CMMl. My...

https://connect.mayoclinic.org/comment/1337842/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2025

Hi. Your case sounds similar to mine. I was diagnosed 3 years ago. I take 500mg...

https://connect.mayoclinic.org/comment/1515821/

Discussion: What vitamins to avoid when taking Hydrea (hydroxyurea) for ET JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 27 11:36am

Hi @markgventnor, welcome to the forum. It’s interesting that you posted about a rash as I...

https://connect.mayoclinic.org/comment/994338/

Discussion: MGUS & Rash

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

I am not a farmer but I have ET (essential thrombocythemia). I have had it for...

https://connect.mayoclinic.org/comment/913030/

Discussion: Male 65 year old farmer with thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

Hi Lori. Well I was supposed to start my treatment this week. When I saw my...

https://connect.mayoclinic.org/comment/1353457/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2025

During a 5th spine surgery at age 79, I was diagnosed with Jak2 mutation. My platelet...

https://connect.mayoclinic.org/comment/801488/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2023

About 3 years ago I had what I thought was a bug bite on my shin,...

https://connect.mayoclinic.org/comment/701623/

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2022

I was diagnosed with CMML 9 years ago, and after a BMB they added myelofibrosis to...

https://connect.mayoclinic.org/comment/1435240/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2025

Well I got my results back from my blood test and the hydroxyurea brought my white...

https://connect.mayoclinic.org/comment/1335937/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2025