Blood Cancers & Disorders Support Group

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Comments (418)

I'm CALR, too. Been on HU for 6 years and bloodwork very stable in 400s once...

https://connect.mayoclinic.org/comment/1089100/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024

Thank you so very much! I haven’t actually donated blood yet. It was thrown out as...

https://connect.mayoclinic.org/comment/1277461/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 8 9:33pm

caitie, you didn't mention any medications. A large percentage of the population are deficient in magnesium....

https://connect.mayoclinic.org/comment/257515/

Discussion: ET - Essential Thrombocythemia & Fainting

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2020

Hi All, I was officially diagnosed with Mycosis Fungoides several years ago, after several years with...

https://connect.mayoclinic.org/comment/943782/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

Kappa light chain IgM- MGUS Anyone else suffering from MGUS? Mine is slowly progressing and at...

https://connect.mayoclinic.org/comment/731433/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2022

Hi Everyone.....Wishing you all the warmest, family filled holidays. Since my platelet count has dropped back...

https://connect.mayoclinic.org/comment/978074/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2023

ME!! It’s the itching that drives me insane! I’ve tried, Sarna, it seems to help! I...

https://connect.mayoclinic.org/comment/823983/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2023

Good morning, @pinkflamingo. Your @name made me smile and think fondly of Florida this spring morning....

https://connect.mayoclinic.org/comment/836087/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

ET jacks up histamine production. I'm not sure researchers know why this is part of the...

https://connect.mayoclinic.org/comment/1259381/

Discussion: ET Jak2 mutation itching

Support Group: Blood Cancers & Disorders

Posted: Mar 16 10:27am

Well, I’ve been taking it for about 5 years for PV. I’m 77. I’d love to...

https://connect.mayoclinic.org/comment/1289774/

Discussion: Started Hydroxyurea 5 weeks . How long does the fatigue last?

Support Group: Blood Cancers & Disorders

Posted: Apr 25 2:29pm

Yes, I certainly had many of the common CLL/SLL signs and symptoms. Intense fatigue and tiredness,...

https://connect.mayoclinic.org/comment/1056602/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2024

Hi, my Mom was diagnosed with Polycythemia Vera after her labs went crazy. They did not...

https://connect.mayoclinic.org/comment/718613/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2022

Hello Donna, I've been waiting to see some results before I answered you. The third day...

https://connect.mayoclinic.org/comment/747426/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2022

Hi Justin, I have been thinking that maybe I should get another opinion at Mayo because...

https://connect.mayoclinic.org/comment/188873/

Discussion: Is Idiopathic Erythrocytosis (Polycythemia) cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2018

Agree regarding the itching - tops of hands, chest, back (where I cannot reach!), and arms....

https://connect.mayoclinic.org/comment/1316060/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: May 29 6:48pm

Hello, I am new here but wanted to ask a few questions. I am waiting on...

https://connect.mayoclinic.org/comment/1276146/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 7 7:15am

Lori: My reply was somewhat in jest, but not entirely. But, yes, for several years I...

https://connect.mayoclinic.org/comment/1081863/

Discussion: Why doesn't a Mayo Wellness Checkup Include a Blood Test?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2024

congrats! I think Posted by samlupowitz @samlupowitz, 2 days ago yep; Florida Here too (Allergy to...

https://connect.mayoclinic.org/comment/802880/

Discussion: Myelofibrosis or long Covid?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2023

I have diagnosis found during normal blood screen prior to procedure. Seen two hematologist both specialist...

https://connect.mayoclinic.org/comment/912113/

Discussion: Male 65 year old farmer with thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

I have PV JAK2 diagnosis in fact I changed hematologists and the second Hematologist asked if...

https://connect.mayoclinic.org/comment/1095124/

Discussion: I was diagnosed with Polycythemia vera last Sept. Is pain normal?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2024