Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

372 total results

Comments (328)

My husband: MF and ET diagnosed 25 years ago at age 40. I lead with this...

https://connect.mayoclinic.org/comment/1230159/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2025

I am having both an endoscopy and a colonoscopy to look for bleeding because my iron...

https://connect.mayoclinic.org/comment/762993/

Discussion: Myeloproliferative neoplasm Anyone else have a similar diagnoses?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2022

I was diagnosed with high platelets after a blood test in January 2025. My previous July...

https://connect.mayoclinic.org/comment/1348757/

Discussion: Question about how you each received your diagnosis of MPN

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2025

Good morning, @onthejoedock. These are lovely photos of your handsome husband…so active and vital. But the...

https://connect.mayoclinic.org/comment/1082921/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2024

Hi @nyjean. Hopefully I can answer your question about PV and ET. Those two conditions, along...

https://connect.mayoclinic.org/comment/1066510/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2024

Hi @lyno29, You posted: “I’m choosing not to do chemo, even though my doctor recommends it....

https://connect.mayoclinic.org/comment/1230545/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2025

Hi @monarenae Welcome to Mayo Clinic Connect! In this community based forum, we’re not medical professionals...

https://connect.mayoclinic.org/comment/609161/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2021

Hi @bettyk49 I see you’re new to our forum and I’m happy you found us. You...

https://connect.mayoclinic.org/comment/808138/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

Per the Mayo Clinic, thrombocytosis is having too many red platelets. What I read says thrombocytopenia...

https://connect.mayoclinic.org/comment/1382460/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Aug 30, 2025

@birgitr dear, My goodness, you should have no hesitation using your newly acquired English skills! Talk...

https://connect.mayoclinic.org/comment/1490969/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 26 10:32am

I was diagnosed with Essential Thrombocythemia Hemorrhage in 01/2009 during my yearly physical. My doctor prescribed...

https://connect.mayoclinic.org/comment/802144/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2023

Hi, @dewz13 You pose an interesting question! “Does anyone know if we can still donate organs...

https://connect.mayoclinic.org/comment/1592159/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jun 6 4:38pm

Good morning everyone! I am a 50 year old female and went to get my annual...

https://connect.mayoclinic.org/comment/756950/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2022

Thank you you made me feel more hopeful. I am 78yrs. old and was just diagnosed...

https://connect.mayoclinic.org/comment/972925/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2023

Hi and best wishes and prayers for you and your wife, OP. I'll share my experience...

https://connect.mayoclinic.org/comment/1403985/

Discussion: My wife tested positive for jak2 and has high platelet count

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2025

Hi @1pearl, I’m putting together pieces of your ET puzzle. When we first spoke the other...

https://connect.mayoclinic.org/comment/1231285/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2025

Thanks for your reply. My shortness of breath is a complication from my cardiac microvascular disease...

https://connect.mayoclinic.org/comment/822913/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2023

does anyone have the following rare blood cancer essential thrombocythaemia - Ive just been diagnosed

https://connect.mayoclinic.org/comment/876064/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2023

Hi I was just diagnosed with Primary Thrombocythmia. I actually think I have had this for...

https://connect.mayoclinic.org/comment/820477/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2023

Hi, Karen here. I was diagnosed about a month ago with Essential Thrombocytosemia, the rate type....

https://connect.mayoclinic.org/comment/783499/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2022

1
…
14
15
16
17