Blood Cancers & Disorders Support Group

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Comments (634)

Dear Boocat, I have CLL and want to take the EGCG. I have read somewhere that...

https://connect.mayoclinic.org/comment/799205/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2023

CLL was a shocker to me, too. But, I'm in stage Zero where it's just watched....

https://connect.mayoclinic.org/comment/739400/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Aug 19, 2022

I'm one the 1% who have CLL, which is considered chronic, incurable, go into what is...

https://connect.mayoclinic.org/comment/946358/

Discussion: Diagnosed with chronic lymphocytic leukemia: What can I do?

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2023

Hi @wmisyr, Chronic Lymphatic Leukemia (CLL) is generally a slowly developing blood disease. So it’s not...

https://connect.mayoclinic.org/comment/765480/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2022

Hello @pebbles I'm glad that you shared some websites for CLL. In your first post, you...

https://connect.mayoclinic.org/comment/238069/

Discussion: CLL - Referral to CLL Specialist

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2019

Welcome to Connect, @mylove. Your @name is so sweet. I’m thinking you and your husband may...

https://connect.mayoclinic.org/comment/1061974/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

Hi Kellim, I am 84 and diagnosed w CLL just over 2 years and have been...

https://connect.mayoclinic.org/comment/790604/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2022

Funny, I have cll and pv, was being treated for pv with hu but when i...

https://connect.mayoclinic.org/comment/737663/

Discussion: Have ET: What if spleen is enlarged?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2022

I was diagnosed with cll over a year ago and have not had a biopsy. I...

https://connect.mayoclinic.org/comment/956195/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Oct 30, 2023

I was diagnosed with CLL at age 54 & I’m now 82. It is a watch...

https://connect.mayoclinic.org/comment/1098525/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

B-PLL no longer exists per the upcoming 5th edition of the World Health Organization Classification of...

https://connect.mayoclinic.org/comment/756812/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2022

Why are people so stubborn to get diagnosed. It’s just better to find out so it...

https://connect.mayoclinic.org/comment/1081902/

Discussion: Why doesn't a Mayo Wellness Checkup Include a Blood Test?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2024

You mean this does not make sense (from my FISH)? I focused on the 2nd and...

https://connect.mayoclinic.org/comment/950464/

Discussion: Possible upcoming lymphoma or leukemia diagnosis. What to expect?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2023

Let us know what treatment he will be getting?? My husband recently diagnosed with CLL leukemia,...

https://connect.mayoclinic.org/comment/716164/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2022

Hi! I’ve been that route. The rituxan worked actually too good for me. My marrow stopped...

https://connect.mayoclinic.org/comment/304671/

Discussion: CLL complicated by autoimmune hemolytic anemia (AIHA)

Support Group: Blood Cancers & Disorders

Posted: May 27, 2020

Hi Carol! I’d say that’s some gooder news with the steroid injections! In fact I’d change...

https://connect.mayoclinic.org/comment/1081416/

Discussion: What is the prognosis of living with CLL beyond 20 years?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2024

Hey there @terlato I am so glad to find your post. I was recently diagnosed with...

https://connect.mayoclinic.org/comment/1070574/

Discussion: Chronic lymphocytic leukemia and Hereditary Nerve Pressure Palsy

Support Group: Blood Cancers & Disorders

Posted: May 18, 2024

Welcome to Connect, @dhamra. We can drive ourselves crazy trying to figure out when, how, or...

https://connect.mayoclinic.org/comment/1094363/

Discussion: Is possible to know how long ago I got CLL?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

Good morning, @pike70 Chronic Lymphocytic Leukemia (CLL) is a cancer of the blood in a group...

https://connect.mayoclinic.org/comment/695487/

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2022

Prior to the CLL rearing it’s head, my kidney function was good. I had creatinine levels...

https://connect.mayoclinic.org/comment/326819/

Discussion: Cyclosporine and kidney issues

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2020