Blood Cancers & Disorders Support Group

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Comments (914)

@jam5, you are watching new treatment developments for CLL very closely. :-) You're right that zanubrutinib...

https://connect.mayoclinic.org/comment/800352/

Discussion: Starting Bendamustine and Rituxin for Follicular Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2023

Hi! thank you for sharing. It gives me hope since my husband was just diagnosed with...

https://connect.mayoclinic.org/comment/1061909/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

CLL Diagnosis at 80 Stage 0 Discovered Incidentally I have very brief lasting chills — so...

https://connect.mayoclinic.org/comment/754228/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2022

@johnwhitley Hi, I was dx'd May2024 with CLL stage 4 - I had high WBCs in...

https://connect.mayoclinic.org/comment/1436695/

Discussion: Is anyone dealing with CLL, Chronic Lymphoma Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2025

@54321kl. I take Vitamin D and plan on adding magnesium. What is EGCG? How long have...

https://connect.mayoclinic.org/comment/1175948/

Discussion: CLL Watch and Wait: Can supplements and diet help?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2024

Yes, I meant CLL. I am scheduled for a Wide Neck Dissection on The 29th of...

https://connect.mayoclinic.org/comment/751077/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2022

I have been diagnosed with a rare CLL, MGUS, and NXG. B cell therapy is helping...

https://connect.mayoclinic.org/comment/990930/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2024

My passion is in landscaping, focusing on flowers. I have no doubt my love of nature,...

https://connect.mayoclinic.org/comment/944682/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2023

I’m still experiencing a burning sensation in my back and arms in the morning when I...

https://connect.mayoclinic.org/comment/992939/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2024

Saw my oncologist this morning. Blood work ordered for Aug and I am to see her...

https://connect.mayoclinic.org/comment/1255599/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2025

Hi @marytheresacll! I know you’re always so positive and trying not to worry about your health....

https://connect.mayoclinic.org/comment/1013864/

Discussion: CLL: Has anyone experienced symptoms at Stage 0?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2024

@loribmt I w as taking Temozolomide (Temodar) for 3 months for NeuroEndocrine cancer and my CLL...

https://connect.mayoclinic.org/comment/1526711/

Discussion: Can Chronic Lymphocytic Leukemia (CLL) be cured?

Support Group: Blood Cancers & Disorders

Posted: Mar 14 11:16am

I would love to hear from anyone who has CLL and if you are on osteomeds?...

https://connect.mayoclinic.org/comment/1088786/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2024

@califirniagal my husband started Brukinsa( his WBC was 231 at the hospital) 1 tablet twice a...

https://connect.mayoclinic.org/comment/1486446/

Discussion: CLL Treatment side effects are wearing me down: Anything I can do?

Support Group: Blood Cancers & Disorders

Posted: Jan 19 10:53am

Hi. I'm 51 & was diagnosed with CLL in 2019 (although I'm pretty sure I've had...

https://connect.mayoclinic.org/comment/1434853/

Discussion: Is anyone dealing with CLL, Chronic Lymphoma Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2025

All I can say is follow your Doctor’s advice. If one isn’t comfortable with the advice...

https://connect.mayoclinic.org/comment/1407956/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2025

Thankyou for your kind word's. I do visit the site daily just to see if there...

https://connect.mayoclinic.org/comment/1321150/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2025

I am also fairly new to CLL. My primary found an elevated WBC. However, I was...

https://connect.mayoclinic.org/comment/1316001/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: May 29, 2025

Wanting to know information concerning treatment with Brukinsa(zanabrutinib) versus Bendamustine and Rituxan for CLL What are...

https://connect.mayoclinic.org/comment/800065/

Discussion: Starting Bendamustine and Rituxin for Follicular Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2023

Hi guys - I'm Bob, an over 4 year carrier of CLL. Yesterday I gave up...

https://connect.mayoclinic.org/comment/603866/

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: May 22, 2021