Blood Cancers & Disorders Support Group

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Comments (369)

I have a different diagnosis than you so you can look at my list and substitute...

https://connect.mayoclinic.org/comment/1308354/

Discussion: Diagnosed with MGUS. What questions should I ask the hematologist?

Support Group: Blood Cancers & Disorders

Posted: May 20, 2025

Hi @jeanette1954 A diagnosis of Polycythemia Vera (PV) usually indicates that the person has an underlying...

https://connect.mayoclinic.org/comment/1494793/

Discussion: 71 year old female diagnosed 6 month ago with PV

Support Group: Blood Cancers & Disorders

Posted: Jan 31 9:33am

Hi Justin, I have been thinking that maybe I should get another opinion at Mayo because...

https://connect.mayoclinic.org/comment/188873/

Discussion: Is Idiopathic Erythrocytosis (Polycythemia) cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2018

Welcome to Connect @jv4430. There are a number bone marrow disorders related to the JAK2 gene...

https://connect.mayoclinic.org/comment/969785/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2023

Wow, that’s not very helpful! That’s the old “Take 2 aspirin and call me in the...

https://connect.mayoclinic.org/comment/1136147/

Discussion: Polycythemia vera (PV) and bone pain: What helps?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2024

To eetap, 1) The JAK2 mutation is typically found either after a clotting event or routine...

https://connect.mayoclinic.org/comment/719531/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

Good morning, @mags17 Polycythemia Vera is a blood condition where too many red blood cells are...

https://connect.mayoclinic.org/comment/919145/

Discussion: Polycythaemia Ruba Vera, Jak2 mutation & link to Sleep Apnea

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2023

Hi @lindakay55 I’m so happy that you’ve joined Connect. It’s truly an amazing forum with people...

https://connect.mayoclinic.org/comment/1464122/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2025

Hi, Vicky, I am 70, CALR+, have had ET for about 15 years. Doing OK, no...

https://connect.mayoclinic.org/comment/1103555/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 11, 2024

Hi @sharonm2023. Welcome to Connect. I promise you won’t be alone here! There are quite a...

https://connect.mayoclinic.org/comment/1209751/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2025

Good morning, @onthejoedock. When there is a mutation with the JAK2 gene, it can interfere with...

https://connect.mayoclinic.org/comment/1009921/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Hi @rjohn3702, Polycythemia Vera is a very slowly developing blood cancer where your body produces too...

https://connect.mayoclinic.org/comment/840257/

Discussion: Hematocrit Continues to Drop After Stopping Hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

According to the Leukemia and Lymphoma Society and by the opinion of most doctors in the...

https://connect.mayoclinic.org/comment/1263596/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2025

Hi @kittycatgirl, From personal experience with bone marrow biopsies at Mayo, they do indeed use a...

https://connect.mayoclinic.org/comment/946113/

Discussion: Propofol for bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2023

by 262mpeaches @262mpeaches My sister age 40 passed away 2 hours after she saw the doctor...

https://connect.mayoclinic.org/comment/816010/

Discussion: Blood clots leading from lungs to heart

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023

@ettap you have a lot of reasonable questions. I'm not a doctor. I just have Jak2...

https://connect.mayoclinic.org/comment/919110/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2023

Good morning! I wish we could have a cup of coffee together. Your post sounds familiar...

https://connect.mayoclinic.org/comment/1279837/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2025

Greetings, @papa6275 I have Polycythemia vera. After a couple of years, I no longer tolerated Hydroxyurea....

https://connect.mayoclinic.org/comment/914653/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2023

@misty45, Thank you for replying and telling me your story. Having a positive JAK2 result, I'm...

https://connect.mayoclinic.org/comment/194261/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2018

Good morning, @irishgoff82. It’s always so jarring when we get news about our health that we...

https://connect.mayoclinic.org/comment/1195805/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2024

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