Blood Cancers & Disorders Support Group | Page 15

I am and 82 year old female. I have been living with ET for over 11...

https://connect.mayoclinic.org/comment/1498465/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 5 6:52am

Living with ET for 9 years and have not spoken to anyone else with this disorder....

https://connect.mayoclinic.org/comment/781906/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2022

@jsslmt53, welcome. We have many members who are living with Essential Thrombocythemia and talk about JAK2...

https://connect.mayoclinic.org/comment/782514/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Might be good to find out what driver mutation you have--JAK2, MPL, or CALR. It makes...

https://connect.mayoclinic.org/comment/1088475/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2024

A bone marrow biopsy has long been the gold standard for diagnosing ET. Happily, now diagnosis...

https://connect.mayoclinic.org/comment/1212814/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 15, 2025

@november2025 ET itself makes us tried. Overproducing platelets, our blood marrow uses up lots of energy.

https://connect.mayoclinic.org/comment/1440854/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2025

@nohrt4me Interesting. I have not heard of von Willebrand's Syndrome or in relation to ET. Just...

https://connect.mayoclinic.org/comment/1523610/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 12:20am

Hi, I have ET JAK2, but am not taking HU due to my age and other...

https://connect.mayoclinic.org/comment/830670/

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2023

@claire1776 While I'm grateful to HU for relieving my ET fatigue and headaches, I know it...

https://connect.mayoclinic.org/comment/1539278/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 31 6:55am

Hi @chimo I don’t usually chime in on ET threads because it’s not an area of...

https://connect.mayoclinic.org/comment/1547371/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 10 2:19pm

@sarahgault I was diagnosed exactly a year ago...platelets 490. I'm 76 now, have quarterly blood work;...

https://connect.mayoclinic.org/comment/1554522/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: 6 days ago

@1995victoria, @bonnieshaffer As previously stated, I have ET, I’m 70 years old, and am just on...

https://connect.mayoclinic.org/comment/930801/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2023

@daelitesmom I have ET with the JAK2 mutation and suffered from monthly migraines after having them...

https://connect.mayoclinic.org/comment/1474859/

Discussion: CALR exon 9 mutation w/translocation of chromosomes 10 &13

Support Group: Blood Cancers & Disorders

Posted: Jan 5 7:46am

My hematologist wanted the bone marrow biopsy first to confirm the ET diagnosis before starting me...

https://connect.mayoclinic.org/comment/1219907/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2025

I also have trouble with being lightheaded. I have et with Jake mutation I'm taking hydrea

https://connect.mayoclinic.org/comment/844171/

Discussion: Lightheaded with ET

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2023

Erthromelalgia, yes Worsening of asthma, yes Mental fog, yes Fatigue (not sleepiness), yes The asthma/shortness of...

https://connect.mayoclinic.org/comment/1528752/

Discussion: ET: untreated elevated platelets for over 13 years

Support Group: Blood Cancers & Disorders

Posted: Mar 17 6:51am

Hello everyone, I am recently diagnosed with ET and the Jak2 mutation. Cubby 13, I feel...

https://connect.mayoclinic.org/comment/1293524/

Discussion: Started Hydroxyurea 5 weeks . How long does the fatigue last?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2025

ET stands for Essential Thrombocytosis. , I have this also and with a JAK2 mutation. If...

https://connect.mayoclinic.org/comment/919462/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2023

@birgitr Birgit, I'm not as experienced as Lori and some of the others as I was...

https://connect.mayoclinic.org/comment/1493473/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 29 1:21pm

I was diagnosed with ET at 27. I had been having unusual, extensive bruising and severe...

https://connect.mayoclinic.org/comment/792696/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023