Blood Cancers & Disorders Support Group

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Comments (634)

@elainejarrett I am on watch and wait with CLL/SLL; diagnosed Jan 2023. MRI/CT scan show enlarged...

https://connect.mayoclinic.org/comment/825813/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

I am inclined to think my bad back pain, fatigue, and numbness in finger tips is...

https://connect.mayoclinic.org/comment/860828/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 16, 2023

Trying again. I saw that a second bivalent Covid vaccine is nearing approval for us. That...

https://connect.mayoclinic.org/comment/845670/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

I am being treated for acute hemolytic anemia with Rituxan (I've had 4 infusions) and will...

https://connect.mayoclinic.org/comment/304670/

Discussion: CLL complicated by autoimmune hemolytic anemia (AIHA)

Support Group: Blood Cancers & Disorders

Posted: May 27, 2020

I was diagnosed about 15 years ago. My Hemo/onco Doc initially confirmed CLL with B-lympho markers,...

https://connect.mayoclinic.org/comment/963301/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

Hi @marytheresacll, There’s quite a bit more information provided by a bone marrow biopsy and aspiration....

https://connect.mayoclinic.org/comment/947788/

Discussion: Possible upcoming lymphoma or leukemia diagnosis. What to expect?

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2023

Is your NP your primary provider? I am a Family Nurse Practitioner and when I got...

https://connect.mayoclinic.org/comment/1176995/

Discussion: CLL Watch and Wait: Can supplements and diet help?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024

It has been a long time since I have added anything to this site mainly because...

https://connect.mayoclinic.org/comment/1013720/

Discussion: CLL - Symptoms at Stage 0

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2024

As I understand it, the SRSF2 mutation is worse than the SBF31 mutation as it relates...

https://connect.mayoclinic.org/comment/328556/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2020

I have had CLL for about six years now with no treatments. My wife and I...

https://connect.mayoclinic.org/comment/728107/

Discussion: Any suggestions on how to travel safely with CLL?

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2022

I was diagnosed with CLL about 10 years ago and up to now I have had...

https://connect.mayoclinic.org/comment/989802/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2024

Hi @gg17, I'd like to bring @wolfbauer @engelee and @hanark0068 into this discussion as they also...

https://connect.mayoclinic.org/comment/304661/

Discussion: CLL complicated by autoimmune hemolytic anemia (AIHA)

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2020

I was diagnosed in 2021 and my hematologist/oncologist guessed I had probably had it for at...

https://connect.mayoclinic.org/comment/965569/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2023

has anyone discussed the green tea extract-(10,000 mg daily) massive effect on cll ? 7 years-...

https://connect.mayoclinic.org/comment/777453/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2022

Hi, I am interested in learning more about your infusions; are they beneficial in helping your...

https://connect.mayoclinic.org/comment/165743/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2018

Hi @lynnstefanik89 While you’re waiting for replies from members who may have both CLL and MZL,...

https://connect.mayoclinic.org/comment/1192826/

Discussion: Marginal zone lymphoma & chronic lymphocytic leukemia, anyone?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2024

@jmds66 Are you having treatment or wait and watch? I am 62 yrs and I was...

https://connect.mayoclinic.org/comment/842439/

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023

I was diagnosed with CLL years ago because my white cell count kept going up. I...

https://connect.mayoclinic.org/comment/1189532/

Discussion: Chronic lymphocytic leukemia (CLL)

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2024

Thats so great and encouraging to hear! I also have osteopenia.....I have a PET scan this...

https://connect.mayoclinic.org/comment/832044/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2023

@gmack, good luck Gary .. The Imbruvica has ABSOLUTELY been life changing for my husband .....

https://connect.mayoclinic.org/comment/113599/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2017