Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

985 total results

Comments (895)

@kandyburke. Hi Kandy, welcome to Mayo Connect. CLL is often very slow to progress as in...

https://connect.mayoclinic.org/comment/1405952/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2025

I had normal blood work over the summer of 2022, then I started losing weight and...

https://connect.mayoclinic.org/comment/963193/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

Hi @nana120. An enlarged spleen is a pretty common side effect of CLL. Instead of typing...

https://connect.mayoclinic.org/comment/1320049/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2025

@colleenyoung I was diagnosed with CLL two/three years ago. Nothing happened for a couple years. Then...

https://connect.mayoclinic.org/comment/1461657/

Discussion: CLL diagnosis: Anyone on watch and wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2025

Hello, to this group! CLL has been my companion since 1996, so you can see I...

https://connect.mayoclinic.org/comment/941181/

Discussion: Diagnosed with chronic lymphocytic leukemia: What can I do?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

Did I have symptoms NO. But approximately 3 years ago at my VET’s physical I was...

https://connect.mayoclinic.org/comment/1394308/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2025

@jam5, you are watching new treatment developments for CLL very closely. :-) You're right that zanubrutinib...

https://connect.mayoclinic.org/comment/800352/

Discussion: Starting Bendamustine and Rituxin for Follicular Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2023

Welcome to Connect, @gerryk. I'd like to introduce you to members who have been talking about...

https://connect.mayoclinic.org/comment/113585/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2016

Hi! thank you for sharing. It gives me hope since my husband was just diagnosed with...

https://connect.mayoclinic.org/comment/1061909/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

Yes, I meant CLL. I am scheduled for a Wide Neck Dissection on The 29th of...

https://connect.mayoclinic.org/comment/751077/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2022

@54321kl. I take Vitamin D and plan on adding magnesium. What is EGCG? How long have...

https://connect.mayoclinic.org/comment/1175948/

Discussion: CLL Watch and Wait: Can supplements and diet help?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2024

CLL Diagnosis at 80 Stage 0 Discovered Incidentally I have very brief lasting chills — so...

https://connect.mayoclinic.org/comment/754228/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2022

@johnwhitley Hi, I was dx'd May2024 with CLL stage 4 - I had high WBCs in...

https://connect.mayoclinic.org/comment/1436695/

Discussion: Is anyone dealing with CLL, Chronic Lymphoma Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2025

I have been diagnosed with a rare CLL, MGUS, and NXG. B cell therapy is helping...

https://connect.mayoclinic.org/comment/990930/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2024

My passion is in landscaping, focusing on flowers. I have no doubt my love of nature,...

https://connect.mayoclinic.org/comment/944682/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2023

I feel for you. Chemo is tough in general, and at your age, even harder. Your...

https://connect.mayoclinic.org/comment/1472162/

Discussion: CLL Treatment side effects are wearing me down: Anything I can do?

Support Group: Blood Cancers & Disorders

Posted: Jan 1 12:24pm

I’m still experiencing a burning sensation in my back and arms in the morning when I...

https://connect.mayoclinic.org/comment/992939/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2024

Saw my oncologist this morning. Blood work ordered for Aug and I am to see her...

https://connect.mayoclinic.org/comment/1255599/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2025

Hi @marytheresacll! I know you’re always so positive and trying not to worry about your health....

https://connect.mayoclinic.org/comment/1013864/

Discussion: CLL: Has anyone experienced symptoms at Stage 0?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2024

I would love to hear from anyone who has CLL and if you are on osteomeds?...

https://connect.mayoclinic.org/comment/1088786/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2024