Blood Cancers & Disorders Support Group

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Comments (337)

Hi @draney, not getting enough air can sure make a person feel panicky. You have Polycythemia...

https://connect.mayoclinic.org/comment/887453/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Yes my husband had the JAK2 test after his platelets were in the 800's. And JAK2...

https://connect.mayoclinic.org/comment/1009781/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

My hubby was told like 20 years ago by his former PCP that his blood was...

https://connect.mayoclinic.org/comment/740738/

Discussion: Hemachromatosis...

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2022

Thank you Ms. Young, As you may know I am new to this website. My Wife...

https://connect.mayoclinic.org/comment/911895/

Discussion: BESREMi anyone?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023

Good morning lindagualtieri. I am from Kentucky. I have had Polycythemia Vera (PV) for 6 years...

https://connect.mayoclinic.org/comment/1148497/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2024

Welcome to Connect, @chella65. As you can see you’re not alone with your new diagnosis of...

https://connect.mayoclinic.org/comment/879767/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Hi @lindakay55 I’m so happy that you’ve joined Connect. It’s truly an amazing forum with people...

https://connect.mayoclinic.org/comment/1464122/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2025

I was first alerted in May 2022 that all red blood count were high. No one...

https://connect.mayoclinic.org/comment/825133/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2023

Ok from what I’m understanding is that you’ve been diagnosed with polycythemia vera. This is a...

https://connect.mayoclinic.org/comment/1137715/

Discussion: Polycythemia vera (PV) and bone pain: What helps?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2024

Welcome to Connect, @jtcat7. Looks like you have a full deck of mutations in your hand....

https://connect.mayoclinic.org/comment/1367613/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2025

Mtnlife, I too had no symptoms of anything prior to a routine blood test. in March...

https://connect.mayoclinic.org/comment/783874/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2022

My Naturopathic Physician suggested I see a Oncologist or Hemotologist in 2013 because my Platelets were...

https://connect.mayoclinic.org/comment/194297/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2019

I was diagnosed with PV in February 2021. My hematologist goes by my hemoglobin number, which...

https://connect.mayoclinic.org/comment/843409/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2023

Good questions. I’m not a medical doctor. My career was at the diagnostic end (lab). Therefore,...

https://connect.mayoclinic.org/comment/981500/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

So I have a quick question for you, knowing your background. I was diagnosed with polycythemia...

https://connect.mayoclinic.org/comment/980944/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2023

I have a different diagnosis than you so you can look at my list and substitute...

https://connect.mayoclinic.org/comment/1308354/

Discussion: Diagnosed with MGUS. What questions should I ask the hematologist?

Support Group: Blood Cancers & Disorders

Posted: May 20, 2025

Hi Justin, I have been thinking that maybe I should get another opinion at Mayo because...

https://connect.mayoclinic.org/comment/188873/

Discussion: Is Idiopathic Erythrocytosis (Polycythemia) cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2018

Welcome to Connect @jv4430. There are a number bone marrow disorders related to the JAK2 gene...

https://connect.mayoclinic.org/comment/969785/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2023

To eetap, 1) The JAK2 mutation is typically found either after a clotting event or routine...

https://connect.mayoclinic.org/comment/719531/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

Wow, that’s not very helpful! That’s the old “Take 2 aspirin and call me in the...

https://connect.mayoclinic.org/comment/1136147/

Discussion: Polycythemia vera (PV) and bone pain: What helps?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2024