Blood Cancers & Disorders Support Group

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Comments (1,892)

Hi Jackie, MGUS is a watchful waiting condition so there aren’t medications specifically. I’m sorry, I...

https://connect.mayoclinic.org/comment/863810/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2023

@lbhayes Here you go. https://www.mayoclinic.org/diseases-conditions/mgus/doctors-departments/ddc-20352369

https://connect.mayoclinic.org/comment/1114207/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 29, 2024

@rade sounds like you are getting a comprehensive workup. Some doctors don’t want to diagnose MGUS...

https://connect.mayoclinic.org/comment/1066431/

Discussion: Elevated free chains in urine

Support Group: Blood Cancers & Disorders

Posted: May 12, 2024

Thank you so much Lori. Obviously I’m scared to have the biopsy so wanted to see...

https://connect.mayoclinic.org/comment/889956/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

Thanks for your comments. I was diagnosed with MGUS in 2014 ,then CLL and APL had...

https://connect.mayoclinic.org/comment/794602/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2023

@cctoo, it would be interesting to ask your doctor about the possible relationship between Monoclonal gammopathy...

https://connect.mayoclinic.org/comment/74612/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Oct 31, 2020

I have a new diagnosis of MGUS. I do not have neuropathy just pain at my...

https://connect.mayoclinic.org/comment/898143/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2023

@beckyjochilson I responded to your other post, under MGUS with Bone Pain https://connect.mayoclinic.org/discussion/mgus-with-bone-pain/?pg=4#comment-1012611. Can you keep...

https://connect.mayoclinic.org/comment/1012615/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 9, 2024

I am struggling to cope with the fact that we both now have MGUS. I did...

https://connect.mayoclinic.org/comment/958950/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2023

Well, I can ID. I am 69 yrs old male, confirmed dx 3 wks ago and...

https://connect.mayoclinic.org/comment/1055341/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2024

I found this. Stay healthy, folks. https://pmc.ncbi.nlm.nih.gov/articles/PMC10140469/#:~:text=MGUS%20patients%20were%20found%20to,%25%20CI%201.01%2D1.27).

https://connect.mayoclinic.org/comment/1324111/

Discussion: Have MGUS and just caught Covid: Did Covid affect your numbers?

Support Group: Blood Cancers & Disorders

Posted: Jun 10 8:30am

You are so right I have seen a lot of doctors very few listen to what...

https://connect.mayoclinic.org/comment/880572/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2023

Dear Tracy, just saw this note on this very special forum. I have Kappa light chain...

https://connect.mayoclinic.org/comment/817436/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

Welcome @roseyd. You will connect with many others here, including @gingerw who has history with MGUS...

https://connect.mayoclinic.org/comment/793700/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2023

I am 70 years old and I've just been diagnosed with MGUS last October (Oct. 2024)....

https://connect.mayoclinic.org/comment/1248069/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 1 12:16pm

Having MGUS is difficult disease. It’s usually found by accident. You have no physical symptoms. You...

https://connect.mayoclinic.org/comment/1284519/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 18 8:40am

Glad to hear you’ve had MGUS 23 years! I’m going on 4 years myself. Can you...

https://connect.mayoclinic.org/comment/1340652/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 3 7:21pm

The annual chance of MGUS progressing to MM depends considerably more on the MGUS risk level...

https://connect.mayoclinic.org/comment/1304590/

Discussion: Can weight gain cause progression from MGUS to myeloma?

Support Group: Blood Cancers & Disorders

Posted: May 15 9:39am

I was dx with MGUS in 11/22 It was discovered wheh recovering from extensive back surgery....

https://connect.mayoclinic.org/comment/828720/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2023

Colleen, Thank you very much for your information and request from other MGUS members. 😊

https://connect.mayoclinic.org/comment/770469/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2022