Blood Cancers & Disorders Support Group

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Comments (2,233)

@skate Welcome to the Mayo Clinic Connect forum. I agree with Ginger that “watch and wait”...

https://connect.mayoclinic.org/comment/1182896/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2024

I too have been recently diagnosed with MGUS. It was found when I was being tested...

https://connect.mayoclinic.org/comment/812215/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2023

I've had MGUS for 8 years. I had a BMB this summer and plasma level was...

https://connect.mayoclinic.org/comment/1206586/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2025

My MGUS levels are not a concern at this time, so they’re being watched by myhemotologist-oncologist....

https://connect.mayoclinic.org/comment/943824/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

Wondering if MGUS is related to Cold Agglutinin Disease. I have both and also ITP, another...

https://connect.mayoclinic.org/comment/665531/

Discussion: MGUS associated with Type I Cryoglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2021

They have you on chemo with a negative biopsy? Are the meds for symptoms associated with...

https://connect.mayoclinic.org/comment/933604/

Discussion: MGUS and Chemotherapy

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2023

Thank you Ginger. Can I ask how long you’ve had MGUS?

https://connect.mayoclinic.org/comment/1141673/

Discussion: Resources for MGUS: What reading is helpful for the newly diagnosed?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2024

No one really knows what is going on. There is so much we have yet to...

https://connect.mayoclinic.org/comment/1112823/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2024

hi, I am not really understanding Chip either. It’s similar to MGS because they are both...

https://connect.mayoclinic.org/comment/1116759/

Discussion: Diagnosed with MGUS and CHIP with M spike

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2024

I am convinced neuropathy can be related to free light chains and antibodies(in my case igM)...

https://connect.mayoclinic.org/comment/987941/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

Welcome to Connect, @monte22. MGUS generally is perceived as not having many symptoms but as other...

https://connect.mayoclinic.org/comment/953547/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2023

I have had four joint replacement surgeries in 10 years - all 15 years after being...

https://connect.mayoclinic.org/comment/1516915/

Discussion: Any concerns if you have MGUS and need joint replacement surgery?

Support Group: Blood Cancers & Disorders

Posted: Mar 1 6:34am

Hi Susan: I was diagnosed about 2 years ago with MGUS from routine physical- trying to...

https://connect.mayoclinic.org/comment/861128/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 17, 2023

@samraz, I thought I'd tag you on this discussion to connect you with others living with...

https://connect.mayoclinic.org/comment/817673/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

this gives some good diagnostic information about MGUS. https://ascopubs.org/doi/10.1200/EDBK_349643

https://connect.mayoclinic.org/comment/1267675/

Discussion: MGUS Diagnosis Criteria

Support Group: Blood Cancers & Disorders

Posted: Mar 26, 2025

@pnpam75 MM is shorthand for Multiple Myeloma. MGUS is often considered a precursor to this, a...

https://connect.mayoclinic.org/comment/1062610/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

I have been diagnosed with mgus but don't fully understand what it is all about

https://connect.mayoclinic.org/comment/977013/

Discussion: Should I be worried about my MGUS diagnosis and my M Spike rising?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2023

I’m not really sure what markers. I was diagnosed with MGUS 6 months ago

https://connect.mayoclinic.org/comment/1183827/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2024

See a myeloma specialist. If they suggest it, follow their very knowledgeable advice. I’m glad I...

https://connect.mayoclinic.org/comment/1324346/

Discussion: Very anxious about bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2025

I only know a few months that a have MGUS. I‘m very anxious. I have never...

https://connect.mayoclinic.org/comment/1189629/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2024