Blood Cancers & Disorders Support Group

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Comments (303)

Welcome to Connect, Jean! As you’ve discovered, there are a number of members in the forum...

https://connect.mayoclinic.org/comment/1039680/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2024

@dragonflylynda Oh, i’m sorry, I must have mis-read a reply…nothing wrong with my brain! LOL Well,...

https://connect.mayoclinic.org/comment/1464788/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

Hi Linda. Hydroxyurea is a standard first line treatment for some blood conditions such as ET....

https://connect.mayoclinic.org/comment/1146907/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 24, 2024

I'm sorry to hear about the joint pain and leg aches you're experiencing while managing essential...

https://connect.mayoclinic.org/comment/1459176/

Discussion: How long will Fosomax stay in my bones after quitting?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2025

Hey dunewalker, I did the bone marrow biopsy last week at Mayo and went over results...

https://connect.mayoclinic.org/comment/1293666/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2025

Good morning, @irishgoff82. It’s always so jarring when we get news about our health that we...

https://connect.mayoclinic.org/comment/1195805/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2024

@misty45, Thank you for replying and telling me your story. Having a positive JAK2 result, I'm...

https://connect.mayoclinic.org/comment/194261/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2018

Hi @bohobruja Welcome to Mayo Connect. The National Institute of Health defines chronic myeloproliferative disorders as...

https://connect.mayoclinic.org/comment/786594/

Discussion: Does anyone else have more than one myeloproliferative disorder?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2022

My hematologist submitted blood at a lab for 5 genetic tests after I suffered my 2nd...

https://connect.mayoclinic.org/comment/194258/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2018

Dear PinkFlamingo, Wow!! Sorry for what you are going through. I had the JAK2 blood work...

https://connect.mayoclinic.org/comment/836159/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

Hi @cindyem I just read another comment you posted about having PV and anemia. From information...

https://connect.mayoclinic.org/comment/884148/

Discussion: Does anyone have information on PV with a low hemoglobin/ red count

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2023

Good morning @daelitesmom. Glad I had my cup of tea in hand to read through your...

https://connect.mayoclinic.org/comment/1456025/

Discussion: CALR exon 9 mutation w/translocation of chromosomes 10 &13

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2025

My husband: MF and ET diagnosed 25 years ago at age 40. I lead with this...

https://connect.mayoclinic.org/comment/1230159/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2025

Hi, I have been on Hydrea since 1992. I'm 78 years old. I have essential thrombocythemia,...

https://connect.mayoclinic.org/comment/1351369/

Discussion: F/w PV- JAK2-pre-mylelofibrosis SCARED to start Hydroxyurea. Help!

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2025

I was diagnosed with high platelets after a blood test in January 2025. My previous July...

https://connect.mayoclinic.org/comment/1348757/

Discussion: Question about how you each received your diagnosis of MPN

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2025

In response to earlier posts I was asked to post bone marrow biopsy results, hope this...

https://connect.mayoclinic.org/comment/57951/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Jul 16, 2020

Good morning, @onthejoedock. These are lovely photos of your handsome husband…so active and vital. But the...

https://connect.mayoclinic.org/comment/1082921/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2024

Hi @nyjean. Hopefully I can answer your question about PV and ET. Those two conditions, along...

https://connect.mayoclinic.org/comment/1066510/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2024

Hi @lyno29, You posted: “I’m choosing not to do chemo, even though my doctor recommends it....

https://connect.mayoclinic.org/comment/1230545/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2025

Hi @monarenae Welcome to Mayo Clinic Connect! In this community based forum, we’re not medical professionals...

https://connect.mayoclinic.org/comment/609161/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2021

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